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Looking For The Ideal Info To Send To My Family


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#1 bean

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Posted 19 May 2005 - 01:39 PM

Hello :)

My doctor wants me to inform all of my first and second degree relatives that I have been diagnosed with celiac disease so that they can get tested. I really don't want to call all of them though :blink: So... I was thinking that I would just print up some info and mail it to everyone.

Can anyone recommend a really comprehensive but easy to understand article? I don't want it to be too simple because I've already had a few relatives saying things like, "Oh, well I can eat wheat and I don't feel any different so I don't think I've got it" (when they have thyroid disease, bipolar disorders, diabetes, etc.) I'd like to find an article that says something like, "Look! You might have it and not have the typical GI symptoms! It's worth being tested or else your asymptomatic condition could turn into ..."

Know what I mean? :huh:

I have a whole bunch of links, but they are all either too long or too complicated or too simple. I'd love to see some suggestions, particularly if you've used a specific article to introduce celiac disease to the people in *your* life.

Thanks!
- Michelle :wub:
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~~~~~~~~~~~~~~~~~~~~~

Michelle :)

Positive blood tests 4/29/05 (tTG & IgA)
*Osteoporosis (at 32!)
*Heartburn/Reflux (*ouch!*)
*Lifelong battle w/depression
*Dental enamel didn't form right when I was little (cavities cavities cavities)
*Neuropsych analysis lists all sorts of learning disabilities - which may be attributed to brain injury from an old accident or may be from celiac, who knows!

Had biopsy May 11th, 2005 - villi are FLAT! :(
gluten-free since May 11th :)

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#2 frenchiemama

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Posted 19 May 2005 - 05:11 PM

Well, in my family we have a pretty good grapevine so I only told about 4 people and the rest took care of itself. I sent the articles from csaceliacs because I liked the way they explained things. Then my aunt (who is the head of a library at a medical school) inundated the whole family with about a million med journal articles.
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Carolyn


"When the going gets weird, the weird turn pro. "
- Hunter S. Thompson

#3 Carriefaith

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Posted 23 May 2005 - 12:35 PM

Here are some links:
http://www.wrongdiag...sease/intro.htm
Symptoms: http://www.wrongdiag...se/symptoms.htm
Complications: http://www.wrongdiag...ase/complic.htm
Statistics: http://www.wrongdiag...sease/stats.htm

I think there is enough info here. Hope this is what you're looking for!
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Carrie Faith

Diagnosed with Celiac Disease in March 2004
Postitive tTg Blood Test, December 2003
Positive Biopsy, March 3, 2004


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