Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Adopted & Have Cd


LynnR

Recommended Posts

LynnR Explorer

I was adopted as an infant & recently found out that I have celiac disease. I met my natural Mother last year but it didn't go well. Our short relationship ended quicked mainly b/c I wasn't the person she wanted me to be.

The main reason I wanted to contact her in the first place was to find out any medical background so I could find what was wrong with me. Her medical history was not much but including heart arrthemia (sp)?, IBS, indigestion, bloating, etc. She would often say that she doesn't eat much but can't lose any weight either.

Now I am thinking that I inherited celiac disease from her. She is now married & has 2 grown children. Should I write a note & let her know what I have in case she has it too?

Our daughter is also adopted. She comes from China. When we got her, she was very underweight, had lots Eczema, & had acid reflex upon eating. Now she is much healthier but still has the Eczema, craves sweets, never feels full after meals, & very small for her age. Her last physical in April, she weighed 42 1/2 pounds & her height was 43 3/4-inches. They did a bone scan & found her bone age to be 5.10 years. The doctor wasn't concerned at this moment because she is growing on a yearly basis.

She will not allow anyone to take blood from her b/c she is very afraid of needles for whatever reason. So what we can do is limited. Can her symptoms be related to celiac disease?

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gf4life Enthusiast

You didn't mention how old your daughter is, but I figured older than 5.

It wouldn't hurt to get her tested. A needle-free way of testing for gluten intolerance is to go through Enterolab. You might even be able to get a doctor to order if, since you can't use needles on her. It might help when trying to get it covered by insurance.

They do a stool test for gluten antibodies and they also do a gene test (cheek swab). The complete test kit costs about $350 + @$20 shipping. You can find more info about the testing here:

Open Original Shared Link

It wouldn't hurt to drop a letter to your birth mother and let her know that you were diagnosed with this disease and based on her symptoms she might want to be tested. You could also include a printout from a reputable site regarding the disease. Then at least you did your part. The rest is up to her to decide if she wants to pursue testing for her and her family.

Good luck and God bless,

Mariann

LynnR Explorer

Oops -

My daughter will be 9 in March.

gf4life Enthusiast

Then yes, she is very small for her age and like I said it wouldn't hurt to have her tested. You already have to follow the diet, so it would be easier for her to follow it as well.

God bless,

Mariann

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Cecile replied to Cecile's topic in Related Issues & Disorders
      3

      Symptoms

    2. - Jmartes71 posted a topic in Introduce Yourself / Share Stuff
      0

      Not validated

    3. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      4

      New issue

    4. - Jmartes71 replied to chrish42's topic in Doctors
      3

      Doctors and Celiac.com

    5. - RMJ replied to Xravith's topic in Introduce Yourself / Share Stuff
      1

      Do Gluten Enzymes actually work?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,191
    • Most Online (within 30 mins)
      7,748

    LynnF98
    Newest Member
    LynnF98
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Cecile
      Thank you Scott for your wonderful info. I will pry my Doctor for more extensive blood testing. I appreciate your time. 
    • Jmartes71
      After waisted time of new care team, yet again EXHAUSTED saw new gi today in Modesto, though all my ailments im not getting any kind of concern of me being celiac and sentive to just about everything since menopause. Dr daid why don't I go see you guys because my blood shows zero for celiac. I told him im glutenfree since 1994 by colonoscopy with biopsy positive celiac sprue by GI.Its RIDICULOUS when im bringing in material from this site of knowledge as well as the autoimmune institute,and  there's zero interest on their part.Medical IS causing me depression.Im view as a disability chaser, IM STILL RECOVERING from being a bus driver that im still healing and having more issues, now I may have multiple sclerosis or meningioma. Ive reached out, wrote letters, NOT feeling well. This is inhumane. 
    • Jmartes71
      I was taking medicine for sibo but it was not agreeing with my stomach at all.Was on gabapentin but it amps me up.I was taking in morning because it wasn't allowing me to sleep.This has always been an issue with medicine and me.Even going to dentist, the good shot that numbs you once, I can't take because it makes my heart beat fast and I  get the shakes.I have to take the crappy stuff and get injected always more than 4 times always.Its infuriating 
    • Jmartes71
      I showed one doctor I went to once because completely clueless of celiac disease and yes that one was connected to a well known hospital and she said oh thats just a bunch of people that think they are celiac coming together. I said um no they have doctors and knowledge behind what is being written. So bay area is Downplaying this site! SADLY 
    • RMJ
      If you successfully digest gluten with enzyme supplements so it won’t give you side effects, your challenge won’t be worthwhile because the digested fragments of gluten also won’t stimulate antibody production or cause intestinal damage.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.