Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just Got My A.l.c.a.t. Test Results Back And I'm Not Happy


emcmaster

Recommended Posts

emcmaster Collaborator

Hey everyone -

I did the A.L.C.A.T. Comprehensive V test. Here's what came back (I promise, this is going to be LONG)...

Red foods - severe reaction:

broccoli

cane sugar

corn

date

flaxseed

garlic

green pepper

honeydew melon

lemon

lime

lobster

olive

orange foods - moderate reaction:

avocado

basil

beef

buckwheat

cantaloupe

eggplant

fig

herring

hops

lamb

lettuce

mung bean

onion

orange

paprika

salmon

sesame

yellow foods - light reaction:

apricot

asparagus

blackberry

black-eyed pea

blueberry

brussel sprouts

carrot

celery

cherry

chicken

coffee

crab

cucumber

fructose

lentil bean

lima bean

malt

oyster

papaya

pear

pecan

pinto bean

raspberry

red pepper

safflower

string bean

sunflower

tea

vanilla

veal

GOOD GRIEF! I have to say I'm most upset about the corn, cane sugar and garlic. I think this is a leaky gut thing - most of what showed up are things I've been eating a lot of lately (although that just could be coincidence and would then explain why I've felt pretty badly...)

Gluten didn't show up at all, unless you count malt and hops. I had no reaction to wheat, rye, barley or oats... but after talking to the nutritionist, she said that because it's been almost a year since I've consistently eaten them, they might not have shown up but still be a problem. I *know* they are a problem, but I'm questioning it now because they didn't show up...

I guess my big question is... what the heck am I going to eat? I can live very happily on veggies, fruits and proteins... but my veggies and proteins are severely limited.

Also, does anyone know of any good resources for corn-free info? Are people as sensitive to corn, or is there a CC issue with corn?

Thanks for your help!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jayhawkmom Enthusiast

It's only my opinion, but I've heard a LOT of negative things about that particular test, LOTS of false positives and test reactions to foods that are not reacted to. I think your best bet is an elimination diet to see if you TRULY react to any of these foods.

Lots of luck to you!

emcmaster Collaborator

Thanks for your thoughts. I am definitely planning on doing an elimination diet. I figure if I cut them all out and actually feel better, I'll know that at least one of them is making me sick and can add things back one at a time. I guess I figure that at least this gives me a place to start from and know what to cut out...

jerseyangel Proficient

Hi Elizabeth,

I'm sorry the test didn't give you more specific, concrete information. :(

I remember my allergist telling me that these tests result in many positives because when we eat a food, our bodies make antibodies to it. People usually end up doing an elinination diet anyway to weed out the false positives.

emcmaster Collaborator

Thanks, Patti. I hope I didn't completely waste $500. :blink:

tiffjake Enthusiast
Thanks for your thoughts. I am definitely planning on doing an elimination diet. I figure if I cut them all out and actually feel better, I'll know that at least one of them is making me sick and can add things back one at a time. I guess I figure that at least this gives me a place to start from and know what to cut out...

I am so sorry that you are frusterated! I do know how you feel though! I eliminated everything they told me to (well, all of the red and orange foods, but not the yellows, just watched out for those), for a month, and then started re-introducing them.

That is actually how I found out about my Celiac Disease, because when I added wheat back in, my intestines shut down and I ended up in the hospital! But I had been eating wheat up to the time of the test, and you have not, so maybe that is why it didn't show up with your test.

I do know that they said that you have to watch what you tend to eat everyday. Like you said about corn, you eat a lot of it. It might do you good to have a more balanced diet, not having the same foods everyday.

I think the elimination diet is pretty much what you will be doing at this point, but at least you have a starting point now! You know what foods to watch when you re-introduce them. I am sorry that you list is so long...do you eat those "red" foods a lot? My list was much shorter. My red foods were only 3 foods. Cantaloupe, caulifour, and sweet potatoes.

PM me if there is anything I can do to help.

emcmaster Collaborator

Yes, almost all of the red, orange and yellow foods are foods I eat all the time, especially in the last few weeks. That makes me think it's a leaky gut thing, so I'm going to do some research on trying to repair that while I cut these foods out. Thanks for the support!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      15

      My only proof

    2. - Rejoicephd commented on Jefferson Adams's article in Gluten-Free Cooking
      1

      Your Complete Gluten-Free Thanksgiving Plan: Recipes, Tips & Holiday Favorites

    3. - marion wheaton replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

    4. - trents replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,418
    • Most Online (within 30 mins)
      7,748

    kristitullos219
    Newest Member
    kristitullos219
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Mari
      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.