Jump to content
  • You are not alone. Join Celiac.com for trusted gluten-free answers and forum support.



  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Just So Very Confused...


bunniegirrl

Recommended Posts

bunniegirrl Rookie

Hi all,

I am very new to this whole thing. I actually haven't even gotten my biopsy results back yet, but when my doctor did blood work they found celiac, so I went in for a biopsy on Tuesday, they said they just need to get confirmation so I am pretty sure that is what I have since I have all of the symptoms.

Anyway, I would like to start the diet now but I keep finding more and more things that I never thought would have gluten and they do! How am I supposed to know, the only list on this website is mostly ingredients and things I've never heard of. Am I supposed to check every ingredient on everything against that list, that would take forever! What is the easiest way, what do you guys do? If I just stick to meat, cheese, fruit and veggies am I OK?

Thanks for listening to my rambling and thanks for any help you can give me, I am just so very confused about this whole diet--it's frustrating!

:unsure:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest gfinnebraska

I always say it this way ~ you can eat anything that is in the form God made it ~ except for wheat, barley, oats, etc. ~ IF you follow that rule, you will be okay. Eat a good steak! Have a baked potato with real butter!! Just don't eat anything processed or "fixed" in any way. AND be careful of cross contamination ~ i.e. toaster, cutting board, utensils. Go buy your own. I bought a bread machine & make the sandwich bread mix from Open Original Shared Link. It is really good. :) It takes time, but you will work it all out and figure out what works for you. Read through the message boards here ~ there are tons of links to brand names you can eat and not eat. I have a notebook full of lists at home!! The link above also has a coating mix for fried chicken ~ that is what I had last night. Yummy!!! Just make sure you buy a deep fryer that you use JUST for you! A little more to clean up when it means cleaning two of everything, but it is worth it!! The chicken was great!! :lol:

kabowman Explorer

It takes a long time to shop at first--read EVERY label, however, it gets easier since you know what to avoid completely and I have now started shopping for most of my food at the health food section or store except for my meat but there are still a lot of mainstream products that are gluten-free, my diet is just a little more restricted than that...

Go shopping with company - my oldest son actually proof-reads all of my labels since he will notice stuff that I miss.

I have also heard this called the hunter/gatherer diet. Anything you can hunt or gather such as fruit and veggies is safe to eat. You will also be eating MUCH healthier.

-Kate

lilliexx Contributor

reading ingredient labels is a pain, but the more you do it the easier it will get. dont buy anything that lists natural flavors, spices or starch unless it is a brand that has policies of listing all wheat sources. i buy a lot of kraft procucts becuz they do list all gluten under "wheat: there are a couple other brands that also do this (el paso, blue bunny, bryers)

I have been cooking a lot of home made food now, and it isn't as hard as it i thought it would be, and it is a lot healthier anyway!!

some of my favorite things since going gluten free are:

bryers vanilla icecream

reece's peanut butter cups

newman's own chocholate bars

pamala's cookies

bumble bars

chebe bread mix ( you can make pizza crust, hamburger buns etc out of this)

tinkyada pasta

a taste of tai sauces and noodles

annies salad dressings

amy's rice crust pizza

i make a lot of mexiacan dinner's now (enchaldas, tacos etc) stirfry and pasta (tinkyada is great!!)

good luck w/ everything

lillie

debmidge Rising Star

Bunniegirl: This is one of the biggest concerns: which are OK foods and are not OK. I agree with the notebook method as it keeps your research in one place. My method is I purchased the CSA manual and it's in a 3 ring binder. I get the product brochures from the manufacturers which list their gluten-free products and I punch holes in the pages and add it to my notebook. I keep their "800" numbers handy too. Another concern is when the manufacturer changes their receipe or formula. So check again about the gluten-free issue every now and then; especially if the label says "New and Improved" or they use a new colored label or any other clue that something new is going on.

As to breadmachine, great idea - don't make anything BUT gluten free bread in there. Sometimes debris from a prior baking hides under the paddle. I do remove the paddle and clean it and under it, but sometimes it's just hard to catch every little thing. I'd never want that left over crumb to be a gluten crumb and have it wind up in the gluten-free bread.

Eat the basic foods in the beginning as you'll know they are gluten-free, then add other gluten-free foods (after you check out their gluten-free status). Like what lilliexx says, label reading is important and there will be some foods that you'll never be able to have until the manufacturer changes their receipe (like self basting butterball turkeys).

Best wishes and keep gluten-free!

bunniegirrl Rookie

Thank you guys for all your help, you have given me some good ideas and I have already started my 3-ring binder with all the lists printed off this site. I will be making my first gluten-free grocery trip this weekend and I've got a good list of snacks and lunches I can have, dinner will be harder at first, but oh well. This is a HUGE change for me since my favorite foods are any kind of fast food, anything fried, and lots of chinese food!!!! I've never even set foot inside a health food store, but this weekend will be a first for that too! Wish me luck!! :D:D

Guest NitaB

Good luck bunniegirrl! You'll become quite familiar with that health food store or the health food dept. in your regualr store! I have had to change my shopping places almost completely. I go to the health food store, about 20 to 25 minutes away, about once a month, or if I'm near that area. But, I've had to change my regular grocery store, as the one I liked, carries almost no gluten-free stuff! There is another one close, with a health food section, so just go there instead. And yes, you will get used to reading labels, and eventually know which items to get, not in the gluten-free section. I've only been at this for 4+ months, and I'm getting pretty good at it!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked commented on Scott Adams's article in Diagnosis, Testing & Treatment
      5

      New Study Reveals Hidden Gut Damage in Celiac Disease—Even Without Gluten (+Video)

    2. - Wheatwacked replied to Ginger38's topic in Coping with Celiac Disease
      6

      The Struggle Has Overtaken Me

    3. - cristiana replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Coeliac or not coeliac

    4. - CC90 replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Coeliac or not coeliac

    5. - Wheatwacked replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Coeliac or not coeliac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,194
    • Most Online (within 30 mins)
      10,442

    RitaRenee
    Newest Member
    RitaRenee
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Wheatwacked
      Hi @Ginger38, By now you know that these things improve without gluten. I once saw an interview with a corporation executive where he proudly declared that his wheat products are more addictive than potato chips. Dr Fuhrman (Eat to Live) said find foods that are friendly to you to be friends with.  
    • cristiana
      Hi @CC90 Ah... that is very interesting.  Although it is very annoying for you to have to go through it all again, I would say that almost sounds like an admission that they didn't look far enough last time?   I could be wrong, but I would not be at all surprised if they find something on the next attempt.  Coeliac damage can be very patchy, as I understand it, so that's why my own gastroenterologist always likes to point out that he's taken lots of samples!  In the kindest possible way (you don't want to upset the person doing the procedure!) I'd be inclined to tell them what happened last time and to ask them in person to take samples lower down, as  if your health system is anything like the one in my country, communication between GPs, consultants and hospitals isn't always very good.  You don't want the same mistake to be made again. You say that your first endoscopy was traumatic?  May I ask, looking at your spelling of coeliac, was this done at an NHS hospital in England?  The reason for the question is that one of my NHS diagnosed friends was not automatically offered a sedative and managed without one.  Inspired by her, I tried to have an endoscopy one time, in a private setting, without one, so that I could recover quicker, but I had to request sedative in the end it was so uncomfortable.    I am sorry that you will have to go through a gluten challenge again but to make things easier, ensure you eat things containing gluten that you will miss should you have to go gluten free one day. 😂 I was told to eat 2 slices of normal wholemeal bread or the equivalent every day in the weeks before , but I also opted for Weetabix and dozens of Penguin chocolate biscuits.  (I had a very tight headache across my temple for days before the procedure, which I thought was interesting as I had that frequently growing up. - must have been a coeliac symptom!)  Anyway, I do hope you soon get the answers you are looking for and do keep us posted. Cristiana  
    • CC90
      Hi Cristiana   Yes I've had the biopsy results showing normal villi and intestinal mucosa.  The repeat endoscopy (requested by the gastro doc) would be to take samples from further into the intestine than the previous endoscopy reached.      
    • Wheatwacked
      Transglutaminase IgA is the gold-standard blood test for celiac disease. Sensitivity of over 90% and specificity of 95–99%. It rarely produces false positives.  An elevated level means your immune system is reacting to gluten.  Non-Celiac Gluten Sensitivity (NCGS) does not typically cause high levels of tTG-IgA. Unfortunately the protocols for a diagnosis of Celiac Disease are aimed at proving you don't have it, leaving you twisting in the wind. Genetic testing and improvement on a trial gluten free diet, also avoiding milk protein, will likely show improvement in short order if it is Celiac; but will that satisfy the medical system for a diagnosis? If you do end up scheduling a repeat endoscopy, be sure to eat up to 10 grams of gluten for 8 - 12 weeks.  You want  to create maximum damage. Not a medical opinion, but my vote is yes.
    • trents
      Cristiana asks a very relevant question. What looks normal to the naked eye may not look normal under the microscope.
×
×
  • Create New...