Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

You Would Not Beleive What The Dermatologist Said To Me


little d

Recommended Posts

little d Enthusiast

Hi all

I went to the Dermatologist on Monday because I ate a Subway sandwhich last week and something else with a flour tortilla I just did not follow my diet at all last week, by Friday I started to get a rash that looks to me to be DH. It was on my face under my lower lip and then traveled to my upper lip and spread to my nose it all looked to me like DH with the little blister like. A couple of spots on my arm and fingers. I had decided to go to the same Dermatologist that I went to last year because I did not want to wait to get referralls and all that, because I wanted to go while the rash was active. It does itch, more when I touch it, it looks the same as it always does little blisters very itchy, scaly when it heels. I really did not want to go to the same woman she is only a Physicans Assistant but all the other doctors were booked up and I needed to see about this while I was off and try to have it somewhat heeled before I went to work on Thursday, so I reluctantanly went because the last time she only came in to talk to me for maybe 5 minutes. All I was able to say was I eat gluten free and then she went into a tangent about "I bet its hard to eat anything" kind of speach ashured me that I did not have DH, told me that we could test it blah blah blah and left the room gave me so stuff to put on my arm and said if it does not go away with in a few days to come back. Well I did not because when I get it, it will last for 3 weeks and I'm done until the next year. By the time I went to her last year I was in my 3rd week and it was pretty much over. So when I started with my rash this time I did not want to wait because it is on my face and I needed to get it seen for work. This time she came in I had told her I believe the rash is becuase of the food I ate, she told me don't eat that anymore and bascically told me that DH only "ONLY" happens on the outer elbows. Then she breifly talked about using differant lotions that is good prescripbe me something and gave me samples that does seem to be working a little it is Locoid Lipocream (hydrocortisone butyrate 0.1%) cream. She then proceeded to tell me that she did not think that it was DH once again it "only happens on the outer elbows" and she was going to leave the room. I had kept asking what is she going to call it then and she said something like an internal drug response contact dermatitis pretty much telling me it is something internal that I am reacting to. No really I wanted to say. I had to invite her to look closer to my face touch it and she reluctantly did, her comment was it looks like Poison Ivy but she knows that it is not. I asked her did she want to test it she said not on my face but she looked at my arm again that had a little spot and it did look blistered one new and the other one was older and a little crusty so she did a biopsy. I had not a clue on what the biopsy entailed never had one so I said sure, but was not able to take an healthy biopsy because they did not have the right solution for that one so I have to go back. Not looking forward to that. If the biopsy comes back normal then I won't go back. It is sad that I had to push for something, I know what is wrong with me, I really had to go for work because working in the health field people freak when they see stuff that is wrong especially were i work.

donna


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

I would find articles on DH from places like the NIH and Pubmed and print them out and bring them in with you on any visit to a derm. If this person was a Physicians assistant then I would print them out and send them with a short letter to the head of the derm group. She needs to be educated fast. Going over her head and pointing out her stupidity with peer reviewed articles may help the doctor that she is supposed to be working with educate her. If she didn't know for sure what was going on she should have called a doctor in to look. She is a PA not a doctor and it sounds like she may be forgetting that there are others in the office that may just know a bit more than she does.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Midwesteaglesfan replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      Going for upper endoscopy today

    2. - Scott Adams replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      Going for upper endoscopy today

    3. - Scott Adams replied to Cecile's topic in Related Issues & Disorders
      4

      Symptoms

    4. - Midwesteaglesfan replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      Going for upper endoscopy today

    5. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      My Journey Continues some notes

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,188
    • Most Online (within 30 mins)
      7,748

    TBH
    Newest Member
    TBH
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Midwesteaglesfan
      Her results only showed greater then 100 which over 10 is considered positive.  But American standards still recommend the endoscopy to confirm.  And the Dr explained to us both the European and American standards and asked us what we wanted to do.  We figured since it’s still recommended here, do the endoscopy so Insurance can’t argue anything in the future regarding it
    • Scott Adams
      My daughter also has it, and it's much better to discover it early. What was the positive level for her test? If she has over 10x that level, and you have celiac disease, I'm not sure if a biopsy is necessary to diagnose her. In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children!    
    • Scott Adams
      I forgot to mention that I also had to avoid eggs for a few years after initially going gluten-free, but could eat duck eggs without issues. Fresh duck eggs can often be found in Asian markets (be sure they are fresh eggs, because they sell various kinds of duck eggs that look the same like salted eggs, eggs with embryos inside, etc.), farmer's markets, and I was surprised to see Costco now selling fresh duck eggs.
    • Midwesteaglesfan
      UPDATE:  here I am a couple months past my full diagnosis and going gluten free.  I’ve been feeling a lot better.  More energy, joint pain has gone down a lot.  Haven’t really had the headaches and migraines I’ve had for years.   My daughter(age 17) has had some symptoms which we thought were something else, but with my diagnosis I said,  have the dr test her for celiacs.  Her antibodies came back as greater then 100.  So she is scheduled for her endoscopy and going to be joining me on this journey.
    • xxnonamexx
      I have increased my vitamin intake Vitamin B Complex plus 2 Thiamax, NeuroMag, Benfotiamine with breakfast. I continue reading and watching gluten free items that I eat. Breakfast is Bobs Redmill gluten-free oatmeal with Chobani zero sugar yogurt a banana and blueberries. Lunch since im at a deli gluten-free is hard to come by so I stick with turkey with gluten-free Promise bread. Dinner varies like gluten-free pasta, tacos, chicken, sausage, meat etc. rice or take out from gluten-free places. I have decided to stay away from gluten-free pizza as I feel I felt weird with it unless its store bought frozen. I am going to try to make my own gluten-free bread, Bagels. I have been good with baking gluten-free treats like cookies, muffins. Snacks if its not fruit, veggies I grab a protein bar or chocolate guilty pleasure reeses, hersheys, York PP. I am going to start to use my fitness pal app to track what I eat and note when I feel off to see if I can pinpoint if a trend of a certain gluten-free food is a culprit. I noticed once in a while I feel a little bloated, gassy that I think is from the pizza so I am going to avoid it and continue narrowing it down. I have been doing very well and I have learned even if you think you are doing everything 100% gluten-free eating it can sneak in without you knowing. This year is more traveling which im afraid of but have already looked into gluten-free places in Nashville which they have and back to Aruba I went last year and have the gluten-free places already selected. Most restaurants I have been to have been very helpful with what to stay away from to avoid CC. If a place states they don't have any gluten-free the I stick with a salad or when I took my kids to breakfast as much as I miss the breakfast this place serves I played it safe with yogurt and a fruit bowl so at least my kids were happy to go there again. Local farmers market has great gluten-free items that I treat myself to like different types of breads, baked goods. My journey continues...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.