Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Angryy 20 Year Old


WSLIZ

Recommended Posts

WSLIZ Newbie

Im only 20 years old and 4 days ago I was diagnosed with celiac.....my doctor left me with NO information other than a thin packet that wasnt really helpful. I am so confused about what i can and connot eat.....i feel like i cant go out with my friends to eat or out to a bar cuz im confused about what i will be able to drink. Im very angry and wonder if there is any way my doctors diagnoses is wrong.....I had blood work done that tested positve...and they are going with that? Is that really that accurate?? Anyones input would probly help right now.....Thanks!

~Liz~


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



darlindeb25 Collaborator

yes, the blood test are that accurate and it will be hard for a while, but you will get used to being a gluten detective and yes, you will have screw ups, we all do--read everything you can in celiac.com--there are food list in here that you can find--they have name brand items we can have that are gluten-free--another good site is clanthompson.com --they have food list too--there are many good sites in the post in here for you to visit--do check them out--you are only 20--i wish i had been diagnosed then, it would have saved me so many painful years--my life is so much better now that i am gluten-free and sweetie--i havent been diagnosed by a doctor and i still know celiacs or gluten intolerance is my problem--keep your chin up and feel free to email me at my aol addy with questions--i will answer you with what i know or i will find out what you need--my sister is a licensed dietician who has celiacs--we help each other---deb :D

MySuicidalTurtle Enthusiast

Most doctors arn't too helpful and you have to do the research yourself. . .sadly it will take a long time to get the whole glutenfree thing down but it's all worth it and you'll get the hang of it.

There is a teenaers section on here too where a lot of 17-23 yr olds post and stuff.

You'll find that there are drinks for you to drink and you can go out to bars!

Kristina

Mballerina Explorer

If you have all the symptoms then you can go with the test being positive. If you have none of them then you should insist on a biopsy. I am 20 and found out about it two months ago. I have done 4 or 5 months of reading medical journals and still it is so frustrating for me on a personal basis. If you want to talk I would be really happy to be frustrated with some one else. Better to figure it out with someone else than just yourself. It's good for those moments of desperation.

stef-the-kicking-cuty Enthusiast

Hello liz,

it's normal to be confused at the beginning. But it's all getting better after a while. On celiac.com are a lot of food lists, you can print out. And also a lot of good recipes, you can make. Don't desparate. When you go out into a restaurant, you can't have beer as a celiac, but you can have a lot of other stuff. As a celiac you can drink most of the wines (if not all), because they are from grapes. And there is another list out there, from which i printed out two pages with alcoholic beverages. I can't find the list anymore, but i still have the pages i printed out. It's a really long list, but if you want i take the time and email it to you. So you can have other alcoholic stuff as well. If you want to drink non-alcoholic stuff, you can drink some drinks from coca-cola (i believe i also saw it on this list here on celiac.com) and from pepsi i think it's all drinks you can have. Just check back with the list and when you're in a club you can ask 'hey, are your drinks from pepsi?'. They should know. OK, if you have any other question, remember, you can always find support from all of these nice people here. This is a very helpful message board i experienced.

Good luck on your celiac journey, Stef

tarnalberry Community Regular

Give yourself a good three months to start feeling comfortable with this.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,923
    • Most Online (within 30 mins)
      7,748

    cmckurtz
    Newest Member
    cmckurtz
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • cristiana
      Hi @Dizzyma I note what @trents has commented about you possibly posting from the UK.  Just to let you know that am a coeliac based in the UK, so if that is the case, do let me know if can help you with any questions on the NHS provision for coeliacs.    If you are indeed based in the UK, and coeliac disease is confirmed, I would thoroughly recommend you join Coeliac UK, as they provide a printed food and drink guide and also a phone app which you can take shopping with you so you can find out if a product is gluten free or not. But one thing I would like to say to you, no matter where you live, is you mention that your daughter is anxious.  I was always a bit of a nervous, anxious child but before my diagnosis in mid-life my anxiety levels were through the roof.   My anxiety got steadily better when I followed the gluten-free diet and vitamin and mineral deficiencies were addressed.  Anxiety is very common at diagnosis, you may well find that her anxiety will improve once your daughter follows a strict gluten-free diet. Cristiana 
    • trents
      Welcome to the celic.com community @Dizzyma! I'm assuming you are in the U.K. since you speak of your daughter's celiac disease blood tests as "her bloods".  Has her physician officially diagnosed her has having celiac disease on the results of her blood tests alone? Normally, if the ttg-iga blood test results are positive, a follow-up endoscopy with biopsy of the small bowel lining to check for damage would be ordered to confirm the results of "the bloods". However if the ttg-iga test score is 10x normal or greater, some physicians, particularly in the U.K., will dispense with the endoscopy/biopsy. If there is to be an endoscopy/biopsy, your daughter should not yet begin the gluten free diet as doing so would allow healing of the small bowel lining to commence which may result in a biopsy finding having results that conflict with the blood work. Do you know if an endoscopy/biopsy is planned? Celiac disease can have onset at any stage of life, from infancy to old age. It has a genetic base but the genes remain dormant until and unless triggered by some stress event. The stress event can be many things but it is often a viral infection. About 40% of the general population have the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. So, for most, the genes remain dormant.  Celiac disease is by nature an autoimmune disorder. That is to say, gluten ingestion triggers an immune response that causes the body to attack its own tissues. In this case, the attack happens in he lining of the small bowel, at least classically, though we now know there are other body systems that can sometimes be affected. So, for a person with celiac disease, when they ingest gluten, the body sends attacking cells to battle the gluten which causes inflammation as the gluten is being absorbed into the cells that make up the lining of the small bowel. This causes damage to the cells and over time, wears them down. This lining is composed of billions of tiny finger-like projections and which creates a tremendous surface area for absorbing nutrients from the food we eat. This area of the intestinal track is where all of our nutrition is absorbed. As these finger-like projections get worn down by the constant inflammation from continued gluten consumption before diagnosis (or after diagnosis in the case of those who are noncompliant) the efficiency of nutrient absorption from what we eat can be drastically reduced. This is why iron deficiency anemia and other nutrient deficiency related medical problems are so common in the celiac population. So, to answer your question about the wisdom of allowing your daughter to consume gluten on a limited basis to retain some tolerance to it, that would not be a sound approach because it would prevent healing of the lining of her small bowel. It would keep the fires of inflammation smoldering. The only wise course is strict adherence to a gluten free diet, once all tests to confirm celiac disease are complete.
    • Dizzyma
      Hi all, I have so many questions and feel like google is giving me very different information. Hoping I may get some more definite answers here. ok, my daughter has been diagnosed as a coeliac as her bloods show anti TTG antibodies are over 128. We have started her  on a full gluten free diet. my concerns are that she wasn’t actually physically sick on her regular diet, she had tummy issues and skin sores. My fear is that she will build up a complete intolerance to gluten and become physically sick if she has gluten. Is there anything to be said for keeping a small bit of gluten in the diet to stop her from developing a total intolerance?  also, she would be an anxious type of person, is it possible that stress is the reason she has become coeliac? I read that diagnosis later in childhood could be following a sickness or stress. How can she have been fine for the first 10 years and then become coeliac? sorry, I’m just very confused and really want to do right by her. I know a coeliac and she has a terrible time after she gets gluttened so just want to make sure going down a total gluten free road is the right choice. thank you for any help or advise xx 
    • xxnonamexx
      very interesting thanks for the info  
    • Florence Lillian
      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.