How Can I Be More Supportive Of My Husband?
Posted 26 January 2005 - 09:55 PM
I am assuming and have been told that his body is still detoxing and this is normal. What extra things can I do to help him along and about how long would you think this is going to last? I wish that I could get him to join in here and read for himself your stories. I do tell him and read him things when they are relevant to his experiences. It encourages him and gives him the needed justification he has searched for, but it's not the same as being involved and sort of getting to know the group...if that makes any sense to you all.
Well, I'm starting to do my rambling bit and it's late so I'd better hop off of here and get some rest.
Thanks for listening and any extra tips you could share will be received warmly
Posted 27 January 2005 - 02:10 AM
Long Island, NY
Double DQ1, subtype 6
We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!
"The calm river of your life approaches the rocky chute of the rapids - flow on through. You are the same water. The rocks cannot hurt you. Remember, now and then, that you are the water and not the boat. Flow on!
Posted 27 January 2005 - 03:11 AM
I've had a similar history as your husband, problems for about 10 years, unexplained rashes, no clear diagnoses. I've switched primary care doctors but my old one told me I did have have celiac and to begin eating gluten again (I had gone off it for about 3 weeks at that point and told him how much better I was feeling). I did end up paying for EntroLab genetic testing which came back that I carry to 2 main genes for celiac, so chances are pretty good I have gluten problems. But one doesn't need to do that or spend the money in my opinion... with the symptoms your family has, going gluten-free is the best way so find out.
That being said, I've been gluten-free since about Sept. 2004 and I feel 90% better then I have in years, however I still do have some symptoms and I'm beginning to think that I have developed other food issues too. It seems like when I eat soy I get some problems. So I have just taken the stance that its going to take a long while for me to figure it all out and that it will be an adventure. (my cup is usually half full)
Every time I go back to the basics, chicken, veggies and fruit, virtually all my symptoms go away, so I keep going back to that diet and then trying to add things, if they bother me, I try and avoid them. I know I'll figure it out, eventually.
Also I've been told that we have to expect that if we had symptoms for say.... 10 years, its going to take a while to get it all out of our system. Again from reading posts here, some feel great in a matter of a couple of months, some have taken a year... but for me the 90% better I feel is a godsend. I'm able to live my life so much more normally now.
So all I can say is be very aware as to what other foods seem to bother your family and see if they get better when you eliminate them. It takes time and can be frustrating but you are on the way to better health.
Posted 28 January 2005 - 05:27 PM
Posted 28 January 2005 - 06:12 PM
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