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Feeling Worse In The Evening


MarylandMan

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MarylandMan Newbie

After about a year of recovery where I certainly made a few mistakes with CC I was really feeling great, back to my old self. Whatever it was this time though really got me good. So I am three weeks into recovering from my first severe glutening. It is taking forever and I hate this feeling. I would like to at least come away from this setback a little smarter.

So here goes; I always noticed that I would feel worse at the end of the day. What I don't know is why. I started thinking that perhaps the combination of the malabsorption and the fact that I struggle to eat when feeling bad leave me low on nutrients and by the end of the day my body is spent. Then I started thinking that this could also explain why I will start feeling better and then regress. Since when I am feeling terrible it is all I can do to get to work and back as soon as I have a good day, I start playing catch up and get all of the housework, yard work, etc. done. Does anyone else experience this type of thing in their recovery?

I have also decided to step up my nutritional supplements. I was taking Prilosec, Align, and a chewable multivitamin that states gluten free. I am now going to try the Celiact Multivitamin I found here at the Gluten Free Mall. The Celiact contains probiotics so I am thinking I can drop the Align as well as the Multivitamin. That will help the wallet, besides I am not sure how much probiotics are too much.


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pricklypear1971 Community Regular

You have an AI disease. Most of us don't realize the stress it can put on our bodies. We don't all experience the effects the same way.

I have two AI diseases. Maybe three, depending on your pov.

As my doctor put it, one is enough for your adrenals to be challenged. Two...you will always need support. It's the nature of the disease.

I fought the adrenal thing for months. Refused to believe it, that I needed supplaments. Well, guess what - they keep me going along with a great diet and exercise. Diet alone won't do it, neither will exercise alone or just supplaments. It takes all three.

I am on adrenal cortex, dhea, chromium, and now I'm supposed to eat Brazil nuts for selenium (thyroid). That's in addition to multivitamin, d, iron. And occasionally, antihistimines when seasonal allergies kick my butt.

I think of stamina like a paycheck. I only get so much and I have to budget. Can't spend too much in one day, one week, etc. Supplaments put more money in the bank and help me stretch it.

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    • trents
      @Charlie1946, celiac disease damages the lining of the small bowel which is the part of the intestinal track where all our nutrition is absorbed. Celiac disease, therefore, often results in nutritional deficiency related health issues. In addition, you describe a diet that sounds largely devoid of fruits and vegetables and dairy (for calcium). This does not bode well for good oral health or good health in general.  It can take two years or more for good healing of the lining of the small bowel after adopting a consistently gluten free diet. In the meantime, adding in good quality supplements can help compensate for poor nutritional absorption efficiency. Common over the counter vitamins and supplements are often optimized for shelf life rather than good assimilation/utilization by the body. We commonly recommend that those struggling with nutritional deficiencies start taking high potency B-complex, 5-10,000 IU of E daily, D3, Zinc and magnesium glycinate. They need to be checked to make sure they are gluten free since wheat starch can be used as a filler in pills and vitamins. Costco Kirkland Signature and Nature Made brands are often good choices. What is causing your swallowing problems? Is it the thrush?
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      The Benfotiamine and thiamax need magnesium to make life sustaining enzymes.  Yes, go ahead and take the Benfotiamine and Thiamax now and include the magnesium as soon as possible.   Yes, take the magnesium at breakfast, too.   I take my Benfotiamine and TTFD Thiamax and B Complex  at the beginning of breakfast.  I take the magnesium after I finish eating breakfast.  Yes, I take NeuroMag.  
    • Charlie1946
      @knitty kitty thank you for replying so quickly! I have not done well at all taking vitamins or supplements, I have such a hard time swallowing even small pills, so I have resorted to crushing them and taking them with Gatorade.  Pretty much I eat baked chicken tenders, Fairlife chocolate protein shakes, gluten free crackers. Thank you so much for the advice, I will try it all for sure, because everything I have tried OTC has done nothing 
    • Charlie1946
      Hi, thank you for the quick reply! I was diagnosed about 5 years ago I think,  I try to be extremely careful with what I eat so I don't get cross contamination. I used to get little sores in my mouth when I was little, usually from sucking on hard candy, but L-lisene would clear it right up. I got that Nasal Navage thing and used it twice and that's when I thought I had a sinus infection. So I got a z pack. Then I noticed my tongue was coated and it was white except right down the middle which was more brown and crusty, like the corners of my mouth. I also have dry mouth and I went way too long before I started treating it. So then I had some kind of huge pill and Nystatin mouthwash. My mother in law's new husband ( they live upstairs) started complaining of exactly the same symptoms as me. He went to urgent care, they said it wasn't thrush, it was shingles. We both went to our dentist's for cleanings, I don't have insurance so I really couldn't tell they cleaned my teeth at all. But she said my mouth looked good, all cleared up. I had a day and a half of no pain and then it came right back. So I got more pills and miracle mouthwash. There are times it feels like dry socket and times it feels like it's bleeding but it's not. I don't see any gum or facial swelling, I did see a couple of tiny ulcers on my bottom lip, roof of my mouth is still sore, and my tongue and cheeks are still a little coated. I am just at a loss. My mother in law's husband, they  took swabs and called back a week later and said it was a new herpes variant virus that is going around but not contagious. He was cured after a week! And I'm going on 3 months 😭
    • xxnonamexx
      The thiamax and benfo I ordered should come tomorrow. I will start Friday ny b complex the benfo and thiamax for breakfast. I haven't ordered magnesium yet. I wanted to start with this first then add magnesium. Should it be fine to take b complex the thia/benfo and eventually magnesium at breakfast together? Thanks
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