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New Triggers


Shawn

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Shawn Apprentice

Hi,

After I was off of gluten for about 3 weeks, my DH completely vanished. But now that I've been off for about 2 and 1/2 months, there seem to be additional triggers, to some of the few things I can actually eat, including citrus and - gasp - chocolate (gluten-free). Is it pretty common for people to get extremely sensitve once off gluten, and develop additional triggers?

Or, are these food types more prone to "leaking" through the gut and causing the reaction?

Not sure what to do. I guess I can't eat my gluten-free chocolate chip cookies anymore. :(

Has anybody had this experience?

Thank you,

Shawn


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Guest cassidy

I know that I also developed other foods that I couldn't eat. Chocolate is one of the bad ones for me as well. I find that I can have a little chocolate if I don't have anything else that bothers me. It really seems to be the quantity that makes the difference. I can't have citrus, strawberries, pineapple, kiwi, nightshades either.

You might try eliminating all those foods that are bothering you and then trying the occasional cookie if you really want it.

Nooner Newbie

I found out I was gluten intolerant through an elimination diet, which also showed me I couldn't tolerate poultry, broccoli, or cabbage. About a month later, I developed an intolerance to soy. About 2 months after that I developed an intolerance to potatoes and peppers. I just had a reaction to gluten free mustard (mustard is in the same family as broccoli/cabbage). Now I think I'm reacting to something else, but I can't figure out what yet.

I'm only 4 months into being gluten free, so I don't know if I'm going to continue developing intolerances or not. I also don't know if these "secondary" intolerances will go away with time. I haven't really heard of anyone getting over an intolerance, except for a few people with dairy.

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      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
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      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
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      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
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