Are Blood Tests Always Accurate For Celiac ?
Posted 07 March 2008 - 12:39 PM
I know one symptom in children is ADHD. He is so skinny and hyper. Very sensitive and loveing when he is in control of himself.
I have celiac and I know it is inherited.
Posted 07 March 2008 - 12:51 PM
I don't know how old those kids are. But those blood tests are notoriously unreliable in children under six, and are almost useless for babies and toddlers unless they are at death's door.
And in older kids and adults those tests are somewhat more reliable, but still far from perfect. A negative test can absolutely NEVER rule out celiac disease (and that goes for the biopsy as well).
My oldest grandson (now 5 1/2) looked like one of those starving third world children, just skin and bones until he was four years old. He was hyper, extremely emotional (crying for hours over little things, being inconsolable, and as a result treated like he was a wimp), and wanted to eat all day long. He would cry when my daughter would tell him that lunch (supper) was over and he wouldn't get any more until the next meal.
Finally last year she saw the light and put herself and her five kids on the gluten-free diet. What a difference! Little Ethan stopped being so emotional within days, and immediately started putting on weight. He is a very normal little kid now. Still slim, but not skin and bones. He is heavy! Before it would frighten me how light he was when I picked him up.
Eczema could be caused by dairy, gluten, nightshades, corn, eggs or other intolerances. If you think that your granddaughter's eczema is DH, you may be right, as you probably know what it looks like.
In her case, having a skin biopsy (taken BESIDE an active blister, my idiot dermatologist took mine right in the middle of the rash and then told me I definitely didn't have DH) would be a good idea. If it comes back positive, she would have an official celiac disease diagnosis. If it is negative, I would try the gluten-free diet anyway, was gluten can cause psoriasis and eczema as well as DH.
Maybe you could convince the parents to just try the gluten-free diet anyway? And if not, maybe they would be receptive to testing with Enterolab, which is much more sensitive than a blood test.
Intolerant to all lectins (including gluten), nightshades (potatoes, tomatoes, peppers, eggplant) and salicylates.
Asperger Syndrome, Tourette Syndrome, Addison's disease (adrenal insufficiency), hypothyroidism, fatigue syndrome, asthma
Posted 08 March 2008 - 01:17 AM
Posted 08 March 2008 - 02:27 AM
This just illustrates how unreliable testing can be when the people taking the tests don't know what they are doing.
my idiot dermatologist took mine right in the middle of the rash and then told me I definitely didn't have DH)
The same goes for blood tests and biopsy and tsting children in general.
Its not a black and white test even if sampled correctly. Its about levels above 'normal'.
Many things can influence the tests ... and like any other of this type is someone with a result of 19.5 sicker than someone with 20.5 if the 'normal high range is 20. Perhaps the same two people sampled a day later would have reversed results. Is one positive and the other negative?
Secondly, if you stick to the diet then the numbers SHOULD go down. This doesn't mean you are cured.. it means its under control ...
By the time many of us actually get a test ... we have already tried everything, celiac disease is like that! Its the last thing the Dr. tests for in many cases and many of us already noticed we feel bad eating wheat so we either cut it out or reduced it ourselves.
When you add to this the random element of how experienced the person taking the sample or blood is and lack of advice that we must eat gluten for a period before testing then it really adds a random element.
So its worth repeating Ursa
A negative test can absolutely NEVER rule out celiac disease
Posted 09 March 2008 - 02:29 PM
Posted 10 March 2008 - 05:16 AM
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