Can't Keep Any Food Down..
Posted 13 March 2008 - 01:47 PM
Thanks for the ideas and encouragement and believe me, THAT poor excuse for a doctor was history the moment we walked out the door. We have an appt with a new GI, unfortunately, not until 4/2. I just don't understand HOW she's going to get better without some kind of intervention. Her poor body. No villi, ulcer, lining of her stomach messed up. Thinking of the additional damage being done to her esophagus terrifies me. Call into the primary to call the GI & get her in asap. Thing is, when she was in the hospital, on IV fluid & meds, she was able by the 3/4th day to eat without vomiting.
Posted 13 March 2008 - 01:58 PM
Which ever doctor said that Celiac does not cause pain, needs a new profession. There are many,many here that can attest to that.
I am not sure that I can be of help, but have you checked your daughters meds to make sure that they are gluten free. In her fragile condition, the smallest amount of gluten can cause her pain and uncomfort. ANYTHING that she puts in her mouth or near her mouth should be clear of all gluten.
It may take sometime for your daughter to feel better. It took years for her to get to this point and it will take some diligence and time for her to recover.
I wish you the best.
Gluten Free - August 15, 2004
"Not all who wander are lost" - JRR Tolkien
Posted 13 March 2008 - 02:12 PM
Posted 13 March 2008 - 02:18 PM
The positive thing is that you finally found the cause for all your daughters trouble so don't give up now. I understand you are feeling anger and frustration....Who woulndn't...So, I've been gluten free for 3 months and I still have nausea. It is either
1) because my villy is so damaged that can't work properly (yet)
2)or because of my other intolerances
3)or because of a serious damage in the intestine, which can be found with a colonoscopy and I am going to make that
If it is because of the damaged villy then I guess it's just a matter of time
For the intolernces now..Very often people with celiac have other food intolerances as a side effect. Me, I am intolerant in 40 foods. Maybe you should check it out.....Lactose and casein intolerance are the most popular but there can be an intolerance in anything else (potato, tomato, beef etc) and there is a pretty good chance that this is causing your daughters problem.
You should of course find yourseves a doctor you can trust (hard thing to find, believe me I know..) and ask them to exclude all other possibilities. For example a problem in her gall blader (usual if you are celiac) can also cause vomiting. Or ulcer. Of course I am not a doctor. I am just giving you some ideas because I have the same problem and I am going to have that colonoscopy to find out what is finally wong with me...
I hope she will start feeling better really soon...
She is lucky to have a caring mother. Be strong.
Graves disease June 2008
Candida overgrowth / started treatment November 2008
Posted 13 March 2008 - 02:36 PM
I suggest you locate your Celiac local support group and ask if they have any recommendations for GIs. I did this when I was looking for a GI to do a routine screening colonoscopy. Also, check with the Universities in the area that have medical schools. The ones I looked at in Southern CA had a webpage for each doctor which listed their interests.
I hope your daughter gets well soon.
Gluten Free - 30 years
Posted 13 March 2008 - 03:04 PM
Positive Bloodwork Oct 1st 2007. Gluten-free 3 YEARS Oct 1st!
Dairy & Soy free since Dec 1st 2007.
Potato free since January 3rd 2008.
Remaining Nightshades since April 1st 2008. Back on September 2010.
Developed Rice & Tapioca & Corn Intolerances...
In a constant state of evolution... sending love!
Posted 15 March 2008 - 07:55 AM
Then I would wonder about baby foods in tiny amounts. I'd avoid any gluten-free substitutes for now. Make your own baby foods, and maybe just vegetables like peas or carrots, if she can keep that down add a little meat. Keep the spices out too. Salt may be okay though.
I've read others on the forum who had to do baby food equivalent for even six months. That's not me personally, but hopefully you'll get more responses.
In terms of allergy, this is a possibility too. I once met a young woman at my allergist's that had previously been hospitalized with vomiting and diarrhea that could not be stopped. Doctors could find nothing wrong; they finally called my allergist who is quite respected in the community. He found food allergies and was able to treat her using neutralizing drops (an approach which is not that common). She lives a normal life now, with several strict avoidances, but using neutralizing drops to help her be able to eat most other things.
She was reading an article in Prevention magazine about the neutralizing drop approach being fake and a placebo. She laughed out loud, and said, "if this is a placebo, keep it comin!"
Please keep us posted and give your daughter our well-wishes.
gluten-free since 4/22/07; SF since 7/07; 3/08 & 7/08 high sugar levels in stool (i.e. cannot break down carbs) digestive enzymes for carbs didn't help; 7/18/08 started SCD as prescribed by my physician (MD).
10/2000 dx LYME disease; 2008 clinical dx CELIAC; Other: hypothyroid, allergies, dupuytrens, high mercury levels
Posted 15 March 2008 - 08:23 AM
They thought I had this before they decided I had celiac. My GI was sooo messed up.
I hope she can see a better doctor soon and get some answers.
Posted 15 March 2008 - 09:09 AM
I suggest baked sweet potatoes, boiled organic chicken with some boiled carrots... some organic applesauce (found in the regular grocery) boiled eggs mashed up - if she does not have a problem with eggs.
You want to avoid for the time being:
Avoid All grains
dairy - all - no yogurt etc
You will also want to supplement with vitamins & minerals in liquid form that can be absorbed right away - & or shots...
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