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33 replies to this topic
#31
Guest_jhmom_*
Guest_jhmom_*
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- Guests
Posted 21 February 2005 - 07:46 AM
celiac3270 I am glad you are back and on the road to a full recovery!!!!!
Take care of yourself and get plenty of rest!
Take care of yourself and get plenty of rest!
#32
FaithInScienceToo
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- Advanced Members
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- 343 posts
Advanced Community Member
Posted 21 February 2005 - 01:11 PM
No more tangled intestines...
Yipee!
Welcome back, celiac3270 -
Gina
Yipee!
Welcome back, celiac3270 -
Gina
"Get busy living
or get busy dying."
From: The Shawshank Redemption
--------------------------------------------------------------
gluten-free since Jan 1 '05
Positive response to diet within days, felt 'alive again' within 2 weeks
Feb 22 '05:
Diagnosed "Celiac Sprue, and IBS" by a GI doc, Dr. David Lin of Danville, CA
via blood testing 53 days after I began the gluten-free diet on my own:
Test results at 53 days POST going gluten-free were:
Gliadin AB IgA = 29.9
Since 30+ = positive for Celiac Disease when ingesting gluten, my doc
diagnosed me with Celiac Sprue then and there.
Gliadin AB IgG was 5.6 at that point
-------------------------------------------
Endoscopy with biopsies, AND colonoscopy with biopsies were done,
only to rule out other possible GI problems (especially intestinal
lymphoma) - My doctor told me the results indicated "no current damage
found" - and that as long as I stay gluten-free, I don't need another
biopsy for ten years.
Follow-up blood testing was done about one year later, by the same
Gastro doc, in Nov '05:
Gliadin AB IgA =26, Gliadin AB IgG <1
Blood testing done again by him, 5 months later (March '06)
He then told me my tests results were back to normal, and "Keep up the
good work! You can't argue with success!" :-)
I now see him one time per year for routine testing to make sure I am
staying gluten-free.
------------------------------------------------------------------------------------------
ADDTIONALLY:
I was also diagnosed as positive for antibodies and autoimmune
response to gliadin by Enterolab, via stool specimen taken 56 days
gluten-free
and I have one of the two genes that 'cause' Celiac Disease:
"HLA-DQ8," via Enterolabs cheek cell test kit
---------------------------------------------------------------------
I began a COMPLETE 'Gluten-free Casein-free' diet in Nov '05, due to:
"positive" for casein antibodies from Enterolab (in Feb '05)
and
"positive" for casein IgG (Elisa) via York Labs' finger-prick blood
test, Sept '05
and continued 'stomach pains,' although nothing compared to before
going gluten-free....
UPDATE: ALL remaining symptoms disappeared within weeks of going gluten-free&CF!
**********************
My PAST illnesses I believe are attributable to Untreated Celiac Disease:
Recurrent ear and throat infections in childhood
Frequent childhood stomach aches, underweight, picky eater
Tooth enamel problems/excessive cavities in childhood
Diagnosed in 20's with non-allergic rhinitis
Two spontaneous abortions (childless)
IBS diagnosis at age 28 (all better post going gluten-free and casein-free)
["Horrible" digestive problems from ages 32-47 - excess gas,
diarrhea gone post gluten-free!]
Reflux diagnosis at age 35 ('reflux' gone post gluten-free)
ADHD diagnosis at age 38 and at age 48 (not as bad with Gluten-free Casein-free diet)
Broke elbow in 2 places, age 39
Osteopenia diagnosed at age 44 (bone scan revealed thinning of spine -
taking Calcium and Vit D now)
Fibromyalgia diagnosis at age 40 (fatigue and pain all gone post gluten-free!)
Minor depression with anxiety diagnosed at age 42 (taking Paxil)
Skin cancer - squamous at age 43 and pre-melanoma at age 45
Adult acne (this, too, went away, but only after going dairy-free)
Topical dermatitis (so bad I needed steroid shots) diagnosed at age 46
(That's gone now, too!)
Excessive bruising of skin began at age 45:
I was told by derm doc AND family physician "That's just thin, aging
skin, nothing you can do about that" (GUESS WHAT?! ...NO unusual
bruising POST going gluten-free! I can now wear skirts and shorts
again!)
SO many years of being sick...
Hopefully, others will benefit from Science, and the increasing media
attention being given to Celiac Disease and gluten-based illnesses,
and will not have to go through what I, and others on here, have had
to go through.
or get busy dying."
From: The Shawshank Redemption
--------------------------------------------------------------
gluten-free since Jan 1 '05
Positive response to diet within days, felt 'alive again' within 2 weeks
Feb 22 '05:
Diagnosed "Celiac Sprue, and IBS" by a GI doc, Dr. David Lin of Danville, CA
via blood testing 53 days after I began the gluten-free diet on my own:
Test results at 53 days POST going gluten-free were:
Gliadin AB IgA = 29.9
Since 30+ = positive for Celiac Disease when ingesting gluten, my doc
diagnosed me with Celiac Sprue then and there.
Gliadin AB IgG was 5.6 at that point
-------------------------------------------
Endoscopy with biopsies, AND colonoscopy with biopsies were done,
only to rule out other possible GI problems (especially intestinal
lymphoma) - My doctor told me the results indicated "no current damage
found" - and that as long as I stay gluten-free, I don't need another
biopsy for ten years.
Follow-up blood testing was done about one year later, by the same
Gastro doc, in Nov '05:
Gliadin AB IgA =26, Gliadin AB IgG <1
Blood testing done again by him, 5 months later (March '06)
He then told me my tests results were back to normal, and "Keep up the
good work! You can't argue with success!" :-)
I now see him one time per year for routine testing to make sure I am
staying gluten-free.
------------------------------------------------------------------------------------------
ADDTIONALLY:
I was also diagnosed as positive for antibodies and autoimmune
response to gliadin by Enterolab, via stool specimen taken 56 days
gluten-free
and I have one of the two genes that 'cause' Celiac Disease:
"HLA-DQ8," via Enterolabs cheek cell test kit
---------------------------------------------------------------------
I began a COMPLETE 'Gluten-free Casein-free' diet in Nov '05, due to:
"positive" for casein antibodies from Enterolab (in Feb '05)
and
"positive" for casein IgG (Elisa) via York Labs' finger-prick blood
test, Sept '05
and continued 'stomach pains,' although nothing compared to before
going gluten-free....
UPDATE: ALL remaining symptoms disappeared within weeks of going gluten-free&CF!
**********************
My PAST illnesses I believe are attributable to Untreated Celiac Disease:
Recurrent ear and throat infections in childhood
Frequent childhood stomach aches, underweight, picky eater
Tooth enamel problems/excessive cavities in childhood
Diagnosed in 20's with non-allergic rhinitis
Two spontaneous abortions (childless)
IBS diagnosis at age 28 (all better post going gluten-free and casein-free)
["Horrible" digestive problems from ages 32-47 - excess gas,
diarrhea gone post gluten-free!]
Reflux diagnosis at age 35 ('reflux' gone post gluten-free)
ADHD diagnosis at age 38 and at age 48 (not as bad with Gluten-free Casein-free diet)
Broke elbow in 2 places, age 39
Osteopenia diagnosed at age 44 (bone scan revealed thinning of spine -
taking Calcium and Vit D now)
Fibromyalgia diagnosis at age 40 (fatigue and pain all gone post gluten-free!)
Minor depression with anxiety diagnosed at age 42 (taking Paxil)
Skin cancer - squamous at age 43 and pre-melanoma at age 45
Adult acne (this, too, went away, but only after going dairy-free)
Topical dermatitis (so bad I needed steroid shots) diagnosed at age 46
(That's gone now, too!)
Excessive bruising of skin began at age 45:
I was told by derm doc AND family physician "That's just thin, aging
skin, nothing you can do about that" (GUESS WHAT?! ...NO unusual
bruising POST going gluten-free! I can now wear skirts and shorts
again!)
SO many years of being sick...
Hopefully, others will benefit from Science, and the increasing media
attention being given to Celiac Disease and gluten-based illnesses,
and will not have to go through what I, and others on here, have had
to go through.
#33
ryebaby0
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- Advanced Members
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- 502 posts
Advanced Community Member
Posted 22 February 2005 - 06:23 AM
Awwwww... I feel bad, I haven't been around and didn't know! I'm so glad you are home. FYI -- if you (or anyone else) ever needs any kind of ng tube again (let's hope NOT) ask the nurses for chloroseptic when they place it, and for as long as you have it. Doesn't remove the pain entirely, but for some people it can help take the edge off.
Let's pray this is going to make the difference for you, after so much searching for help! You're the man!
Joanna
Let's pray this is going to make the difference for you, after so much searching for help! You're the man!
Joanna
Mom/wife to celiacs dx 12/03 and 12/04
Success is never final and failure never fatal. It's courage that counts -George Tilton
Success is never final and failure never fatal. It's courage that counts -George Tilton
#34
kactuskandee
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- Advanced Members
-
- 130 posts
Advanced Community Member
Posted 22 February 2005 - 08:47 PM
Welcome Back celiac3270,
We missed you................we need you around so rest and relax and get well soon. Thanks for sharing your experience with us.....but then you are always sharing your knowledge that is above and beyond our expectations and your chronological age.
You had quite and ordeal but we know you were in good hands and that all this will contribute to you feeling much better in the long run.
You have the best attitude I've ever seen!!!
Kandee
We missed you................we need you around so rest and relax and get well soon. Thanks for sharing your experience with us.....but then you are always sharing your knowledge that is above and beyond our expectations and your chronological age.
You had quite and ordeal but we know you were in good hands and that all this will contribute to you feeling much better in the long run.
You have the best attitude I've ever seen!!!
Kandee
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