Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Child Of Celiac


julianne

Recommended Posts

julianne Newbie

I'm the wife of a celiac diagnosed 8 years ago. He's doing great on the gluten free diet. I have 3 children, 12, 10 & 5. I had my 2 oldest tested for the antibodies (through blood test) and both were negative. No tests since then. My 10 year old now shows symptoms of psoriasis. It started on his scalp in August. Doctors first thought ringworm (yuck!) had the culture performed which takes weeks to grow. Then started the 8 week course of antibiotics. Throughout this time I also applied Elicon (leftover from my other son's mild exczema). That mild steroid was the only thing that would make these spots almost seem to heal. But after a few days of not using the Elicon, the spots would return to looking as they had before. Went back to the doc 6 weeks into treatment because my son now has more spots on his body. Doc now thinks psoriasis since it responded to the Elicon and he finally used the black light which showed no presence of ringworm (They glow under ultraviolet light)(Why didn't the first doc do this?!) :angry: .

To me they don't look like the pictures I've seen of DH because his don't look fluid filled at all. Can DH be all over the body including scalp and penis? Or does anyone know about the relationship between celiac disease and psoriasis? Should I have blood tests performed again on all children even if they were initially negative?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gf4life Enthusiast
...does anyone know about the relationship between celiac disease and psoriasis? Should I have blood tests performed again on all children even if they were initially negative?

The relationship between celiac and psoriasis is that they are both auto-immune diseases. Meaning that the body is essentially attacking itself. Whenever you have one auto-immune disease you are at a higher risk of developing others. That is about the only connection that I know of though.

I have psoriasis. So far it is mild, but over the years it has been spreading. I have not found anything to treat it that will work long term. If I use the cream religiously then it gets a little better, but if I forget for a day or two, then it is back with a vengeance! I am sorry that your 10 year old is having to deal with this. I have a 10 year old boy also and I think how awful it would be for him...

Now as for having the kids tested again, YES. They should be screened for the disease about every few years, sooner if they are having symptoms. Since they are biologically related to someone (in this case a parent) they have an increased risk of developing the disease. I read one study that said first degree relatives of a Celiac have a 1 in 10 chance of developing the disease. But realistically they have a higher chance of carrying the gene and could either never get sick or they could get sick at any point in their lives. You could have them gene tested to see if they carry the gene, then you would at least know if they are carriers. Although even this is not a guarantee, since they don't know that they have isolated all the genes responsible for celiac disease, but you would know which ones they got from you husband. And if they have two copies, then you would know that you were a carrier as well. There are only a few labs that do the gene testing. We did ours through Enterolab(for $150 per person), since our insurance wasn't wanting to pay for Prometheus labs (at $750 a person). Enterolab also tests for more genes that they have isolated that cause gluten intolerance, but are not considered yet to be "Celiac" genes. We have two who have Celiac genes and three that have the gluten intolerance genes in our family of 5. Only myself and our three kids are gluten free. My husband is not sick enough yet to admit that he needs the diet.

God bless,

Mariann

  • 2 weeks later...
FreyaUSA Contributor

I am not certain exactly what psoriasis looks like, but my eldest has skin reactions to gluten (as well as many other more typical reactions.) He tested borderline (or so the doctor said) with just the IgG antibodies (I'm STILL confused about this. Either he tested just below the cutoff or just at the cutoff, but the doctor said not to worry about it.) My sister had positive results in going gluten-free (her skin cleared up for the first time in 30+ years) so my son wanted to try it. His skin almost completely cleared up. Now, however, just a trace of gluten sends his body into almost every reaction available (skin, gastro, depression and migraines... :( ) including itchy dry patches in several spots on his body (he also gets little red bumps that aren't typical dh, but we certainly know there is a cause and effect here!) Could it be that your son is just developing a dh reaction? It takes a while for the spots to clear on my son, but two weeks after going gluten-free, we'd seen a remarkable difference. As an added bonus, the acne he'd started having is almost completely gone now, too, just a random pimple now and then is all.

As an aside, ringworm is just a fungus with a disgusting name. Absolutely nothing to stress about. ;)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,914
    • Most Online (within 30 mins)
      7,748

    ChrisMary
    Newest Member
    ChrisMary
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      @klmgarland, My dermatitis herpetiformis didn't clear up until I became meticulous about cross contamination. I cut out gluten-free oats and all gluten-free foods, dairy and gluten-free rice. Additionally, getting the right amount of protein for my body weight helped significantly in my body's healing process ... along with supplementing with enough of all the vitamins and minerals ... especially Zinc and Magnesium. I went from 70kg to 82kg in a year. Protein with each meal 3 times daily, especially eggs at breakfast made the difference. I'm not sure whether iodine was a problem for me, but I can tolerate iodine no problem now. I'm off Dapsone and feel great. Not a sign of an itch. So there is hope. I'm not advocating for the use of Dapsone, but it can bring a huge amount of relief despite it's effect on red blood cells. The itch is so distracting and debilitating. I tried many times to get off it, it wasn't until I implemented the changes above and was consistent that I got off it. Dermatitis Herpetiformis is horrible, I wouldn't wish it on anyone.  
    • klmgarland
      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.