Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Much Gluten To Cause Reaction


SofiEmiMom

Recommended Posts

SofiEmiMom Enthusiast

Hello all. I am having great difficulty trying to get my child's teacher and pre-school adminstrator to understand how a bread crumb can make my daughter very ill. It's also difficult for them to understand how painful of a reaction this is for her - since it is delayed and not immediate like anaphalactic shock and therefore haven't witnessed a reaction. They also can't comprehend how each gluten set back can contribute to an increased risk of other diseases. Does anyone have any links or copies of articles for me that would help aid in getting the point across? Thanks so much. Please e-mail me directly at kfanelli@mac.com


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

I would suggest doing some searches on Open Original Shared Link for journal articles, as well as looking up the articles here at Open Original Shared Link for the references you want. At the end of the day, it's a basic chemical reaction - you only need to put one speck of baking soda in a glass of vinegar to release oxygen, you only need to put one speck of gluten in the intestines to trigger the immune system. And, at the end of the day, they don't have to understand it, as long as they do it.

judy04 Rookie

I would suggest showing them articles about the girl who couldn't

take communion because the Catholic Church wouldn't let her

use a rice wafer. This stirred up a lot of controversy and more

people became aware of the disease because of it. Some stories explained

about how even a crumb of wheat could cause severe damage and the

little girl said "I could die from it". just a thought...

ashlee's mom Rookie

I would think any article describing cross contamination would help. Realizing that if you stir the pasta with the wrong spoon can make someone sick might help bring home the point that you are not being paranoid about a crumb. It is hard for people to grasp sometimes, but if these are proffesionals in child care, they need to be putting out an effort as well. If after you share this information you don't see a change, make sure you look into other schools, I'm sure there are some that will take your daughter's health into consideration!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - MogwaiStripe posted a topic in Dermatitis Herpetiformis
      0

      Dermatitis Herpetiformis Cleared up With EpiPen, etc.

    2. - Dr. Gunn replied to MicG's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Test interpretations

    3. - trents replied to MicG's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Test interpretations

    4. - Dr. Gunn replied to MicG's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Test interpretations

    5. - Aretaeus Cappadocia commented on Scott Adams's article in Spring 2026 Issue
      1

      How Social Media Algorithms Are Fueling Gluten Anxiety: TikTok, Reddit, and Instagram Trends

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,660
    • Most Online (within 30 mins)
      7,748

    FionaHunt
    Newest Member
    FionaHunt
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • MogwaiStripe
      I had to rush to the hospital last week due to anaphylactic shock from taking a dose of an antibiotic. Received EpiPen, steroids, antihistamines, zofran (all injected/IV). When I woke up the next day, ALL of the rashes I've had that started since going gluten free were cleared up. EVEN THE dermatitis herpetiformis was gone. Has anyone else experienced this or happen to know why that would happen? The meds they gave me were all meds that I've taken to try to resolve the rashes, but they never worked in pill form. I'm wondering if it the addition of the epi that helped, it if injected steroids and antihistamines were what did the job.
    • Dr. Gunn
      Exactly! Negative genetics can rule out celiac disease with close to 100% certainty. It takes tTg antibody testing and biopsy confirm the diagnosis in a genetically susceptible individual. 
    • trents
      What Dr. Gunn states is essentially true. It is a rule out measure. But be aware that to possess either of the two primary genes that have been identified with celiac disease (or both) doesn't necessarily mean that you have or will develop celiac disease. Almost 40% of the general population carries one or both but only about 1% of the general population will develop active celiac disease. It remains latent until triggered by some stress event which may or may not occur. So, there is a genetic component to celiac disease but there is also an epigenetic component. 
    • Dr. Gunn
      Have you had celiac genetic risk testing? A celiac genetic test is accurate with or without gluten in your diet. If you don't carry the celiac risk genes you can effectively rule out celiac disease for life. 
    • Scott Adams
      Based on those results alone, it’s not possible to say you have celiac disease. The test that is usually most specific for celiac, tTG-IgA, is negative in your results, and the endomysial antibody (EMA) is also negative, which generally argues against active celiac disease. However, your deamidated gliadin IgA is elevated, and your total IgA level is also high, which can sometimes affect how the other antibody tests behave. Another important factor is that you were reducing gluten before the test, which can lower antibody levels and make the results less reliable. Because of that, many doctors recommend a gluten challenge (eating gluten regularly for several weeks) before repeating blood tests or considering an endoscopy if symptoms and labs raise concern. It would be best to review these results with a gastroenterologist, who can interpret them in context and decide whether further testing is needed.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.