New And Soooo Overwhelmed
Posted 23 May 2004 - 03:24 PM
This is my first post. I was told today that I have gluton intolerance/Celiac. Sorry if I don't know exactly how to say all of this. I'm just a bit overwhelmed. I have not had a biopsy, but my bloodwork came back positive. I have a very long family history of autoimmune disorders. I've also been diagnosed with Fibromyalgia, probable Lupus, Epilepsy, and dermatitis (along with about a zillion gastrointestinal issues). When my bloodwork came back positive, my doctor decided to go ahead and put me on the Celiac diet. I look at it all, and it just seems like so much. How do you all make sure you don't eat gluton? How do you know what medicines it is in? Does soap and toothpaste matter? I'm sorry if these questions sound silly...I just don't have a clue where to start. My doctor is getting me a packet of information together, but he also told me to look on-line at these type sites. thank you for reading and helping. -Jenny
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Posted 23 May 2004 - 07:28 PM
The Gluten Free diet is something to get use to and it seems a bit overwhleming at first but it does get easier especially when you see / feel an improvement in your health! You hang in there and feel free to ask questions, this is a great place for support and encouragement!
I too may have Lupus (currently being tested and treated) and seem to have more GI probs than most people but I'm hanging in there and hoping I will feel 100% better soon.
Here are some helpful links that will answer some of your questions below and help you gain more knowledge of this disease:
Gluten Free Drugs
gluten-free Fiood List
Safe & Forbidden Food & Ingredient Lists for Gluten-Free Diets
Mainstream Products that are Gluten-Free
Research on Diseases and Disorders Associated with Celiac Disease
Take care and God Bless
Posted 24 May 2004 - 07:08 AM
Posted 24 May 2004 - 08:16 AM
Posted 24 May 2004 - 11:07 AM
Posted 09 June 2004 - 06:16 AM
Make a list of all of the products in your house that do not clearly contain wheat and call the manufacturer to find out if it is safe. Go through and mark every bottle or box "gluten-free" or "Not gluten-free" based on the label or phone call. Personally, I think calling and asking is the easiest way to go. Get a list of the unexpected items to look out for and learn the trigger words like natural flavorings etc.
The diet is labor intensive at first, but soon you will have clearly marked gluten-free items throughout your house and then you will not feel so overwhelmed.
CSA/USA and Clan Thompson also sell product lists that you may find helpful.
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