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The Star Ledger, Newark, Nj

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Posted 19 January 2006 - 03:11 AM

Foods containing gluten is written about in their article. pages 27 and 33
quotes that there are 1 in 100 with celiac disease and how gluten is hidden in foods
new labeling isn't the total answer as there's no mention of barley, rye or oat

Quotes Dr. Green from Columbia and shows resources and internet sites to get more info
Not bad for an opening article on celiac disease
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Husband has Celiac Disease and
Husband misdiagnosed for 27 yrs -
The misdiagnosis was: IBS or colitis
Mis-diagnosed from 1977 to 2003 by various gastros including one of the largest,
most prestigious medical groups in northern NJ which constantly advertises themselves as
being the "best." This GI told him it was "all in his head."
Serious Depressive state ensued
Finally Diagnosed with celiac disease in 2003
Other food sensitivities: almost all fruits, vegetables, spices, eggs, nuts, yeast, fried foods, roughage, soy.
Needs to gain back at least 25 lbs. of the 40 lbs pounds he lost - lost a great amout of body fat and muscle
Developed neuropathy in 2005
Now has lymphadema 2006
It is my opinion that his subsequent disorders could have been avoided had he been diagnosed sooner by any of the dozen or so doctors he saw between 1977 to 2003

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Posted 19 January 2006 - 04:24 AM

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Posted 19 January 2006 - 04:43 AM

It's not from the same paper, but I think it may say basically the same thing.......maybe.... anyway, I found this this morning and thought it could be what she (I am assuming) was talking about since a lot of the time the same articles get into different papers.

oh here.
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Gluten free since 5/06
mommy to Annika(3) gluten free since 5/04 and Kathryn (5) gluten free since 10/05



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Posted 19 January 2006 - 09:30 AM

the biggest problem i run in to when reading labels are the terms "spices" and "natural flavorings" how likely is it that oats, barley or rye are used in these ingredients? if it is usually wheat in theses ingredients, the new laws would help tremendously. i'm wondering why it is still so hard to get a diagnosis if people are becoming more and more aware of celiac and it's prevalence?
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15 year old twins with celiac, diagnosed dec. 2005
11 year old daughter with celiac diagnosed dec 2005
17 year old son with celiac gene

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