Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Venting About The Weight Issue


Guest redkms

Recommended Posts

Guest redkms

Hi - I am new to the gluten-free diet (about 1 1/2 months) and have noticed the same thing. Suddenly my scale has advanced drastically, and seems to be on the rise every time I weigh. I have noticed that I am also hungy all of the time and nothing seems to satisfy that hunger. I never had to worry about my weight before and feel I am about to tread in a teritory I have never been before. As I have been reading the labels and going to Whole Foods for gluten-free products, I've noticed that the calorie content and fat content can be pretty high in some of these food products - it is almost shocking. For me, I am battling whether my joint problems are from celiac's disease or Rheumatoid Arthritis, as I have tested positive for both. The diet is critical right now (don't want the biopsy), because I would rather have a yeast allergy than RA. It is getting a little depressing with the weight gain, combined w/the prednisone (currently down to 7 mg per day, start 6mg on Monday).

I went through a sweet stage and then a Captain Crunch (actually 4 boxes in one week - don't have any problems with oats). Now, I am at the panic stage and trying to forgoe any cravings I have because I don't like the weight gain or the "bloated" look or feel. I've lost my waist and all of my weight seems to be around the middle and not elsewhere.

So, I need some suggestions for some healthy snack food (other than raisins and carrots), and maybe some low-carb ones as well - I want to start watching my fat and sugar intake as well.

Thanks for listening and thanks for helping, anyone who answers. Does anyone also know of any support groups in Houston, Texas?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



burdee Enthusiast

Hi Redkms:

If you're worried about weight gain, as long as you're gluten-free, don't focus on the calories or fat grams, but focus on how you eat and whether you choose foods which actually satisfy your hunger or just make you hungrier. Is your 'hunger' true physiological hunger or are you eating to cope with stress, boredom, sadness, loneliness or frustration? If you DO wait for true physiological hunger before eating, do you choose foods which satisfy that hunger? Or do you choose foods which TASTE good, but just leave you hungrier or craving more? Do you STOP eating when you are physiologically satisfied, or when your plate or even the serving dish is empty?

After learning to control my weight by only eating when hungry, foods which satisfied that hunger and STOPPING when satisfied, before STUFFED, I experienced more and more excruciatingly painful (undiagnosed) celiac symptoms. After I learned those symptoms were celiac and went gluten free (and later had to avoid casein and soy which also gave me symptoms), I started gaining a pound a month. I just rationalized that I needed to focus on getting well and not worry about the weight. When I had gained 5 pounds, I decided to reexamine my eating habits. :o I WAS often eating before hunger and almost ALWAYS eating PAST satisfaction. :blink:

True, some gluten-free breads are higher in calories than regular gluten containing breads, but you can use open faced sandwiches and limit the amounts. Ialso found some pretty low calorie/high fiber (which is important if constipation is one of your celiac symptoms) gluten-free breads through Ener-G foods. Also corn tortillas for tacos or wrap sandwiches are pretty low calorie. However, I try to include a LOT of naturally gluten free foods, like fruits, vegies, meats, nuts, etc. in my gluten/dairy/soy free diet, rather than focussing on lotsa gluten-free breads, pasta and cookies! ;)

From my experience with 'low-fat', if I don't eat adequate fat at every meal, I can feel physically full (actually stuffed) in my stomach with low fat fare, but STILL crave something more. I've heard it takes 15-20 minutes for our bodies to register 'satisfied' after we begin eating. However, if I eat fats with the other proteins, fiber and carbs in my meal, I feel progressively satisfied a LOT sooner. If the 'low-fat' approach really worked, our nation wouldn't have become progressively more overweight since the low-fat craze appeared. :lol:

You can eat any gluten-free foods you like between the boundaries of hunger and satisfaction and still lose weight, if you obey those body cues. Good luck! ;)

BURDEE

Alexolua Explorer

Hiya redkms.

I really don't have any helpful advice I could add to what Burdee has already said. But, did want to ask if you know for sure Captain Crunch is gluten-free? I just spent awhile looking for it on yahoo, and couldn't find any sites saying so. Now that doesn't mean it isn't gluten-free, just wanted to ask to make sure. Like did ya call the company? Think I'd like to eat it too! lol

I've lost my waist and all of my weight seems to be around the middle and not elsewhere.

It's weird, because I've actually lost weight.. but seems like my middle has gotten bigger too! That's nutty.

But you aren't alone in the craving food. I normally get that way later in the evening usually. And I've been wanting food, even when my tummy was full.. and saying no more. Oh well.. fun.

An idea did occur to me. Have you been drinking enough water? Sometimes if you aren't, your body will ask for food, when all it really needs is more fluids.

Good luck.

Guest redkms

Hi Alexolua:

I didn't call the company about Captain Crunch, just read the ingredients on the back of the box. I have heard that it is gluten free and then I heard that the company couldn't say that the product wasn't run on the same lines at their "wheat" products. I have not had ANY reaction to it, other than wanting more. So far, I have given it up for 5 days (and that is pretty spectacular for me). I did find this stuff called Gorilla Munch at Whole Foods by EnviroKids. It is not quite the same flavor, but fairly close. It is a little crunchier and doesn't get soggy and is a decent substitute. So, I tried that this week. It is a little expensive, but until I can wean myself off of it, the cost is worth it to know I am being safe. Envirokids has several cereals that are gluten free, one even very close to the flavor of Cocoa Puffs....it is good too.

Thanks for your response. I guess I can kiss my waist goodbye until I can get my eating under control, the prednisone also increases your appetitie, so I have a lot of controlling to do.

bigapplekathleen Contributor

HI there,

Watch out for Gorilla Munch. There is a high incidence of cross-contamination with their products. It makes me SOooooo sick.

I read your post with great interest and empathy. I have been on a gluten-free diet for 13 months now. For the first month I was starving all the time, despite eating more than I felt I had ever eaten before. After about a month and a half, that feeling went away. I have radically changed my diet since that time. I don't really eat many grains at all (not really even rice!). I eat mostly meats, fish, veggies and fruit. Because I am eating so much protein, my gut healed faster than expected, I am RARELY hungry, and I have lost about 42 pounds in a year. I am now a size 8 (down from 14). When I eat gluten-free grains, I try to eat less than I would have before the gluten-free diet. For example, instead of eating an entire gluten-free english muffin with jam, I eat HALF of the muffin and instead fill up on egg whites, veggies and fruit.

I was also worried when I saw you were eating Captain Crunch. I have never seen that on a gluten-free food list. The other concern I would have for you is that cereal is nearly ALL sugar. The more you eat, the more hungry you will become. It's a vicious cycle.

The prednisone is probably a HUGE culprit in your hunger, though. The few times that i took that in my life, I was plagued by constant munchies and a weight gain of 1 pound a day !!!!

I wish you the best as you adapt to the gluten-free diet. For me, it's been a life-changing event. I am thankful every day for the doctor who finally said "I think you are allergic to wheat." Of course, it wasn't an "allergy," but she was on the right track and got me to the doctors who could help.

Best wishes,

kat

tarnalberry Community Regular

You might consider taking a look at what TYPE of food you're eating. Not only do a lot of packaged gluten-free foods have a lot of fat, other ones are high in simple carbs. This can spike your insulin, then drop your blood sugar, and make you hungry again. Getting plenty of protein and fat with your carbs will help make you feel more full for longer on less food. Of course, exercise is important too! :-)

  • 4 months later...
mrsfiles Newbie

HELP PLEASE!! I was diagnosed with Celiac Disease by biopsy in April 2002~ a month to the day after my wedding ~God Bless my husband... I have since gone from a size 6 to a 16!!! My stomach feels better since going on the gluten-free diet but I am extremely uncomfortable with my weight gain. I admit in the beginning I ate a lot of rice and potatoes because those were safe, but soon learned how to adjust to gluten-free ways and eat very little of them, as well as bread (I'm a bit lazy when it comes to making it. I can't handle the store's gluten-free selection-I find it to be gross).

My GI Doctor has been no help as he just says I look healthy now. Easy for him to say, I'M the one with no waist now and weigh what I did when I was 8 months pregnant with my son 21 years ago!! I also exercise at a gym 3 days a week, for 1 1/2 hours a day, and have been for the past 2 years. I continue to GAIN not LOSE. I am so frustrated that I am ready to go back to eating gluten and deal with the consequences! I am so overtired all the time and have no energy. I had more before I was diagnosed. What can I do??? I need to lose weight. I had a physical recently for work and the Dr. told me according to my BMI, I am overweight and on the edge of obesity. My Dr. has checked my thyroid, glucose, hormones, etc. Can't find anything. Why is my watching what I eat (I've cut down on sugar and carbs) and exercising regualrly doing exactly the opposite of what it should be doing? Does anyone else have this problem?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - tiffanygosci replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      1

      Celiac support is hard to find

    2. - trents replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      1

      Help understand results

    3. - mamaof7 posted a topic in Parents, Friends and Loved Ones of Celiacs
      1

      Help understand results

    4. - Dizzyma replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Newly diagnosed mam to coeliac 11 year old

    5. - tiffanygosci posted a topic in Introduce Yourself / Share Stuff
      1

      Celiac support is hard to find

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,955
    • Most Online (within 30 mins)
      7,748

    JodyBledsoe
    Newest Member
    JodyBledsoe
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • tiffanygosci
      EDIT: I did find a monthly Zoom meeting for Celiacs through the Celiac Disease Foundation, so I'll be able to talk with some other people on January 15. And I also found a Celiac Living podcast on Spotify made by a celiac. I feel a little bit better now and I am still hoping I will find some more personal connections in my area.
    • trents
      Welcome to the celiac.com community, @mamaof7! It means for the one celiac disease antibody test that was ordered, she tested negative. However, other tests should have been ordered, especially for someone so young who would have an immature immune system where there would be a high probability of being IGA deficient.  The one test that was ordered was an IGA-based antibody test. It is not the only IGA antibody test for celiac disease that can be run. The most common one ordered by physicians is the TTG-IGA. Whenever IGA antibody tests are ordered, a "total IGA" test should be included to check for IGA deficiency. In the case of IGA deficiency, all other IGA tests results will be inaccurate. There is another category of celiac disease antibody tests that can be used in the case of IGA deficiency. They are known as IGG tests. I will attach an article that gives an overview of celiac disease antibody tests. All this to say, I would not trust the results of the testing you have had done and I would not rule out your daughter having celiac disease. I would seek further testing at some point but it would require your daughter to have been eating normal amounts of gluten for weeks/months in order for the testing to be valid. It is also possible she does not have celiac disease (aka, "gluten intolerance") but that she has NCGS (Non Celiac Gluten Sensitivity, or just "gluten sensitivity" for short) which is more common. The difference is that celiac disease is an autoimmune disorder that damages the lining of the small bowel whereas NCGS does not autoimmune in nature and does not damage the lining of the small bowel, though the two conditions share many of the same symptoms. We have testing to diagnose celiac disease but there are no tests for NCGS. To arrive at a diagnosis of NCGS, celiac disease must first be ruled out. A gluten free diet is the solution to both maladies.   
    • mamaof7
      For reference, daughter is 18 mths old. Was having painful severe constipation with pale stool and blood also bloating (tight extended belly.) Liver and gallbladder are normal. Ultrasound was normal. Dr ordered celiac blood test. We took her off gluten after blood draw. She is sleeping better, no longer bloated and stools are still off color but not painful.    "GLIADIN (DEAMID) AB, IGA FLU Value  0.84 Reference Range: 0.00-4.99 No further celiac disease serology testing to be performed. INTERPRETIVE INFORMATION: Deamidated Gliadin Peptide (DGP) Ab, IgA A positive deamidated gliadin (DGP) IgA antibody result is associated with celiac disease but is not to be used as an initial screening test due to its low specificity and only occasional positivity in celiac disease patients who are negative for tissue transglutaminase (tTG) IgA antibody."   Anyone know what in the world this means. She isn't scheduled to see GI until late April. 
    • Dizzyma
      Hi Trent and Cristiana, thank you so much for taking the time out to reply to me.  My daughters GP requested bloods, they came back as showing a possibility of celiac disease, she advised me to continue feeding gluten as normal and wait on a hospital appointment. When we got that the doctor was quite annoyed that the gp hadn’t advised to go gluten free immediately as she explained that her numbers were so high that celiac disease was fairly evident. That doctor advised to switch to a gluten-free diet immediately which we did but she also got her bloods taken again that day as it made sense to double check considering she was maintaining a normal diet and they came back with a result of 128. The hospital doctor was so confident of celiac disease that she didn’t bother with any further testing. Cristiana, thank you for the information on the coeliac UK site however I am in the Rrpublic of Ireland so I’ll have to try to link in with supports there. I appreciate your replies I guess I’ll figure things as we go I just feel so bad for her, her skin is so sore around her mouth  and it looks bad at an age when looks are becoming important. Also her anxiety is affecting her sleep so I may have to look into some kind of therapy to help as I don’t think I am enough to help. thanks once again, it’s great to be able to reach out xx   
    • tiffanygosci
      I have been feeling so lonely in this celiac disease journey (which I've only been on for over 4 months). I have one friend who is celiac, and she has been a great help to me. I got diagnosed at the beginning of October 2025, so I got hit with all the major food holidays. I think I navigated them well, but I did make a couple mistakes along the way regarding CC. I have been Googling "celiac support groups" for the last couple days and there is nothing in the Northern Illinois area. I might reach out to my GI and dietician, who are through NW Medicine, to see if there are any groups near me. I cannot join any social media groups because I deleted my FB and IG last year and I have no desire to have them back (although I almost made a FB because I'm desperate to connect with more celiacs). I'm glad I have this forum. I am praying God will lead me to more people to relate to. In my opinion, celiac disease is like the only food- related autoimmune disease and it's so isolating. Thanks for walking alongside of me! I'm glad I know how to help my body but it's still not easy to deal with.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.