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Ibs Vs. Celiac


Kayleen007

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Kayleen007 Rookie

Okay..maybe I'm just too spazzed into trying to find out what is really wrong with me. I'm just so damn tired of being sick. But I was diagnosed with IBS about 10 yrs ago (also saw on my medical records that I could have Inflammatory Bowel Disease...anyone know the difference in that and IBS?) Anyway..what exactly are the differences, symptom-wise between IBS and Celiac? As I mentioned in a previous post, I can't afford to see a doctor to be tested for Celiac..can't afford that other one, the one that tests your stool by mail, the name escapes me. So..is there anything I should look for that would make me think it might be one or the other? I am on the gluten-free diet. Just started that about a week and a half ago. But it's not helping yet (and I know that can take a long time), and EVERYTHING I eat right now is making my intestines go crazy...so I can't narrow it down by foods. Any other suggestions?? :(


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Guest jhmom

I am not sure what Inflammatory Bowel disease is (I assume it's inflammation ;):P ) but I DO know that with IBS there are NO physical signs of it (no inflammation, nothing to point to and say "that's your problem").

I knew I did not have IBS because I dropped 40lbs in 2 months, that usually is NOT a sign of IBS and something inside me was just not satisfied with that dx.

Since money is an issue for you stay on the diet, but give it a few months to see an improvement. Some docs out there do accept an improvement on the gluten-free diet as a way of testing and will not give you a hard time about it and if they do.... oh well, it's your body and your health!

You take care!

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    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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