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Feeling Worse In The Evening


MarylandMan

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MarylandMan Newbie

After about a year of recovery where I certainly made a few mistakes with CC I was really feeling great, back to my old self. Whatever it was this time though really got me good. So I am three weeks into recovering from my first severe glutening. It is taking forever and I hate this feeling. I would like to at least come away from this setback a little smarter.

So here goes; I always noticed that I would feel worse at the end of the day. What I don't know is why. I started thinking that perhaps the combination of the malabsorption and the fact that I struggle to eat when feeling bad leave me low on nutrients and by the end of the day my body is spent. Then I started thinking that this could also explain why I will start feeling better and then regress. Since when I am feeling terrible it is all I can do to get to work and back as soon as I have a good day, I start playing catch up and get all of the housework, yard work, etc. done. Does anyone else experience this type of thing in their recovery?

I have also decided to step up my nutritional supplements. I was taking Prilosec, Align, and a chewable multivitamin that states gluten free. I am now going to try the Celiact Multivitamin I found here at the Gluten Free Mall. The Celiact contains probiotics so I am thinking I can drop the Align as well as the Multivitamin. That will help the wallet, besides I am not sure how much probiotics are too much.


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pricklypear1971 Community Regular

You have an AI disease. Most of us don't realize the stress it can put on our bodies. We don't all experience the effects the same way.

I have two AI diseases. Maybe three, depending on your pov.

As my doctor put it, one is enough for your adrenals to be challenged. Two...you will always need support. It's the nature of the disease.

I fought the adrenal thing for months. Refused to believe it, that I needed supplaments. Well, guess what - they keep me going along with a great diet and exercise. Diet alone won't do it, neither will exercise alone or just supplaments. It takes all three.

I am on adrenal cortex, dhea, chromium, and now I'm supposed to eat Brazil nuts for selenium (thyroid). That's in addition to multivitamin, d, iron. And occasionally, antihistimines when seasonal allergies kick my butt.

I think of stamina like a paycheck. I only get so much and I have to budget. Can't spend too much in one day, one week, etc. Supplaments put more money in the bank and help me stretch it.

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    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
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