5 replies to this topic

[steveindenver]

Is this something normal for Celiacs? I'm still somewhat of a newbie. I go to bed exhausted. Get tired late in the day usually and I sleep throughout the night, but wake up exhausted. I haven't had a good night's sleep in two weeks at least. Anyone have thoughts?

[Matilda]

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[nursestherapies]

I've read that tiredness is the most common symptom of celiac disease.

The feeling of exhaustion was one of the main things that made me originally think there was something wrong with me, along with diarrhoea and weight loss. There were other things that I didn't even think of as symptoms until they disappeared when I changed my diet and came back when I glutened myself.

The tiredness though! It took a while to get really better, maybe a few months even, but when I had my first major glutening I really recognised it again. I explained it to my DH as waking up feeling as though I'd spent the night working down a coal-mine, with physical exhaustion and mental must-get-some-sleep immediately, even after going to bed early and actually getting a good night's sleep. I just couldn't remember how I managed to function before going gluten-free.

Now, most days I get dragged out of bed by the cat wanting feeding at the crack of dawn, (not saying I leap out of bed joyfully or anything) but once I'm up I start thinking, 'Ooh goody, I'm doing such-and-such today... It's beautiful outside... The birds are tweeting again..." I walk to work with an absolutely beautiful view of a mountain with the sun behind it and I often get that feeling of my heart swelling with happiness at how great it is to be up and about and making the most of the day when I look at it. I don't think I used to notice it at all hardly. The exhaustion took away all the joyous feelings. I don't even think I was depressed - not anything, just tired.

Thanks so much for that description. I had been on a cleansing diet of fruit, vegetables and rice for a week and felt much better. Then I ordered a hamburger without a bun and fries two days ago, and for the past two days feel just awful: fatigue, muscle pain, indigestion. Your post explains it well. I am still learning and will be really careful about restaurant grills and frying oil from now on. Karen
When I'm feeling well I might feel a little achy and tired after a hard day a work. If I start feeling that way after a few hours I start thinking about what I ate the day before. If I feel that way as soon as I get up I know I've gone wrong somewhere.

So be hopeful, I think it will get better, although it may take awhile.

Best wishes,
Matilda

[flagbabyds]

sleep apnea!
get tested for it, go to a sleep clinic and get a sleep study, that is how i felt so much through my childhood, and in 8th gradi i was finally diagnosed w/ sleep apnea. my CPAP helped a lot, but having jaw surgery really helped a lot!
now i sleep through the night, and can stay awake in chem class, where in middle school, i could baraly stay awake in algebra.
it can also be a symptom of celiac, but i would say go to a sleep clinic before it gets any more worse.

[taz sharratt]

Is this something normal for Celiacs? I'm still somewhat of a newbie. I go to bed exhausted. Get tired late in the day usually and I sleep throughout the night, but wake up exhausted. I haven't had a good night's sleep in two weeks at least. Anyone have thoughts?

im sooooo tired as well, before i knew what was wring with me i trained really hard bur now i find it hard just to get out of bed and the boys to sxool, ive been cheating i have to admit ive taken the odd pro plus in the morning just to wake me up, im struggling, im sure that once i get my intake of carbs sorted out ill adjust.

[BRUMI1968]

This was certainly my biggest symptom when I got tested two weeks ago; phenomenal daytime sleepiness. I had studied it and saw all the sleep problems that it could be; and I do seem to have a stuffy nose for the past two years. Anyway, I put mine down to anemia. I am on the mend there, and seem to be doing better staying awake the whole day and not wanting to stay in bed all day. I do still sleep late - always have.

If your insurance covers sleep clinic stuff, go for it...how fun to know. But I'm just worried about the cost of such things for me, so I'm going to hold out and see how the vitamin/mineral thing will work out.

good luck.