Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

You Would Not Beleive What The Dermatologist Said To Me


little d

Recommended Posts

little d Enthusiast

Hi all

I went to the Dermatologist on Monday because I ate a Subway sandwhich last week and something else with a flour tortilla I just did not follow my diet at all last week, by Friday I started to get a rash that looks to me to be DH. It was on my face under my lower lip and then traveled to my upper lip and spread to my nose it all looked to me like DH with the little blister like. A couple of spots on my arm and fingers. I had decided to go to the same Dermatologist that I went to last year because I did not want to wait to get referralls and all that, because I wanted to go while the rash was active. It does itch, more when I touch it, it looks the same as it always does little blisters very itchy, scaly when it heels. I really did not want to go to the same woman she is only a Physicans Assistant but all the other doctors were booked up and I needed to see about this while I was off and try to have it somewhat heeled before I went to work on Thursday, so I reluctantanly went because the last time she only came in to talk to me for maybe 5 minutes. All I was able to say was I eat gluten free and then she went into a tangent about "I bet its hard to eat anything" kind of speach ashured me that I did not have DH, told me that we could test it blah blah blah and left the room gave me so stuff to put on my arm and said if it does not go away with in a few days to come back. Well I did not because when I get it, it will last for 3 weeks and I'm done until the next year. By the time I went to her last year I was in my 3rd week and it was pretty much over. So when I started with my rash this time I did not want to wait because it is on my face and I needed to get it seen for work. This time she came in I had told her I believe the rash is becuase of the food I ate, she told me don't eat that anymore and bascically told me that DH only "ONLY" happens on the outer elbows. Then she breifly talked about using differant lotions that is good prescripbe me something and gave me samples that does seem to be working a little it is Locoid Lipocream (hydrocortisone butyrate 0.1%) cream. She then proceeded to tell me that she did not think that it was DH once again it "only happens on the outer elbows" and she was going to leave the room. I had kept asking what is she going to call it then and she said something like an internal drug response contact dermatitis pretty much telling me it is something internal that I am reacting to. No really I wanted to say. I had to invite her to look closer to my face touch it and she reluctantly did, her comment was it looks like Poison Ivy but she knows that it is not. I asked her did she want to test it she said not on my face but she looked at my arm again that had a little spot and it did look blistered one new and the other one was older and a little crusty so she did a biopsy. I had not a clue on what the biopsy entailed never had one so I said sure, but was not able to take an healthy biopsy because they did not have the right solution for that one so I have to go back. Not looking forward to that. If the biopsy comes back normal then I won't go back. It is sad that I had to push for something, I know what is wrong with me, I really had to go for work because working in the health field people freak when they see stuff that is wrong especially were i work.

donna


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

I would find articles on DH from places like the NIH and Pubmed and print them out and bring them in with you on any visit to a derm. If this person was a Physicians assistant then I would print them out and send them with a short letter to the head of the derm group. She needs to be educated fast. Going over her head and pointing out her stupidity with peer reviewed articles may help the doctor that she is supposed to be working with educate her. If she didn't know for sure what was going on she should have called a doctor in to look. She is a PA not a doctor and it sounds like she may be forgetting that there are others in the office that may just know a bit more than she does.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      Rectal pain

    2. - Rogol72 replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Guinness, can you drink it?

    3. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      6

      Related issues

    4. - Colleen H posted a topic in Coping with Celiac Disease
      0

      Brain fog

    5. - Clear2me replied to Clear2me's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Gluten free nuts


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,276
    • Most Online (within 30 mins)
      7,748

    Sandra Hawn
    Newest Member
    Sandra Hawn
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      When I have had what I think are episodes of this (I've never had a formal diagnosis for PF) it seems to be triggered by bloating caused by something I've eaten - a friend had an episode of this after eating too many apples, for me corn and rice cakes seemed to give me IBS and trigger this.  I am not a medical person but it seemed like the extra pressure down there perhaps added pressure to already sensitised pelvic and rectal muscles. Coeliacs can suffer from bloating when they are first diagnosed due to the inability to digest food properly.  Lactose for me caused a lot of bloating and when I came off it temporarily after diagnosis it helped reduce bloating.  Iron supplements and the timing of taking them also caused discomfort and I had to experiment a bit with type and timing before my gut felt comfortable.   Maybe something to think about?   Some coeliacs suffer from constipation - again, just a thought, but perhaps if you had issues with that it might be a contributor.
    • Rogol72
      At a family wedding in Italy last year I was drinking gluten free Peroni which was fine for me. From the Daura Damn website ... " Our guarantee less than 3ppm: each batch is analyzed and certified by the CSIC using the R5 Competitive ELISA test before hitting the market. This way, we ensure that its gluten content is always below 3ppm "
    • Mari
      Hi jmartes, I brought up doTerra's website and see that they do have many supplements, offer  support and help. And using their organic products has been helpful. and yet you are not able to work enough to support yourself when, if you were healtht, you could work for another 20 years. It does not seem that they offer a program to follow and instead are offering supplements for your symptoms. This has helped you but you are not able to work very much.  The Programs I have seen  online usually have 3 parts. The first is a Parasite cleanse. The 2nd is the Kidney cleanse and the  3rd is a Liver cleanse and gallbladder cleanse. You need to doall these cleanses to have your whole body functioning well. I can only reccommend the program I gave you because that is the one I used and still do. (drclark.net)  When I see a newprovider and tell I have Celiacs and they look skeptical I tell them that when I am gluttoned the reaction happens 8 or more hours later with intestinal painful cramping followed by diarrhea. Providers are willing to accept tha I probably have Celiacs and are more likely order tests such as vitamin levels. Is this what happens if you eat only a small amount of Gluten? You mentioned going to Mayors. 20 years ago many Dr.s wanted to include a celiac screening as a standard test so that more people eould diagnosed and not become disabled. It did not happen but the Federal levgislature did pass a law so that Celiacs could claim deductions for the gluten free food they bought. What were you going to ask the Mayors to do?
    • Colleen H
      How bad can this get ?? Does it go away??  How long ? Thank you 
    • Clear2me
      Thank you for all the excellent information. I moved from Wyoming to California. May be its where I am located but So far none of the Costco Kirkland brand I have looked at is labeled gluten free. Same with the Sam's Members Mark. The Kirkland nuts you mention all say they are processed in a plant that processes wheat.  I am going to keep checking. Thank you. The Azure Market looks promising 😁 Take care S
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.