Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Gallbladder Malfunctioning/inertia
0

4 posts in this topic

I had to have my gallbladder removed because it was malfunctioning. It was not contracting to squeeze out bile. My ejection rate was only 8% based on the Hida scan. I am just wondering how many others have had this problem (not stones). I have found several links to this same issue as a symptom or seeming result of years of untreated Celiac disease.

I was given a blood test for Celiac. I don't think it was the full panel, but I had already been gluten-free for 5 days before the test. I had such great results from the diet that I decided to decline further testing with the agreement from my PCP after a negative result. He said I obviously have a problem with gluten otherwise I'd have not gotten such a positive result from the diet, which I had decided to try before seeing him because I was so sick and hardly eating anything. I was desperate for food. And I wanted to go to him with some sort of information since all my symptoms sounded like Celiac.

So, just wondering how common the gallbladder malfunctioning issue is with Celiacs.

0

Share this post


Link to post
Share on other sites


Ads by Google:

I read a study that untreated Celiacs have at least a 30% connection to non-functioning gallbladder.

I was about 7 years gluten free and still had to have my gallbladder removed last year.

0

Share this post


Link to post
Share on other sites

My gallbladder was taken out almost 5 years ago in October of 2006 at age 20. I, too, had no stones, but I had symptoms since I was at least 15 years old (throwing up constantly and horrible stomach pain... although that could have been from eating gluten my whole life at that time). However, according to all of the GI doctors I saw from age 15-20, I was suffering from an immense amount of stress, so much that my body actually created my symptoms. :unsure::(:blink: Riiiight!

They found no stones in the multiple ultrasounds and CT scans and MRIs they ran at the time. No doctor thought to see how my gallbladder actually WORKED, they were too busy looking for structure issues (like stones blocking up ducts). Finally, after 5 years of HELL, one doctor decides to order a HIDA scan (I don't know the functioning level, but it's enough for him to immediately say I need to have it removed). It's, unfortunately, the same GI who now keeps stating emphatically that I have IBS and Barrett's esophagus, and refuses to check for celiac, even though I have EDS, which makes me a higher risk. Oh well, I just have heard of another GI in my area, who isn't in the same office as her, who is speaking at my local area's upcoming gluten-free vendor's fair, and he's in-network on my insurance.

I am not sure how long that I've been sick, but I do remember having stomach aches that made my mom take me to the doctor when I was 7 or 8 years old... it must have been long enough to take out my gallbladder, at least...

0

Share this post


Link to post
Share on other sites

I also have no stones but a suboptimal functioning gallbladder that was found last year. However, my ejection fraction was above the 35% that they want to even consider surgery. I also was having some celiac related problems also. I feel I have corrected the gluten issues but all of the sudden since Saturday I bloated up, was belching a lot and started with the D and having the pale, foul greasy stools. I do not think I got CC so I'm thinking my gallbladder is acting up again. I'm going to have the tests done again to see how it is doing. I had to start taking my creon again (been off since Nov.) to manage it. I'm back to eating fat free and it is slowly helping, but I can't go on like this forever, it's not going to get better only worse. I think the hidden gluten issues I had last year contributed to it getting worse.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,908
    • Total Posts
      919,593
  • Topics

  • Posts

    • Are M&Ms Gluten Free?
      Hi. Thanks for the reply. I read "wheat" on the packaging of the regular / plain M&Ms package. Not on the mini's package. I've never seen a package of mini-M&Ms. I've only seen them as ice cream toppings. I'll buy a pack and photograph what I read. Maybe this would be helpful? Thanks again, Olivia 
    • how long does it take to show signs of being glutened?
      My two year old son has been diagnosed with celiac for almost three months. So far, I think we have done well keeping him completely gluten free. Our biggest worry is cross contamination because he is so young and constantly putting his hands in his mouth. My question is, how long does it take to show signs that he was glutened? He complained of a stomachache yesterday before bed (I wasn't sure at the time if it was just a bedtime stalling technique) and also had two very messy diapers today. I've been racking my brain trying to figure out if he could have gotten glutened somehow, or maybe it's just a normal stomach issue for any kid. It would help if I knew the average time it took for symptoms to show up after someone has been glutened. Thanks!
    • Did Jennifer Esposito Leave Town Amid $43 Million Gluten-Free Bakery Lawsuit?
      Wasn't this some gossip rag nonsense from a few weeks back?  I think it's been proven false.  But, even so, why is celebrity gossip from unreliable sources here?  And I can't leave a comment on the actual article, because he approves and often edits the comment.
    • Recovery?
      Hi PLB, If he hasn't been gluten-free very long, he might still be able to get blood testing done for the gliaden (gluten) antibodies.  More than a couple weeks may be too long tho. As far as recovery, it varies from person to person.  The condition associated with celiac that you are thinking of is probably gluten ataxia.  Gluten ataxia is an antibody attack on the brain cells that can cause problems walking and controlling muscles.  Generally it seems people consider nervous system healing / recovery to be a fairly slow process.  Although it sounds like your husband is experiencing some recovery already, which is great! I've read about coconut having benefits for people with alzhiemers disease, but don't know if it would help him.  I doubt it would hurt though.  The B-vitamins including B-12 are supposed to be very important for nervous system health.  Vitamin d is also important but make sure you take a supplement that is tested and reliable.  Check out https://labdoor.com/  for their review/test results.  Dr. Hadjivassiliou has done some research on gluten ataxia and you might find reading his information helpful. Nuerological symptoms without gastro symptoms
      http://www.ncbi.nlm.nih.gov/pubmed/20170845 Dietary treatment of gluten ataxia
      http://jnnp.bmj.com/content/74/9/1221.full Ubo's, Epilepsy And Celiac Testing for celiac disease usually starts with a blood antibody test and then a endoscopy to check for gut damage.  If a person has been off gluten for a while though, the tests are not much use.  The antibodies in the bloodstream start to drop off and may not be detectable anymore.  They usually say to eat gluten for around 12 weeks in that case before trying testing again.  I can understand why he wouldn't want to do that though considering his symptoms.  I am not sure it would be a good idea. Welcome to the forum and congrats on finding  away to improve his condition! If you turn on the notify me of replies slide button near the bottom left of the reply screen you can get an email when you receive responses to your thread. There is some helpful info in this thread about celiac disease.             
    • Genetic Results
      I have been looking for an explanation to what exactly I have, as my doctor just said that I have the genes that cause Celiac. They never went any further than that.... The wikipedia link makes some sense, but at the same time it does not. It almost seems like I have 1 full DQ2, and half of a DQ2?   Test: DQ Alpha 1 - 02:01,03 Test : DQ Beta 1 - 02:02,03:02 DQ Serologic Equivalent: 2,8 Method: Molecular typing of HLA antigens performed using reverse SSOP and/or SSP methods, reported as serological equivalents and low to medium resolution molecular values
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Jmg  »  admin

      Hello Admin!
      I don't know whether this is of interest to post on your articles feed:
      http://pratt.duke.edu/about/news/window-guts-brain
      Kind Regards,
      Matt
      · 2 replies
    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,954
    • Most Online
      1,763

    Newest Member
    Olivia
    Joined