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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

I Go To Sleep, And Sleep Through The Night But Wake Up Tired Still...question:
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6 posts in this topic

Is this something normal for Celiacs? I'm still somewhat of a newbie. I go to bed exhausted. Get tired late in the day usually and I sleep throughout the night, but wake up exhausted. I haven't had a good night's sleep in two weeks at least. Anyone have thoughts?

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I've read that tiredness is the most common symptom of celiac disease.

The feeling of exhaustion was one of the main things that made me originally think there was something wrong with me, along with diarrhoea and weight loss. There were other things that I didn't even think of as symptoms until they disappeared when I changed my diet and came back when I glutened myself.

The tiredness though! It took a while to get really better, maybe a few months even, but when I had my first major glutening I really recognised it again. I explained it to my DH as waking up feeling as though I'd spent the night working down a coal-mine, with physical exhaustion and mental must-get-some-sleep immediately, even after going to bed early and actually getting a good night's sleep. I just couldn't remember how I managed to function before going gluten-free.

Now, most days I get dragged out of bed by the cat wanting feeding at the crack of dawn, (not saying I leap out of bed joyfully or anything) but once I'm up I start thinking, 'Ooh goody, I'm doing such-and-such today... It's beautiful outside... The birds are tweeting again..." I walk to work with an absolutely beautiful view of a mountain with the sun behind it and I often get that feeling of my heart swelling with happiness at how great it is to be up and about and making the most of the day when I look at it. I don't think I used to notice it at all hardly. The exhaustion took away all the joyous feelings. I don't even think I was depressed - not anything, just tired.

Thanks so much for that description. I had been on a cleansing diet of fruit, vegetables and rice for a week and felt much better. Then I ordered a hamburger without a bun and fries two days ago, and for the past two days feel just awful: fatigue, muscle pain, indigestion. Your post explains it well. I am still learning and will be really careful about restaurant grills and frying oil from now on. Karen

When I'm feeling well I might feel a little achy and tired after a hard day a work. If I start feeling that way after a few hours I start thinking about what I ate the day before. If I feel that way as soon as I get up I know I've gone wrong somewhere.

So be hopeful, I think it will get better, although it may take awhile.

Best wishes,

Matilda

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sleep apnea!

get tested for it, go to a sleep clinic and get a sleep study, that is how i felt so much through my childhood, and in 8th gradi i was finally diagnosed w/ sleep apnea. my CPAP helped a lot, but having jaw surgery really helped a lot!

now i sleep through the night, and can stay awake in chem class, where in middle school, i could baraly stay awake in algebra.

it can also be a symptom of celiac, but i would say go to a sleep clinic before it gets any more worse.

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Is this something normal for Celiacs? I'm still somewhat of a newbie. I go to bed exhausted. Get tired late in the day usually and I sleep throughout the night, but wake up exhausted. I haven't had a good night's sleep in two weeks at least. Anyone have thoughts?

im sooooo tired as well, before i knew what was wring with me i trained really hard bur now i find it hard just to get out of bed and the boys to sxool, ive been cheating i have to admit ive taken the odd pro plus in the morning just to wake me up, im struggling, im sure that once i get my intake of carbs sorted out ill adjust.

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This was certainly my biggest symptom when I got tested two weeks ago; phenomenal daytime sleepiness. I had studied it and saw all the sleep problems that it could be; and I do seem to have a stuffy nose for the past two years. Anyway, I put mine down to anemia. I am on the mend there, and seem to be doing better staying awake the whole day and not wanting to stay in bed all day. I do still sleep late - always have.

If your insurance covers sleep clinic stuff, go for it...how fun to know. But I'm just worried about the cost of such things for me, so I'm going to hold out and see how the vitamin/mineral thing will work out.

good luck.

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    • Week late aftershock!?
      I had a similar problem, I was glutened after a meal out at the beginning of April and am still experiencing problems, obviously not as bad now, but bad enough.  I have also become intolerant to  xanthan gum since, which cuts down the foods I can eat even more. I'm already intolerant to dairy, soya, and a whole lot of other stuff.  Cyclinglady is right about the auto-immune disorders, and I've noticed I have similar problems to her.  I too, eat easy to digest foods until the glutening symptoms pass. The sinus infection might also be a reaction to the glutening, it effects people in different ways.
    • celiac disease is psychosomatic
      Thanks, I'll check out the information in the link. Do you remember how long you were on a gluten-free diet before your vertigo disappeared? I have been on the diet for 2 years, but I might be glutened from time to time since I am not an expert food label reader. My dizziness still persists.
    • celiac disease is psychosomatic
      Thank you, Arlene, for making tea come out my nose!  I should have known not to read your post while drinking......
    • celiac disease is psychosomatic
      sella.........in 11 years gluten free, I have never been glutened by natural flavorings. I know some of the older literature on Celiac says it may contain gluten but they rarely do.  For more info, I have put in a link that briefly explains how it works with labeling for those.  The link is dated 2013 but I have yet to read any updates that list any pertinent changes to this.  It will take a few years or longer for a person with Celiac to really learn how to read a label to the point where they feel comfortable with eating that food but I guarantee you'll be a food expert! http://www.glutenfreeliving.com/gluten-free-foods/gluten-free-nutrition/gluten-questions-and-answers/natural-flavorings/ As to your other question, yes, Celiac most certainly causes balance and neuro issues.  I suffered from extreme vertigo for years, which disappeared after being on the gluten-free diet for a while.  I had no idea it was connected to celiac disease but it completely disappeared on the diet.  I also never had anxiety issues but now, on the rare occasion I sustain a hit, the anxiety is bad.  It disappears after about a week.  This is well know to Celiac's but many doctors still don't get all the symptoms we suffer from, that are related to gluten ingestion.  Frustrating!
    • Can treatment for Giardia reverse active Celiac
      SugarCube, I saw your other posting today.  I can not believe that I missed your original posting!  Maybe I was doing something super fun that week (oh, my parents were visiting!).   Your celiac blood panel was positive and you had intestinal damage that was caused by both celiac disease and Giardia?  After treating the Giardia, your CD resolved or went into remission?  Are you consuming a diet containing gluten still?  Have you had a follow-up biopsy?   I read your link to the study, but that feature just one patient (a child).  Have you found any other larger studies?  Inquiring minds want to know!       
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