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This past week I have read almost all the threads through this whole message board. It is just amazing the symptoms and problems associated with Celiac disease. I don't remember where I read some of them but I associate with so much of the depression/mood disorders. One gal mentioned that when she eats gluten, she is a "b" to work with and that she doesn't really care about her self worth and different things like that. This past week I think I got some gluten somewhere. We attended the Bucking HOrse Sale and I purchased a polish dog with no bun, but the mustard and ketchup were off brands and I really didn't realize that there is a difference in those condiments. Anyway, when I put gluten in my body I just get depressed, have no self confidence, my insides get all twisted up, my bowels are all messed up and I just don't care about anything. I get so overwhelmed with my life and problems I just do not know what to do with myself.

Under my name for this message board I am listed as "advanced member" and I think that is so untrue, because I am learning just as much as the rest of you guys.

Thank you to all of you that respond to my messages, I appreciate all of your help and understanding when I get into one of these funks.

BAMBAM

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Hi -

I'm a newbie - just recently diagnosed. I agree that the depression/mood symptoms that I found others were experiencing were a surprise to me. It made me feel so much better about myself - because I have been dealing with depression/moodiness for some time. It's so much easier to know and understand that the physical problems are real and related to a physical cause...it's harder to understand the emotional issues that happen; it's hard not to blame yourself if you are feeling down. I've been gluten free (or trying to be) for 3 weeks now - and I definitely feel a difference in my mood - not all of the time - but on an average I feel more 'upbeat'. I think part of the issue for me is that I felt like I had lost control of my own body - and that's a stress on the mind. Now I feel like I know what the issue is and I am back in control; I can deal with this. :rolleyes:

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Well, then you probably read my comments about three weeks ago where I was totally falling apart. I hadn't been that depressed in 10 years and was so worried that mythological "bell jar" was decending on me, I was freaked out! Turned out it was a two day emotional breakdown due to a miniscule amount of gluten. I still can't believe any of it, looking back, but I was sure I was never going to make it out of that one in one piece.

It affects my gut, my mind, my joints, my head (migraines), and my attitude. What an amazingly horrible thing gluten is. Whenever I'm in the store looking at the alternate flours and I see the package of "Vital Wheat Gluten" I have to say out loud to anyone around who might hear, "EWWW look! It's the not-so-vital wheat gluten! Yuck!"

:D

Stephanie

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I do have to agree with celiac3270 on this one. Being an "advanced member" does not refer to anyone's knowledge , just his number of posts.

Personally, I think the labeling could be done away with as what is refers to has no inpact on what the poster has to say.

Otherwise, I hope BAMBAM is feeling much better!

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For me, the depression is the biggest symptom I have when I eat gluten. The crazy thing is - I just found this out :blink: Throughout my life I have struggled with depression/anxiety but didn't think there was any real reason for it (besides going through some rough times and having some difficult memories). But when I did the "gluten challenge" before my endoscopy, I was a total wreck! I cried soooo much and couldn't deal with anything. I felt helpless and confused and alone and worthless. Because I was eating gluten at every meal, I am absolutely positive that it is what caused these emotional problems.

Now I am happy though ;) Because *now* I know what causes it (or at least intensifies it) and *now* I know how to protect myself from these emotional rollercoasters. Yay! :D

I am also proud of myself for having survived this far - before I had any control over what was happening in my mind. I think all of us who have dealt with this "symptom" and stayed alive for as long as we have before finding out what the cause was *should* be proud of ourselves. I have so much compassion for all of you who have gone through this pain.

For me it has been lifelong - I was on anti-depressants for the first time when I was 15 years old. I tried to kill myself when I was 16. I've been on Paxil, Prozac, Wellbutrin, Effexor, and Imipramine when I was young. I've done hypnosis, therapy, support groups, etc. And now I find out that it's gluten :rolleyes: Life is wild, isn't it?

Anyway - best wishes to all of you who struggle emotionally because of celiac disease. My heart is with you.

- Michelle :wub:

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When I get glutened, I get so depressed, I start thinking about suicide. No medicine can stop that, I have to work through it and work harder not to get glutened again. I also am perimenopausal, and my hormone fluctuations cause severe depression. I am supposed to be on meds for that, but $73 a month with no insurance is $71 more than I can afford, so I muddle through. I find myself using comfort foods (most specifically, chocolate) to get through. I go for a "mental evaluation" on June 9. I don't think it will tell me anything that I don't already know.

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Yep, those gluten blues are ... "darn annoying", to put it lightly. I generally - during those times, and the nasty hormonal bits of the month - just try to turn off the "thinking about things" bit of my brain. Way harder done than said, I know, but I try to just focus on getting through the following few days before making much of anything of a decision.

It reminds me of... forgot their name... one of our member's frequent quotes "this too shall pass"

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    • That uncle bens 10minute brown rice with the gluten free table on the box, i been going through hell these last few days, this shit is Not gluten free its contaminated 
    • Mnoosh,    Can you give us a link to the article you read about the increased risk after being diagnosed and maintaining a strict gluten-free diet??       IMO,   You are over reacting to a misprint or most likely a misread article.
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    • Take a deep breath and calm down!    The incidence of cancer with Celiac Disease is rare.......it can happen but the vast majority of people never have that experience.  You may have somewhat enlarged lymph nodes due to inflammation from undiagnosed Celiac but that will all calm down and go away once you get going on the diet.  Believe me, there are many of us that have things happen during the diagnosis and early recovery period and everything turned out just fine.  There is an elevated risk for some cancers with Celiac but that risk goes back to that of the general population after a couple of years on the gluten-free diet. I cannot remember the exact time frame but it is somewhere between 2-4 years, I think.  So many of us went years without a diagnosis and when it was all figured out, we have gone on to be healthy with little complications.  Really...do  not worry about this.  Concentrate on learning all the ins and outs of this disease and how to live gluten free happily.  We are here to help you and guess what? The diet is not as bad as some make it out to be. Many things can be made gluten free and are every bit as good as their gluten counterparts. The diet may not be convenient but it is not hard. I would not lie to you!   
    • Well....one common symptom that most celiacs have when they are diagnosed (or undiagnosed) is anxiety.  So, there is a risk of cancers, but science has demonstrated that that risk goes down on a gluten free diet (if you have celiac disease).  In goes down to the same risk as those without celiac disease.   I kind of was a basket case.  I drive my family a bit crazy because I was anxious.  I felt a bit stupid too.  I guess I had a little brain fog going on too.  All that resolved after I healed. Welcome to the fourum.  Read our Newbie 101 thread under "Coping" (pinned at the top of the page) and learn about hidden sources of gluten and cross contamination.  I think most of us do not worry about cancer. We mourn the freedom to eat anything anywhere!   I did not have swollen lymph nodes, but I am sure others have and they did not have cancer.  Hopefully, they will chime in and set your mind at ease.  If not, you can search for "lymph nodes" at the top of the page (little magnifying glass).  There are lots of members with the same issue!  
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