Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just Got My A.l.c.a.t. Test Results Back And I'm Not Happy


emcmaster

Recommended Posts

emcmaster Collaborator

Hey everyone -

I did the A.L.C.A.T. Comprehensive V test. Here's what came back (I promise, this is going to be LONG)...

Red foods - severe reaction:

broccoli

cane sugar

corn

date

flaxseed

garlic

green pepper

honeydew melon

lemon

lime

lobster

olive

orange foods - moderate reaction:

avocado

basil

beef

buckwheat

cantaloupe

eggplant

fig

herring

hops

lamb

lettuce

mung bean

onion

orange

paprika

salmon

sesame

yellow foods - light reaction:

apricot

asparagus

blackberry

black-eyed pea

blueberry

brussel sprouts

carrot

celery

cherry

chicken

coffee

crab

cucumber

fructose

lentil bean

lima bean

malt

oyster

papaya

pear

pecan

pinto bean

raspberry

red pepper

safflower

string bean

sunflower

tea

vanilla

veal

GOOD GRIEF! I have to say I'm most upset about the corn, cane sugar and garlic. I think this is a leaky gut thing - most of what showed up are things I've been eating a lot of lately (although that just could be coincidence and would then explain why I've felt pretty badly...)

Gluten didn't show up at all, unless you count malt and hops. I had no reaction to wheat, rye, barley or oats... but after talking to the nutritionist, she said that because it's been almost a year since I've consistently eaten them, they might not have shown up but still be a problem. I *know* they are a problem, but I'm questioning it now because they didn't show up...

I guess my big question is... what the heck am I going to eat? I can live very happily on veggies, fruits and proteins... but my veggies and proteins are severely limited.

Also, does anyone know of any good resources for corn-free info? Are people as sensitive to corn, or is there a CC issue with corn?

Thanks for your help!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jayhawkmom Enthusiast

It's only my opinion, but I've heard a LOT of negative things about that particular test, LOTS of false positives and test reactions to foods that are not reacted to. I think your best bet is an elimination diet to see if you TRULY react to any of these foods.

Lots of luck to you!

emcmaster Collaborator

Thanks for your thoughts. I am definitely planning on doing an elimination diet. I figure if I cut them all out and actually feel better, I'll know that at least one of them is making me sick and can add things back one at a time. I guess I figure that at least this gives me a place to start from and know what to cut out...

jerseyangel Proficient

Hi Elizabeth,

I'm sorry the test didn't give you more specific, concrete information. :(

I remember my allergist telling me that these tests result in many positives because when we eat a food, our bodies make antibodies to it. People usually end up doing an elinination diet anyway to weed out the false positives.

emcmaster Collaborator

Thanks, Patti. I hope I didn't completely waste $500. :blink:

tiffjake Enthusiast
Thanks for your thoughts. I am definitely planning on doing an elimination diet. I figure if I cut them all out and actually feel better, I'll know that at least one of them is making me sick and can add things back one at a time. I guess I figure that at least this gives me a place to start from and know what to cut out...

I am so sorry that you are frusterated! I do know how you feel though! I eliminated everything they told me to (well, all of the red and orange foods, but not the yellows, just watched out for those), for a month, and then started re-introducing them.

That is actually how I found out about my Celiac Disease, because when I added wheat back in, my intestines shut down and I ended up in the hospital! But I had been eating wheat up to the time of the test, and you have not, so maybe that is why it didn't show up with your test.

I do know that they said that you have to watch what you tend to eat everyday. Like you said about corn, you eat a lot of it. It might do you good to have a more balanced diet, not having the same foods everyday.

I think the elimination diet is pretty much what you will be doing at this point, but at least you have a starting point now! You know what foods to watch when you re-introduce them. I am sorry that you list is so long...do you eat those "red" foods a lot? My list was much shorter. My red foods were only 3 foods. Cantaloupe, caulifour, and sweet potatoes.

PM me if there is anything I can do to help.

emcmaster Collaborator

Yes, almost all of the red, orange and yellow foods are foods I eat all the time, especially in the last few weeks. That makes me think it's a leaky gut thing, so I'm going to do some research on trying to repair that while I cut these foods out. Thanks for the support!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - tiffanygosci replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      1

      Celiac support is hard to find

    2. - trents replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      1

      Help understand results

    3. - mamaof7 posted a topic in Parents, Friends and Loved Ones of Celiacs
      1

      Help understand results

    4. - Dizzyma replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Newly diagnosed mam to coeliac 11 year old

    5. - tiffanygosci posted a topic in Introduce Yourself / Share Stuff
      1

      Celiac support is hard to find

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,956
    • Most Online (within 30 mins)
      7,748

    Srowton
    Newest Member
    Srowton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • tiffanygosci
      EDIT: I did find a monthly Zoom meeting for Celiacs through the Celiac Disease Foundation, so I'll be able to talk with some other people on January 15. And I also found a Celiac Living podcast on Spotify made by a celiac. I feel a little bit better now and I am still hoping I will find some more personal connections in my area.
    • trents
      Welcome to the celiac.com community, @mamaof7! It means for the one celiac disease antibody test that was ordered, she tested negative. However, other tests should have been ordered, especially for someone so young who would have an immature immune system where there would be a high probability of being IGA deficient.  The one test that was ordered was an IGA-based antibody test. It is not the only IGA antibody test for celiac disease that can be run. The most common one ordered by physicians is the TTG-IGA. Whenever IGA antibody tests are ordered, a "total IGA" test should be included to check for IGA deficiency. In the case of IGA deficiency, all other IGA tests results will be inaccurate. There is another category of celiac disease antibody tests that can be used in the case of IGA deficiency. They are known as IGG tests. I will attach an article that gives an overview of celiac disease antibody tests. All this to say, I would not trust the results of the testing you have had done and I would not rule out your daughter having celiac disease. I would seek further testing at some point but it would require your daughter to have been eating normal amounts of gluten for weeks/months in order for the testing to be valid. It is also possible she does not have celiac disease (aka, "gluten intolerance") but that she has NCGS (Non Celiac Gluten Sensitivity, or just "gluten sensitivity" for short) which is more common. The difference is that celiac disease is an autoimmune disorder that damages the lining of the small bowel whereas NCGS does not autoimmune in nature and does not damage the lining of the small bowel, though the two conditions share many of the same symptoms. We have testing to diagnose celiac disease but there are no tests for NCGS. To arrive at a diagnosis of NCGS, celiac disease must first be ruled out. A gluten free diet is the solution to both maladies.   
    • mamaof7
      For reference, daughter is 18 mths old. Was having painful severe constipation with pale stool and blood also bloating (tight extended belly.) Liver and gallbladder are normal. Ultrasound was normal. Dr ordered celiac blood test. We took her off gluten after blood draw. She is sleeping better, no longer bloated and stools are still off color but not painful.    "GLIADIN (DEAMID) AB, IGA FLU Value  0.84 Reference Range: 0.00-4.99 No further celiac disease serology testing to be performed. INTERPRETIVE INFORMATION: Deamidated Gliadin Peptide (DGP) Ab, IgA A positive deamidated gliadin (DGP) IgA antibody result is associated with celiac disease but is not to be used as an initial screening test due to its low specificity and only occasional positivity in celiac disease patients who are negative for tissue transglutaminase (tTG) IgA antibody."   Anyone know what in the world this means. She isn't scheduled to see GI until late April. 
    • Dizzyma
      Hi Trent and Cristiana, thank you so much for taking the time out to reply to me.  My daughters GP requested bloods, they came back as showing a possibility of celiac disease, she advised me to continue feeding gluten as normal and wait on a hospital appointment. When we got that the doctor was quite annoyed that the gp hadn’t advised to go gluten free immediately as she explained that her numbers were so high that celiac disease was fairly evident. That doctor advised to switch to a gluten-free diet immediately which we did but she also got her bloods taken again that day as it made sense to double check considering she was maintaining a normal diet and they came back with a result of 128. The hospital doctor was so confident of celiac disease that she didn’t bother with any further testing. Cristiana, thank you for the information on the coeliac UK site however I am in the Rrpublic of Ireland so I’ll have to try to link in with supports there. I appreciate your replies I guess I’ll figure things as we go I just feel so bad for her, her skin is so sore around her mouth  and it looks bad at an age when looks are becoming important. Also her anxiety is affecting her sleep so I may have to look into some kind of therapy to help as I don’t think I am enough to help. thanks once again, it’s great to be able to reach out xx   
    • tiffanygosci
      I have been feeling so lonely in this celiac disease journey (which I've only been on for over 4 months). I have one friend who is celiac, and she has been a great help to me. I got diagnosed at the beginning of October 2025, so I got hit with all the major food holidays. I think I navigated them well, but I did make a couple mistakes along the way regarding CC. I have been Googling "celiac support groups" for the last couple days and there is nothing in the Northern Illinois area. I might reach out to my GI and dietician, who are through NW Medicine, to see if there are any groups near me. I cannot join any social media groups because I deleted my FB and IG last year and I have no desire to have them back (although I almost made a FB because I'm desperate to connect with more celiacs). I'm glad I have this forum. I am praying God will lead me to more people to relate to. In my opinion, celiac disease is like the only food- related autoimmune disease and it's so isolating. Thanks for walking alongside of me! I'm glad I know how to help my body but it's still not easy to deal with.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.