Posted 07 March 2004 - 11:36 AM
My question to everyone is that my 9 year old daughter tested postive on 2 of 3 antibodies on her Celiac Panal. We had a GI doctor peform her endoscopy last week. He said that she did have enflamed and enlarged intestines but NOT to change her diet until the biopsy comes back. My question is that the GI doctor said that visually he could see she had Gastro Duodenitis. In laymens terms that means ulcers or pre-ulcers in the upper intestine/lower stomach. Has anyone else had this problem before they were diagnosied with Celiac. I guess as a mom I just worry about multiple ulcers. We were given medication to begin immediately and just like everyone else the multiple days of waiting for her results.
Posted 08 March 2004 - 10:19 AM
Word of Caution:the biopsy is not 100% true!!Human error and many other things effect it.
Posted 10 March 2004 - 06:40 PM
First, Gastro Duodenitis is not an ulcer. It is an inflamation of the stomach and the first portion of the small intestine called the Duodenum. While I am not familiar with inflamation of the stomach being related to Celiac (it might be, I've just never heard of it - I'm not a doctor), inflamation of the Duodenum certainly can be. However, several other things can cause these inflamations, including ulcers.
Your doctor might be concerned that this inflamation is being caused by early ulcerations and that is why he prescribed the medications for that. I feel he is correct in advising you to wait for the biopsy results before changing her diet.
Posted 12 March 2004 - 07:45 PM
Posted 12 March 2004 - 08:33 PM
Scopes> I have a question about those: I had a colonoscopy, CT scan of my belly, and a scope and all were normal. The CT picked up an ovarian cyst, but the colonoscopy was normal the bipopsies from there were normal, and the endo and those biopsies were normal. An irritated spot was found, but the GI doc said that was from all the throwing up I'd been doing (related to symptoms that were later found to be a dairy allergy).
He also said it could be the start of an ulcer, but seemed certain it was just related to the throwing up. Would it hurt to contact him about celiac? I"ve never been "offically" diagnosed, just told that there's a good chance, given my symptoms, that I'm intolerant to gluten/wheat by an allergy doc.
Posted 13 March 2004 - 09:48 AM
As for your daughter being a rarity because she was not diagnosed until 9, I don't agree. I was diagnosed at age 44! Also, there are two requirements for Celiac Disease - the gene and a trigger. The gene is identified, the trigger is not. Not everyone who has the gene will develop Celiac because they do not ever encounter the trigger. It could very well be that your daughter did not encounter the trigger until relatively recently. I know this does not help you now, I'm just trying to clear some of the fog again!
Kel, it is possible to have Celiac Disease and not have it detected through the biopsies, either because of the biopsies taken from the wrong places, or from an inexperienced pathologist examining the biopsies. However, if you have been gluten free since January because of intolerance and/or alergy, depending on when the biopsies were taken, this could make it more difficult to determine Celiac. If the biopsies were recent, there may have been sufficient healing since then to make the tell tale villous atrophy normally associated with Celiac Disease undetectable.
Having said (all of!) that, if you are gluten free anyway, you will know on your own whether or not you have Celiac by staying on the diet a few more months. If your symptoms go away, you probably have it. The only alternative would be to go back to eating gluten for several months and then get the Celiac panel blood tests and if they are positive, repeat the endoscopic biopsies. I know that's not what you would like to hear, but it is the unfortunate reality.
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