Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sick To My Stomach


Guest gfinnebraska

Recommended Posts

Guest gfinnebraska

I have been 100% gluten free for a little over 30 days. I have not eaten anything even slightly questionable. So, my question is, is it "normal" to be sick to your stomach?? I eat something, and then my system "cleans out." I am very swollen & not losing weight... I just can't keep anything in! Will this end after a while? Will my system get cleaned out and stop? Any help would be appreciated ~ I am tired of spending so much time in the bathroom!!! :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



celiac3270 Collaborator

Completely normal.......you can go months or even a year without getting better and without making any mistakes and even that can be normal. A month surely isn't enough time for your body to heal. My dr. compared it to a train or some moving vehicle. Think of a car or train going at top speed -- that's like the celiac tearing up your body at topspeed. When you start the diet, you slam on the brakes, but it still takes awhile for the train to come to a complete stop. I've been 8 months and I'm not better. Endos have shown that I'm not injesting accidental gluten, no problem with any other organs, no other allergies.....it takes time....and one month, in most people, is not nearly enough.

Guest gfinnebraska

Thank you celiac3270... my brain kept telling me that, but I was starting to worry! I have just been SO sick, and was starting to think maybe something else was wrong. I guess I'll just prepare myself for a "season of healing" and try and be patient. :rolleyes: Again.... Thanks!

celiac3270 Collaborator

Sure :D .......I just went back to read your post again and I realized that I hadn't really noticed the first time what you said about cleaning out the system.....that's the same sort of impression I get about my system 8 1/2 months into the diet. I still get sick and, as a matter of fact, I'm sick right now. I went into school to take a test (I'm out often enough to begin with, so I try to tough it out when I can) and I came home around 1:00. Fortunately, the cramping isn't as debilitating as it used to be, so I can at least lie here with my knees to my chest and type :unsure:

I keep my meals down, but then again, I usually did that in the past. It's just, every few days I'd get severe cramping and vomiting. I had constant bloating and a lot of gas. I was really thin (5' and 70 pounds; when I got sick I would lose 2-5 pounds and then eventually climb back up to seventy and repeat the process) and my mom said she used to cry when she thought about how thin I looked when I came out of the shower or changed my clothes or something. She kept saying that she felt like she was poisoning me or something, which she, essentially and inadvertently was ;) . Anyway, I have had some improvements with the diet -- the bloating comes only when I'm sick, the gas is also when I'm sick but not usually, and I used to get occasional diarrhea which is now completely gone! The cramping isn't quite as bad, but still not something that you can just function normally with, and I don't vomit as much when I get sick. I'm now about 5'2 and 86 pounds, a new record for me :)....2 inches and 16-20 pounds in eight months :D. I feel like I know a lot about celiac and the diet by now, and if I could just shake the still persistent cramping/vomiting, I'd be fine....I still have quite a ways to go, though. What was my point again? Oh, yeah, I kept my meals down always, but I'd just puke every few days....now I puke every 1-3 weeks. Though I don't vomit as much anymore, a lot comes up really forcefully -- it actually hurts in my chest with the force of the vomit and a LOT comes up, but it's not projectile or anything.......sorry to ramble on about my story, I'm just bored and with not much else to do but read and I got off on a bit of a tangent. To simplify the whole thing, I'm still having this "cleaning out" thing with my system, too.....I just hope that you don't need to deal with it for 8+ months. Although I might add, it seems like forever to get better for the first 1-4 months and after that you just sort of accept it, pathetic as it is, and wait it out without counting the # of days gluten-free and asking why you're not better.

I eat something, and then my system "cleans out." I am very swollen & not losing weight... I just can't keep anything in! Will this end after a while? Will my system get cleaned out and stop? Any help would be appreciated ~ I am tired of spending so much time in the bathroom!!!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to colinukcoeliac's topic in Gluten-Free Restaurants
      10

      What should I expect from a UK restaurant advertising / offering "Gluten Free" food

    2. - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      34

      Insomnia help

    3. - cristiana replied to colinukcoeliac's topic in Gluten-Free Restaurants
      10

      What should I expect from a UK restaurant advertising / offering "Gluten Free" food

    4. - melthebell replied to melthebell's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Persistent isolated high DGP-IGG in child despite gluten-free diet

    5. - trents replied to melthebell's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Persistent isolated high DGP-IGG in child despite gluten-free diet

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,498
    • Most Online (within 30 mins)
      7,748

    genliu
    Newest Member
    genliu
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • cristiana
      Re: Michelin star.  To give an example, the Ritz Hotel in London has two Michelin stars.   Here's another article about Michelin stars - from our own archive.  
    • cristiana
      Very helpful @knitty kitty.  Thank you.  I am trying to remember what vitamin so alarmed my GP and I have a feeling it was A or E.  I remember reading the pills contained well over the 100 per cent RDA of whatever the vitamin was. One thing I'd love to ask you that has always intrigued me.  One day when my anxiety was completely through the roof.  I 'felt the fear and did it anyway' - a phrase other anxiety sufferers may be aware of, which I found a powerful tool in my recovery -  and visited a friend's house, even though I felt so wretched.  For some reason I craved milk and drank two whole pints of milk in quick succession while I was with her - to this day I can't think why, because I don't usually drink milk 'neat' - I like it in tea or coffee, or hot chocolate.  But I distinctly remember within a couple of hours feeling absolutely fine again for quite a while.  I've often wondered was it down to this milk, which I've since understood contains quite decent levels of B12.  Would that have really worked so fast?    
    • cristiana
      @trents  Good question.  We are strict at home, although I have to admit I've eating the odd chocolate at Christmas that turned out to have been made in a shared facility.  But that  is very unusual for me, and I had my last blood test before Christmas anyway.  Therefore I have concluded that eating out must be the issue.  But I'll let you know in September when I have my next blood tests done.  😊  
    • melthebell
      Thanks very much for taking the time to write this. I have been pretty worried so appreciate reading any advice. Yes, the endoscopy will include a biopsy, and we have hopefully found a good pediatric gastro to guide us through it all.  Will also run the HLA typing - I have the swabs ready to go.
    • trents
      Welcome to the celiac.com community, @melthebell! I certainly would have a biopsy repeated as it has been 5 years since the first one. You mentioned he was scheduled for an endoscopy but make sure a biopsy is also done. It's possible he, like you are, is a "silent" celiac where the damage to the intestinal mucosa happens very slowly and can take years to manifest to the point of being detectable and where symptoms are minimal or absent. At 10 years old, his immune system may not be mature enough het to trigger the usual IGA responses that the IGA celiac tests are designed to detect.  I would also have genetic testing done to confirm that he has or doesn't have the potential to develop celiac disease. The genetic profile can also offer insight into the type of celiac disease a person will develop if they ever convert from latent to active. Take a look at table 2 under the section "Types of Celiac Disease" in the article found in this link: https://pmc.ncbi.nlm.nih.gov/articles/PMC9980758/  Genetic testing is available from 3rd party labs. I think you just have to send in a cheek swab sample.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.