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Feeling Worse In The Evening


MarylandMan

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MarylandMan Newbie

After about a year of recovery where I certainly made a few mistakes with CC I was really feeling great, back to my old self. Whatever it was this time though really got me good. So I am three weeks into recovering from my first severe glutening. It is taking forever and I hate this feeling. I would like to at least come away from this setback a little smarter.

So here goes; I always noticed that I would feel worse at the end of the day. What I don't know is why. I started thinking that perhaps the combination of the malabsorption and the fact that I struggle to eat when feeling bad leave me low on nutrients and by the end of the day my body is spent. Then I started thinking that this could also explain why I will start feeling better and then regress. Since when I am feeling terrible it is all I can do to get to work and back as soon as I have a good day, I start playing catch up and get all of the housework, yard work, etc. done. Does anyone else experience this type of thing in their recovery?

I have also decided to step up my nutritional supplements. I was taking Prilosec, Align, and a chewable multivitamin that states gluten free. I am now going to try the Celiact Multivitamin I found here at the Gluten Free Mall. The Celiact contains probiotics so I am thinking I can drop the Align as well as the Multivitamin. That will help the wallet, besides I am not sure how much probiotics are too much.


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pricklypear1971 Community Regular

You have an AI disease. Most of us don't realize the stress it can put on our bodies. We don't all experience the effects the same way.

I have two AI diseases. Maybe three, depending on your pov.

As my doctor put it, one is enough for your adrenals to be challenged. Two...you will always need support. It's the nature of the disease.

I fought the adrenal thing for months. Refused to believe it, that I needed supplaments. Well, guess what - they keep me going along with a great diet and exercise. Diet alone won't do it, neither will exercise alone or just supplaments. It takes all three.

I am on adrenal cortex, dhea, chromium, and now I'm supposed to eat Brazil nuts for selenium (thyroid). That's in addition to multivitamin, d, iron. And occasionally, antihistimines when seasonal allergies kick my butt.

I think of stamina like a paycheck. I only get so much and I have to budget. Can't spend too much in one day, one week, etc. Supplaments put more money in the bank and help me stretch it.

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      Welcome to the forum, @Trish G! "Gluten free" does not necessarily equate to "no gluten". According to FDA standards it actually means that a food product contains no more than 20ppm of gluten. This is safe for most celiacs but would not be for those who are on the more sensitive end of the spectrum. So, it would depend on the individual celiac and their level of sensitivity to minor amounts of gluten. That's the long and nuanced answer. The short answer is that it is a product derived from wheat and so you can be certain it will contain some residual amounts of gluten. No gluten removal process is 100% effective. So, to be absolutely certain, stay away from it. Have you tried chia seeds? Very high in fiber and quickly turns into a gel when added to water. Make sure you get seeds that are gluten free if you decide to try it.
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      @Rejoicephd, I'm not a doctor, but I experienced severe thiamine deficiency.  Your symptoms seem really familiar.  Malabsorption is a real thing that happens with Celiac.  A multivitamin is not going to prevent nor correct nutritional deficiencies.    Doctors do not recognize nutritional deficiency symptoms.  Gastrointestinal Beriberi is not recognized often.  Caused by thiamine deficiency, high dose thiamine supplements or IV administration with other vitamins, minerals and glucose under doctor's care is needed.   Thiamine deficiency is found in anemia.  Thiamine deficiency in the kidneys can result in electrolyte imbalances and cloudy urine.  Thiamine deficiency can cause high blood sugar which can cause cloudy urine.  Dehydration can cause cloudy urine.   I'm linking some PubMed articles.  You see if your symptoms match.  Discuss the possibility of Gastrointestinal Beriberi with one of your specialists soon!  Just to rule it out.  I'm very concerned.   I'm linking some PubMed articles.  You see if your symptoms match.   Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/#ref3 From Section 3: "In conclusion, TD limited to the gastrointestinal system may be an overlooked and underdiagnosed cause of the increasingly common gastrointestinal disorders encountered in modern medical settings. Left unattended, it may progress to wet or dry beriberi, most often observed as Wernicke encephalopathy.". . And... Refeeding Syndrome https://www.ncbi.nlm.nih.gov/books/NBK564513/
    • trents
      What are your symptoms? What has brought you to the point where you sought celiac disease testing?
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