Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cd Blood Testing For My Baby

jesslee23

Recommended Posts

jesslee23 Newbie
jesslee23
Posted

Hi,

We think that my 21 month old son has celiac disease and I'm confused as to what blood tests to ask to be run. He did have his immune system tested last May (for other reasons) and there were abnormalities there. His IgA was 46 (normal range 87-474) as was his IgG which was 434 (normal range 681-1648). I live in an area that is notoriously difficult for diagnosis for anything outside mainstream. My son has not grown since October, in either weight or length and I'm so tired of him being sick all the time! I'm almost hoping that he does have celiac disease because at least it's fixable! The other options are too scary to think about.

Can you please tell me what the Immune tests would show with a positive celiac disease?

TIA

Jessie

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


gf4life Enthusiast
gf4life
Posted
His IgA was 46 (normal range 87-474) as was his IgG which was 434 (normal range 681-1648)

I was just wondering if this is his total serum IgA? If it is, then he is very low and the regular blood tests for Celiac would not be accurate. If you can not get a doctor in your area to find the right tests to do on your son, you may want to conscider Open Original Shared Link . They offer a stool test and a gene test for Celiac Disease that can be done at home, and sent back to them through the mail. It is not easy to get a diagnosis, but if you can find a doctor who knows what he is doing...

Your best bet would be to try and get him a referral to a children's hospital. Do you have one in your area? I have to travel about 1 1/2 hours (one way) to get to my children's doctor, but it is worth it, and I know of some people who travel out of state to get to a doctor who knows about celiac disease.

It is very important to get him seen as soon as possible, since he is so sick and he is not growing properly. Take a copy of those Immune systen tests with you where ever you end up going. And if you can get the tests done through Prometheus labs, they are the best for testing for celiac disease, and they include the total serum IgA in their Celiac Panel to check for deficiency and if the blood test comes back negative, they automatically run a gene test on the blood to see if the person carries any of the genes responsible for celiac disease.

God bless,

Mariann

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. suek54
      - suek54 replied to suek54's topic in Dermatitis Herpetiformis
      8

      Awaiting dermatitis herpetiformis confirmation following biopsy

      Hi all Biopsy confirmed dermatitis herpetiformis. Strict gluten free diet going OK, I cook nearly everything from scratch anyway and am finding gluten free adaptations for most recipes. I seem to be tolerating 50mg Dapsone well, regular blood tests OK so far. Next derma appt in 8 weeks. I have some continuing itching and rash outbreaks, though...
    2. trents
      - trents replied to dani nero's topic in Dermatitis Herpetiformis
      191

      DH Photo Bank

      @KeriRae, have you been diagnosed with celiac disease or with dermatitis herpetiformis?
    3. KeriRae
      - KeriRae replied to dani nero's topic in Dermatitis Herpetiformis
      191

      DH Photo Bank

      I've had this same rash on my back on and off for the last year or two. I was taking LDN to help with other issues but quit awhile back. I'm wondering if LDN would help with this rash.
    4. Aretaeus Cappadocia
      - Aretaeus Cappadocia commented on Scott Adams's blog entry in Gluten Busters: Gluten-Free Product Alerts by Celiac.com
      7

      Simple Mills and Made Good Foods Products May Contain Gluten Levels Above the FDA's Allowable Limit of 20 ppm

      It should be noted that Gluten Free Watchdog has voiced concerns about the methodology used by MomsAcrossAmerica's lab for their gluten testing. I don't have access behind their paywall, but here are 2 relevant public posts from them on this topic. (tldr: GFWD seems to believe that MAM's lab could have gotten false positives and they explain why they believe...
    5. Russ H
      - Russ H replied to Ginger38's topic in Related Issues & Disorders
      27

      Shingles - Could It Be Related to Gluten/ Celiac

      Shingles vaccination also provides some protection against dementia: https://www.nihr.ac.uk/news/major-study-finds-new-shingles-vaccine-could-lower-risk-dementia
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,717
    • Most Online (within 30 mins)
      7,748
    Lellymay
    Newest Member
    Lellymay
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • suek54
      Awaiting dermatitis herpetiformis confirmation following biopsy

      By suek54 · Posted

      Hi all Biopsy confirmed dermatitis herpetiformis. Strict gluten free diet going OK, I cook nearly everything from scratch anyway and am finding gluten free  adaptations for most recipes.  I seem to be tolerating 50mg Dapsone well, regular blood tests OK so far.  Next derma appt in 8 weeks. I have some continuing itching and rash outbreaks, though nowhere near as severe as they were, so I am hoping for an increased dose, as the effect only seems to last 6-7 hours.  I think I may be burning through it more quickly than some due to other medication. Also I cannot mount a response to inflammation due to Addison's Disease.  I hope others are finding their way though the minefield that is dermatitis herpetiformis. Hang on in there! Sue (in UK)
    • trents
      DH Photo Bank

      By trents · Posted

      @KeriRae, have you been diagnosed with celiac disease or with dermatitis herpetiformis?
    • KeriRae
      DH Photo Bank

      By KeriRae · Posted

      I've had this same rash on my back on and off for the last year or two.  I was taking LDN to help with other issues but quit awhile back. I'm wondering if LDN would help with this rash. 
    • Russ H
      Shingles - Could It Be Related to Gluten/ Celiac

      By Russ H · Posted

      Shingles vaccination also provides some protection against dementia: https://www.nihr.ac.uk/news/major-study-finds-new-shingles-vaccine-could-lower-risk-dementia
    • knitty kitty
      Pain in the right side of abdomen

      By knitty kitty · Posted

      @Heatherisle, You have good reason to worry.   Ask the doctors to do an Erythrocyte Transketolace Activity Assay to test for Thiamine B1 deficiency.  Thiamine deficiency is frequently found in B12 deficiency.  Deficiencies in all the B vitamins are common with malabsorption due to Celiac disease.  Thiamine can run out in as little as three days.   Thiamine deficiency symptoms can be mistaken for other diseases such as MS and Guillian-Barre Syndrome.  Thiamine deficiency symptoms include pain in legs and abdominal pain as well as depression and gastrointestinal symptoms. Thiamine B1, Pyridoxine B6 and Cobalamine B 12 together relieve nerve pain. References and Interesting Reading: Wernicke’s encephalopathy mimicking multiple sclerosis in a young female patient post-bariatric gastric sleeve surgery https://pmc.ncbi.nlm.nih.gov/articles/PMC8462913/ Thiamine Deficiency Masquerading As Guillain-Barré Syndrome https://pmc.ncbi.nlm.nih.gov/articles/PMC11872742/ Dry Beriberi Due to Thiamine Deficiency Associated with Peripheral Neuropathy and Wernicke’s Encephalopathy Mimicking Guillain-Barré syndrome: A Case Report and Review of the Literature https://pmc.ncbi.nlm.nih.gov/articles/PMC6429982/ Is there a Link between Vitamin B and Multiple Sclerosis? https://pubmed.ncbi.nlm.nih.gov/28875857/ Thiamine Deficiency and Neurological Symptoms in Patients with Hematological Cancer Receiving Chemotherapy: A Retrospective Analysis https://pmc.ncbi.nlm.nih.gov/articles/PMC8559079/ The Effects of Vitamin B in Depression https://pubmed.ncbi.nlm.nih.gov/27655070/ Thiamine Deficiency Neuropathy in a Patient with Malnutrition due to Melancholic Depression https://pmc.ncbi.nlm.nih.gov/articles/PMC10942818/ Myopathy in thiamine deficiency: analysis of a case https://pubmed.ncbi.nlm.nih.gov/16920153/ Neurologic complications of thiamine (B1) deficiency following bariatric surgery in adolescents https://pubmed.ncbi.nlm.nih.gov/38705013/ B Vitamins in the nervous system: Current knowledge of the biochemical modes of action and synergies of thiamine, pyridoxine, and cobalamin https://pubmed.ncbi.nlm.nih.gov/31490017/ Neurological, Psychiatric, and Biochemical Aspects of Thiamine Deficiency in Children and Adults https://pmc.ncbi.nlm.nih.gov/articles/PMC6459027/ B Vitamin Deficiencies and Associated Neuropathies https://pmc.ncbi.nlm.nih.gov/articles/PMC12855320/ Concomitant Vitamin B1 and Vitamin B12 Deficiency Mimicking Thrombotic Thrombocytopenic Purpura https://pmc.ncbi.nlm.nih.gov/articles/PMC9887457/ Update on Safety Profiles of Vitamins B1, B6, and B12: A Narrative Review https://pmc.ncbi.nlm.nih.gov/articles/PMC7764703/  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.