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Blood Test Negative...

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Posted 27 August 2014 - 06:26 PM

Got results of my celiac blood test and they were negative. 

Also today I had the endo/colonoscopy (trying to rule out cause of severe anemia). 

Nothing abnormal found,and biopsy  was taken. Anyone know how long that takes to come back? 


I'm frustrated that there was nothing abnormal found (yet thankful no cancer, ulcers,etc) but I really would like to know why I was so anemic. It would just be nice to know if I need to be completely gluten free. 

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Posted 27 August 2014 - 07:16 PM

I'm sorry that you still don't know what's going on. If all testing is negative or conclusive, there's always the option of trying the diet 100% for 6 months and seeing how your iron levels do and seeing what happens with any other symptoms that you have.

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Posted 28 August 2014 - 01:49 AM

When you say you want to know if you need to be completely gluten free does that mean you have been gluten light? If so that will cause a false negative on testing. After all celiac related testing is done a trial of a strict gluten free diet would be a good idea. If your issues resolve you have your answer no matter what the test results have shown.

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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)

celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom

Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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