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Gluten Free 2 Years Still Having Issues
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I was diagnosed 2 years ago this July and after looking back on everything I probably had symptoms for at least 5 years before I was diagnosed. I have been on a strict gluten-free diet with no cross contamination. I don't go to restaurants and I prepare my own food at home. I am very careful about checking lables on everything right down to hand lotion. 2 years ago I had almost every symptom on the list except for seizures or thyroid problems. Since I've been on a gluten-free diet my symptoms seemed to have gotten better, everything seemed to have healed so I don't have digestive issues anymore and I've been fairly healthy. But over the last few weeks it seems that some symptoms have returned. I am very tired all the time again. My muscles are cramping, twitching and aching. My blood pressure has gone up again. My skin hurts. I am bloated and retaining water. And my hair is falling out and very dry/brittle no matter what I do to it. I do take extra vitamins (Multi, B Complex and D), but I just had bloodwork done yesterday to test levels. Is it possible that even after 2 years I could have issues again or still with absorption? If not what are other possible issues? Has anyone else gone through this? Thank you in advance for your help.

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Possible it has nothing to do with Celiac?  Check your thyroid? 

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Definitely have a work up to see if it is unrelated.  If celiac, did you make any changes to your diet recently?  You say you prepare your food at home.  It is produce and unprocessed meats?  If eating products, could processing have changed in any of them to add cc chances?  Do you eat gluten-free grains?  There have been studies showing that they can have cc issues.  You can try eliminating suspect items one at a time to see if anything helps.  Some of us get sensitive to lower levels of cc as time goes on.   I hope that you feel better soon.

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    • puffiness in face
      The puffiness in my face went down a lot after I went gluten free. Old photos shock me sometimes now! Your doctor should be able to test you for food intolerance? Here in UK I did tests for wheat, nut, mustard etc. You can do a blood test and there's also skin prick tests I think, am sure others here would know more.  Good luck    
    • glutened by lays potato chips?
      Here in the UK I can't eat Lay's owned Walkers crisps as even the ones without gluten ingredients can cause a reaction. I read it was something to do with their production processes. Looks like others have same problems too:  
    • Newly diagnosed and totally overwhelmed
      Don't apologise! Not needed here at least where people know exactly what you're going through. As Cyclinglady says, you're now in a grieving process for the former, carefree attitude to food you've now lost. You may find this helpful in understanding the psychological journey you're on: http://psychcentral.com/lib/the-5-stages-of-loss-and-grief/ It WILL get better. Eating cleanly is very good advice as you heal but you can then find the replacement snacks and treats that are safe to eat.  I now know which chocolate bars are ok, which brands of crisps (chips) are safe etc.  I don't drink now, but I did find there were some fantastic ciders that I could tolerate and you've always got wine! In fact one of the weirder discoveries post gluten was that my past (vicious) hangovers were far more about gluten reactions than the alcohol itself. A cider hangover is a breeze in comparison All the best!  
    • glutened by lays potato chips?
      I ate some baked lays last night and felt very sick all night and haven't been feeling great all day today. Other than that I didn't eat anything different from what I normally eat and there was no risk of cross contamination with anything.. These were the only thing I had that was different. They're labeled gluten free so I figured it would be okay, but I started feeling sick pretty soon after eating them. I'm not sure if it's another ingredient in them or what (and i know it's not the soy).. Has anyone else had a reaction to lays potato chips?
    • Symptoms In Toddlers?
      Welcome Ashley! Here are the current tests.  The DGP versions seem to work a bit better than the TTG in small children.  So, ask for the complete panel (and get it all in one stick....my 15 year still hates to get blood drawn ! http://www.cureceliacdisease.org/screening/ Your doctors are wrong!  They must be reading old medical text books.  Not all kids or people have failure to thrive!  You can even be symptom free!. I was anemic and had no intestinal issues when I was diagnosed.  celiac disease affects everyone differently and that's probably why so many folks are not diagnosed. Your kids (parents, siblings too) should be tested every few years (sooner if symptoms develop) per all the leading celiac researchers/doctors if a first-degree relative has celiac disease (like you!)  celiac disease can develop at any age! Hope this helps!   
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