Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cd Blood Testing For My Baby


jesslee23

Recommended Posts

jesslee23 Newbie

Hi,

We think that my 21 month old son has celiac disease and I'm confused as to what blood tests to ask to be run. He did have his immune system tested last May (for other reasons) and there were abnormalities there. His IgA was 46 (normal range 87-474) as was his IgG which was 434 (normal range 681-1648). I live in an area that is notoriously difficult for diagnosis for anything outside mainstream. My son has not grown since October, in either weight or length and I'm so tired of him being sick all the time! I'm almost hoping that he does have celiac disease because at least it's fixable! The other options are too scary to think about.

Can you please tell me what the Immune tests would show with a positive celiac disease?

TIA

Jessie


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gf4life Enthusiast
His IgA was 46 (normal range 87-474) as was his IgG which was 434 (normal range 681-1648)

I was just wondering if this is his total serum IgA? If it is, then he is very low and the regular blood tests for Celiac would not be accurate. If you can not get a doctor in your area to find the right tests to do on your son, you may want to conscider Open Original Shared Link . They offer a stool test and a gene test for Celiac Disease that can be done at home, and sent back to them through the mail. It is not easy to get a diagnosis, but if you can find a doctor who knows what he is doing...

Your best bet would be to try and get him a referral to a children's hospital. Do you have one in your area? I have to travel about 1 1/2 hours (one way) to get to my children's doctor, but it is worth it, and I know of some people who travel out of state to get to a doctor who knows about celiac disease.

It is very important to get him seen as soon as possible, since he is so sick and he is not growing properly. Take a copy of those Immune systen tests with you where ever you end up going. And if you can get the tests done through Prometheus labs, they are the best for testing for celiac disease, and they include the total serum IgA in their Celiac Panel to check for deficiency and if the blood test comes back negative, they automatically run a gene test on the blood to see if the person carries any of the genes responsible for celiac disease.

God bless,

Mariann

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,565
    • Most Online (within 30 mins)
      7,748

    Gma Marsh
    Newest Member
    Gma Marsh
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • petitojou
      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
    • petitojou
      Thank you so much for the information and kind message! Reading this transformed how I’ve been viewing my efforts and progress. Guess there’s still a lot to celebrate and also heal 😌  Yes, I’ve been taking it! Just recently started taking a multivitamin supplement and separated vitamin D! I also took chewable Iron polymaltose for ferritin deficiency 2 months ago but was unable to absorb any of it.  Thank you again! Hearing such gentle words from the community makes my body and heart more patient and excited for the future. 
    • ckeyser88
      I am looking for a roomie in Chicago, Denver or Nashville! 
    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.