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Possible Celiac- College
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Hello,

I am a 20 year old college student, and I've been trying to figure out what's wrong with my stomach for about two years now. It started at the end of high school, with family doctors suggesting that my diarrhea was a result of academic stress. Later, I was treated for irritable bowel syndrome, with no results. About halfway through my second semester in college, I had lost about 10-15 pounds, and discovered that I had a kidney stone. Because I was scheduled to have a colonoscopy on the day that my stone was discovered, I was hospitalized. The colonoscopy showed nothing, but later test indicated that I possibly had crohn's disease. After nearly 8 months of taking pentasa for crohn's, I am still exhibiting many symptoms, and a recent set of blood tests showed nothing for crohn's. Earlier this year, for no apparent reason, I suddenly became unable to tolerate milk or most milk products. I have also noticed vomiting and diarrhea after consuming pasta. Also, I was struck by the discussion of "brain fog" as mental fogginess has plagued me increasingly for the last two years, becoming quite debilitating to my college studies. My girlfriend has noticed in me (and I agree) severe irritability and mood swings, usually accompanied with skin and eye irritation, all of whice surround the ingestion of food. Also, I had the enamel of a tooth crumble for basically no reason. I worked really hard to get to earn an academic scholarship to a really expensive college, and I am seeing it all thrown away, with peers and instructors accusing me of laziness (I find myself having to sleep all of the time). If anyone could tell me what they think the probability of this being Celiac's disease is, or if you could just give me some good advice, I'd really appreciate it. Thank you.

Kyle

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Kyle,

The symptoms you describe sounds very much like Celiac Disease. Have them test you for the antigliaden antibodies and they can give you a biopsy in your small intestine to confirm. If you are currently wheat free though, this will skew your test results and be difficult to diagnose. I think reading around this site has probably confirmed what you are already thinking.

Please don't give up on the doctors. Be vocal and don't let them tell you nothing is wrong. Many celiacs fall through the cracks, dr.'s want to treat us for all the symptoms we are producing and don't realize it's the disease that's the problem. You will feel better once you find out exactly what it is in your diet that is bothering you.

I come to this site often and learn something new all the time. I'll be thinking of you and hope that you find someone to help you very soon!

Blessings,

Lily

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Dear Kyle, welcome to the board. Two of my main symptoms were

brain fog and eyes which burned constantly, sometimes pulsating.

My MD, allergist, thyroid doc, all said allergy. My skin test were positive

for the usual trees, grass, mold and ragweed but NEG FOR WHEAT.

To make a long story short, I began to have GI symptoms, nausea,

diarrhea, pain in right side along with the eye problems. After a score of tests

my new GI doc gave me a diagnosis of IBS,GERD, and an allergy to wheat

Fast Forward to 11/03 I began a gluten-free diet which cleared up all of these symptoms

except the brain fog after eating. I read a post on the old board that brain fog

can be caused by ingesting milk, so I am now lactose free and doing much better!

P.S. I also got brain fog from a dental cleaning, now I make sure there products

are gluten-free. Hope this helps...

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Sounds classic to me! Whether or not you can afford to get tested, or whether or not your tests show you have it (there is sooooo much debate on whether they are accurate) it can't hurt to go gluten free for awhile at least and see how you feel. Not that that is easy to do, but it is much better than feeling like you do when there is a possible and doable solution. Good luck and let us know how things turn out!

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Kyle,

Please ask for testing before you try the gluten free diet. I am speaking from personal experience, it is much harder to get accurate testing, and also causes more damage to your body to go back on gluten after being gluten free. You have to be on a normal to high gluten diet for tests to be somewhat accurate, and even then sometimes the tests fail due to human error in the doctor, lab techs, etc. But don't be discouraged. You are on the right track and need testing done to confirm it. Ask for a complete celiac panel and have them include the total serum IgA.

God bless,

Mariann :)

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    • Positive Biopsy, Negative Blood Tests
      What?  Be sure that next endoscopy tests you for lymphoma (cancer) as well!   Seriously.  You need to do some research as your knowledge of celiac disease is lacking.  Did you fail the entire celiac panel?  Or did your doctor/insurance save cash and just order the very good (but does not catch all celiacs) TTG IgA?  You have a family history, a positive biopsy, what more do you need?  You do realize that this is not about just giving up gluten, don't you?  We just had a member join this year who was told years ago that her tests were "inconclusive" and that she now has suffered with lymphoma (cancer)? Ugh!   Endoscopy in 10 years?  Who would even wait 10 years?  This isn't colon cancer and polyps!   Are you talking about a colonoscopy?  Are you even sure you had an endoscopy?   Be sure you have your bones checked too.....and forget the breath.  You might not have any teeth and implants will be out since your bones will be compromised. Sorry, if I come on strong, but when I was diagnosed I had no tummy issues.  A few months later, my bones began breaking.  I was undiagnosed for a long time because of mis-informed doctors.  At least it was not stupidity on my part.   So, I urge you to research this disease more!  Hopefully you'll ward on another autoimmune disorder by remaining gluten free.  Find what celiac blood tests were actually taken!  Even if you do not think you have celiac disease, something has caused villi damage -- like a parasite, milk, or something......even more sinister! Good luck!  
    • Really, Really Foul Breath Post-glutening?
      In addition to eating gluten-free, I attribute the following to knocking out my bad breath once and for all: 1. SmartMouth Activated Mouthwash (this is what really did it for me!) 2. Flonase Nasal Spray 3. Dr. Tung's Tongue Scraper 4. The obviously brushing and flossing twice daily (goes without saying).    
    • Positive Biopsy, Negative Blood Tests
      I went in for an endoscopy to find out if something from my stomach/intestine was causing my bad breath.  A biopsy during that procedure revealed that I had Celiac.  I thought it was strange since I ate pizza, pasta, and other bread/gluten items almost every day without issue, so I decided to confirm the biopsy result with a blood test. I took the blood test twice (once on a high- and once on a low-gluten diet) and it came back negative both times.  I just assumed someone at the earlier biopsy lab must have messed up my analysis or accidently mistaken someone else's biopsy for mine, but after reading this thread it seems like my initial biopsy might have been correct all along. My doctor suggested doing another endoscopy, but I didn't want to foot the bill for that.  Also, my older brother has Celiac which was confirmed by both a biopsy and blood test. Eating less gluten did seem to help a little with my bad breath, but SmartMouth Activated Mouthwash along with Flonase nasal spray and a Dr. Tung's tongue scrapper really did the trick to solve the bad breath issue. I'm just assuming I have Celiac and eating "gluten conscious" until my next endoscopy in about 10 years. If that biopsy comes back positive again, then I'll be strictly gluten-free.  I'm just glad I don't have many symptoms.      
    • Anxiously waiting
      You might ask your doctor if they have a standby/wait list Kal.  Some do that and then they can fit in people if there are cancellations or no-shows.
    • Question on posting
      So we have a rule here against self promotion, however please send me the link and I will have a look at it.
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