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Family And Friends...

Lauriann

By Lauriann
in Coping with Celiac Disease

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Lauriann Rookie
Lauriann
Posted

Hello,

I have been having a hard time with family and friends with things being gluten free. When I was first diagnosed my family didnt believe there was such a thing as Celiac Disease...my family actually googled the term to see if I made it up...that hurt a whole lot..they dont understand that a simple thing as a bread crumb can make me ill for days...I have gotten into arguments that I just dont have a simple food allergy...but I cant seem to get it across to them..they will embarrass me as family socials by calling me silly yak girl or arent you the one who has silicone disease... I have a brother was comes by often whom I love dearly...he brings things to the house to eat when I tell him those things have gluten in them I cant eat it...he tells me to stop just eat it what harm can it really do...

When family comes over I try to tell them that my kitchen is gluten free please dont get crumbs or contimanted it and no one listens to me...I find I spend alot of time crying over this...I have two teenagers at home whom often forget about the contamination also...but they are learning after I become sick for days...

I just wanted to vent and see if anyone else goes through the same with family...Sometimes I think this is bigger than I can handle...

Lauri

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ShayFL Enthusiast
ShayFL
Posted

Im sorry your family is not being very compassionate or understanding. You may want to plan a visit to your doctor and take your Mom along so that she can hear it from an M.D. This might make it more of a reality for her and hopefully she will then spread that to others in your family.

Yenni Enthusiast
Yenni
Posted

Oh, that is horrible. I have had a hard time with my husbands family. We used to live with them, but have luckily bought our own little place and gotten out of there. I know it can hurt real bad with family like that.

Sounds like they need to get educated about the situation. ShayFL's suggestion sounds like a good one.

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      - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      Small Bowel Resection 12 inches

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    2. Ello
      - Ello replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      Small Bowel Resection 12 inches

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    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      Small Bowel Resection 12 inches

      By Ello · Posted

      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Small Bowel Resection 12 inches

      By Ello · Posted

      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

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