Get email alerts Get E-mail Alerts Sponsor: Sponsor:

Ads by Google:

   Get email alerts  Subscribe to FREE email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store.

Two Year Old Won't Eat!

7 posts in this topic

It is so great to find all of you! We have a great specialist who diagnosed our son when he was 19 months old. Now, he's 2 1/2. Our problem, and no one seems to have the answer, is that HE WON'T EAT. When they tested for celiac, they also found that he had 4 ulcers. He is on medication for that. Food that he liked one day, he won't touch the next day. He is currently existing on a toddler soy formula. Sometimes we add rice cereal (the infant kind) to that. Tried to change him to soy milk, tried half formula, half soy milk - he won't touch it. He will sometimes take a bite of something, e.g., bbq chicken, then cry and spit it out.

Has anyone gone through this? My husband and I are SO FRUSTRATED. Today was a victory because he ate a little bit of jello.

Even if you haven't experienced what we are going through, I am so relieved to read through your posts. It feels like I found some friends. :)


Share this post

Link to post
Share on other sites

Ads by Google:

Hi Marianne,

Welcome to the board. The people here are great. It really does feel like a bunch of friends getting together! It helps to have people who understand what you are going through.

I feel bad for your little guy, and I know you must be concerned about him, but I want to ask you a few things.

Is he growing? If he is growing alright, then the formula is probably enough for now.

Has he been tested for other food intolerances? There may be other foods that are bothering him and that may be why he spits them out. But if he spits everything out, then that is probably not it.

My children are new to the gluten-free diet having only got their tests back 2 1/2 weeks ago, and although I have plenty of gluten-free foods available for them, my daughter (she is 4 1/2) is not eating nearly as much as I think she should eat. We are all dairy intolerant right now and she really misses cheese! My middle boy (7 1/2) was complaining tonight because he was having a bad craving and it was not for anything we had in the house, but he couldn't figure out what it was. My 9 year old boy is having the easiest time of it, he is the only one not complaining, at least not since I found him some dairy free margarine. :rolleyes:

Have you tried to give your son some gluten-free finger foods? Maybe some regular gluten-free cereals for snacks or some gluten-free pretzels. Glutino makes great gluten-free pretzels.

Does he eat any fruits or veggies? Maybe some little cut up pieces of fruit. I would go easy on the acidic foods if he has ulcers. Maybe chicken without BBQ sauce?

I have a hard time imagining a child who does not eat anything at all, but I guess if he was hurting that bad he just doesn't want to hurt like that again. He may just be afraid to eat. What does the doctor say about it?

sorry for so many questions.

God bless,

Mariann (mine is spelled without the e :D )


Share this post

Link to post
Share on other sites

Hi and welcome! I'm pretty new to this myself (my daughter will be gluten-free 2 weeks tomorrow!) but I can only imagine how frustrating it is that your son won't eat. I personally wouldn't try to switch him to soy milk instead of the toddler formula. Since he isn't eating, he really needs the extra nutrients the formula provides. Maybe he just got so used to not chewing and swallowing food when it hurt so bad. This might sound weird, but would he eat baby food? Since he ate jello, I was wondering. Then maybe if he eats it you could slowly move to the stages that have more to chew and kind of ease him in to regular food again. I would definately consult your doctor if you haven't already. Adding the rice cereal wouldn't hurt either! I agree that if he is growing you should find some comfort knowing he is getting what he needs, but I understand you want him to be able to eat as well!



Share this post

Link to post
Share on other sites

Hi ladies and thanks for your responses -

My son was tested for other food allergies and he doesn't have any others. Even dairy is ok. When he was an infant, the pediatrician thought he was lactose intolerant, but looking back, I think it was the celiac.

Regarding his weight, he had lost some weight and then between Jan and Feb, he gained a pound and a half. The specialist said that 5 lbs. a year is normal for a toddler, so that was a big gain. Because of that, my husband and I have thought as you did: at least he is getting what he needs. But he can't exist on formula - he is almost 3!

The baby food is an idea - I also thought of it. He was never too fond of the stuff even when he was younger, but the fruits were ok. When we were in the grocery store recently, I asked him to pick the fruit he wanted. ( Not IF he wanted one, but WHICH one he wanted :rolleyes: ) He didn't want any. Maybe I'll keep trying with that.

The pretzel recommendation is also appreciated. I have tried putting out a little tray with some of his favorites cut up: cucumbers, fruits, etc. Before, he would nibble. But now, nothing.

The doctor called me last night (9:30) and said that if all else fails, she can try an appetite inducing medication. I hate to overmedicate, so I told her we can wait 1 or 2 more days and see if he improves. How I wish I needed an appetite inducer! :D I need a suppressant!

Thanks again for your help and support.


Share this post

Link to post
Share on other sites

Hi Everyone,

I'm glad I found this forum. I too am experiencing the same problem and am quite frustrated. My 3 1/2 year old will only eat plain pasta/noodles, yogurt, sometimes applesauce & grapes, a few select dry cereal/cookies/crackers/chips, OJ, and chocolate milk/pediasure, occasionally some McDonald's fries. He won't touch anything else and is getting tired of his normal foods and is recently eating very little. I'm at my wits end trying to give him food that's appealing to him (which is nothing).

He was diagnosed in Feb through biopsy and quickly gain 2-3 lbs being gluten-free but now I feel like he's slipping a bit. I'd appreciate any advise.

Marianne, if your son goes on the appetite inducing medication, I'd like to know how that works for you.



Share this post

Link to post
Share on other sites

It has been nice to see others with the same issues. Makes us feel like we're not alone.

I have a 3 1/2 year old boy that has been gluten-free for 5 months now. Has gained almost 5 lbs.

My son is also a "picky eater". Always has been, part personality, part physical. I know now that he didn't want to eat much before and only liked to eat a lot of a few things because of the gluten-sensitivity. Hindsight is great isn't it!

He now will only ask for the same things every day, "Pizza Chips" (which is corn tortilla chips with gluten-free pizza sauce, mozzarella cheese and gluten-free Hormel pepperoni's) or "Chips 'N Cheese" which is our version of grilled cheese, basically nachos. He is also drinking Boost, which is a nutritinal supplement and that's what I think has helped him put on weight.

As long as he's growing...I don't care if he eats the same things over and over! My battle is with fruits and veggies...never has liked them...

Still too skinny for his size... 39" tall and only 33 lbs.


Share this post

Link to post
Share on other sites
Still too skinny for his size... 39" tall and only 33 lbs.

3boyzmom, I know what you mean. I worry about my daughter's weight, too. She will be 5 in just about two weeks and she is 43 inches tall, but only 35lbs. I am hoping that she grows now that she is gluten-free.

Marianne, You said that your son had food allergy testing. Was that the Rast blood test or skin test? Because those won't tell you if he has a food intolerance. Food allergies are an IgE mediated response and usually affects the skin and respiratory system, but a food intolerance is IgA (and IgG, too??) mediated and affects the intestinal tract. Most don't have a specific test, at least if they do I have not been told about them. Doctors don't seem to know how to test for them. Enterolab does offer some testing for intolerance to milk, egg, and yeast. Most people just eliminate the food for at least 2-3 weeks and then if symptoms improve while the food is eliminated and return once the food is introduced back into the diet, then it is conscidered an intolerance and the food is avoided. Since your son is not eating much, then it would be hard to tell if anything was bothering him, but if a food bothers him, then he may just instinctively avoid it. The suggestion of baby food is a good one, but I wouldn't call it "baby" food if I were you. If your son is almost three he will not want to be eating "baby" food. It might also help to make some fruit smoothies, if he is used to drinking his meals.

God bless,



Share this post

Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Forum Statistics

    • Total Topics
    • Total Posts
  • Topics

  • Posts

    • What Are Your Brands & Flavors Of Gluten Free Ice Cream ?
      I don't worry about the same facility, but I check if it is on the same lines. I think it is usually a good idea to find out if things are made on shared lines. And if they are made on the same line as gluten-containing products how good is the cleaning in between? Chocolate is a good example of this. For example, I contacted a company whose chocolate I used to eat before being diagnosed and they outright told me they are not good about cleaning on shared lines and it is not safe for allergies or celiac. I have had this response from other companies as well (especially when it comes to chocolate sadly). I think this is why Godiva is not safe. Its just a good idea to check.
    • TRUSTING OTHERS about GLUTEN! how do you know if someone has used gluten free flour?
      Wow you all have more balls than I do. I've been gluten free since 2007 and I'm still afraid of offending people. It gives me lots of troubles, really. I'm more like rockstarkate I guess...the "people pleasing" aspect.  I love how you all just have the flat out rule I Will Not Eat It Unless I or a Celiac Made it. (Or a trusted family member).  I still simper and grovel and cringe and apologetically turn things away.  People still put dishes in my face and say "This should be gluten free..."  and I have to awkwardly not eat it and then seem rude.  I've done the whole...checking the bottles thing too.  I do try to dart out of things more though now. I volunteered in other countries in recent years and I felt as vulnerable as all heck, having to rely on them to make food, as well as definitely feeling like I offended people who didn't get it at all. I was feeling brave when I signed up for those but after the second time I was like okay, the fear/anxiety/stress about the food is too much. I managed to dodge out of getting sick, and for the most part people humored me...but it was pretty difficult because I don't like offending people, especially other cultures, with them trying to be nice and make food for me...pretty sure I did offend people as well as annoy many others. OP, you are not alone. For sure I have trust issues eating other people's food. They say they know but I do truly doubt they are as strict as I would be.   A few times I will still brave eating some little mozzarella balls with vinegar...though, I did still look at the labels.  Someone had to give me a persuasive speech and show me all ingredients (just salt and pepper) after making me chicken wings once. I do tell people, basically, NOT to make me stuff. But they still do.  Another time a friend had worked really hard and was having a terrible time and offered me a burger patty when I arrived, assuring me it was gluten free. I knew I hadn't been there to watch whether she used the "bun spatula" on it or not...but I just didn't feel like giving her a fight about it since she was having a rough time and hosts like to feel they are feeding guests, blah blah. So I ate it. And got glutened. And wailed and gnashed my teeth haha. Lesson learned.  I need to stick to my guns more. I just always feel like I'm being too "difficult" as it is. But...sigh.  It is refreshing for me to read these empowered no BS responses though. You all remind me of where I'm coming from, and not that I'm just being some kind of high maintenance, rude, crazy person. You'd think after, what, nine years now, I wouldn't still be bothered by it...
    • Mashed potato soup during healing
      I was on pretty much a liquid diet for 8 months waiting for my nausea to go away completely. I mostly had mashed potato soup, 1/2 fat ice cream (mostly whey, not milk), chocolate drink (no added milk) and gummy vitamins. The soup tasted yummy and I'm still alive so I figured I'd share it for people not feeling well in the beginning. I've been noticing people with alot of trouble keeping food down in recent posts. I couldn't have milk or eggs, but the cheese in the recipe didn't bother me at all. Notice the lack of spices. Makes it easy on the stomach.   Mashed potato soup: Boiled yukon gold potatoes (5lb bag) 1 package cauliflower, steamed 4-6 slices of Land O'Lakes white American cheese 4 tablespoons butter salt 16 cups homemade chicken broth, salted   Chop steamed cauliflower into teensy bits (pureed is better). Put in mixer with butter, cheese and a potato or two. Blend while slowly adding potatoes. Keep whipping for a few minutes to insure the cauliflower and potatoes are not lumpy at all. Salt to taste.   Combine 1/2 cup mashed potatoes to 1 cup salted chicken broth. Mix with spoon until mashed potatoes have completely dissolved. Enjoy. Individual servings can be frozen.   Homemade chicken broth: makes 8 - 10 cups of broth   1 organic chicken (regular chickens are too big) 1 stalk celery 1 carrot 1 large bay leaf 1/2 package fresh thyme from the  herb section of the vegetables area   Put all ingredients in pressure cooker along with 1.5 liters water. Bring to pressure. Cook for 35 minutes. Separate broth from solids. Separate broth from fat. Add ridiculous quantities of salt until it tastes like soup. Sorry I use a salt grinder so I don't have precise salt quantities.    
    • I have kidney stones...spent last night at the ER
      Hey ArtG, I saw the urologist today...unfortunately for me they can still see my stones on an xray.  Sigh.  The largest is 3x6 in my right kidney.  He does not believe I can pass this one on my own.   All of my bloodwork came back fine.  Nothing alarming in the urinalysis either. His recommendations...keep drinking tons of water.  I had 4.2 liters of urine output when I tested.  Add in a fish oil supplement.  Decrease sodium intake.  Limit meat to 10 ounces per day.  Increase dietary calcium.   Work at lowering oxalate urinary oxalate was 45.  They want it between 20 and 40.  But he gets people that are over 100 so mine is not all that high. 3 options...1. watch and wait.  Recheck in a few months to see if there is stone growth.  2. Shock wave lithotripsy.  3. Let it come out when it decides to and see what happens. I just don't know.  I hate the idea of being put under as they would do for the shock wave thing.  I've had too many surgeries already.  It scares me to be honest.  I also don't want to deal with another episode.   I don't know what I'll do.  We've got a vacation planned at the end of the month and I just want to go and enjoy that.  Not worry about kidney stones. I'm sorry to hear about your upcoming really is always something!
    • celiac disease is psychosomatic
      I know what food products are. Probiotics was a recent example I saw on the news about things labeled gluten free that were not gluten free. So, supplement labels in addition to food labels.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it. Thank You,
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
    • ukuleleerika

      Hello! I am new to this Celiac website... Is there anyone out there with Celiac AND extensive food allergies? My allergies include shellfish, dairy, eggs, cantaloupe, kiwi, mango, nuts, oranges, red dye, and more I can't think of. I went to the allergist about a year ago to see why I wasn't feeling well, and once everything was eliminated, I still didn't feel well. We did more testing to find out I had celiac as well as allergies to cattle as well as rye grass (I live on a farm basically). This was back in January 2016. I recently had my endoscopy with the gastroenterologist a week ago. I have no idea what to do or what to eat... So fish and potatoes for me!
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
    • Most Online

    Newest Member