Posted 02 February 2011 - 05:52 PM
I was given a blood test for Celiac. I don't think it was the full panel, but I had already been gluten-free for 5 days before the test. I had such great results from the diet that I decided to decline further testing with the agreement from my PCP after a negative result. He said I obviously have a problem with gluten otherwise I'd have not gotten such a positive result from the diet, which I had decided to try before seeing him because I was so sick and hardly eating anything. I was desperate for food. And I wanted to go to him with some sort of information since all my symptoms sounded like Celiac.
So, just wondering how common the gallbladder malfunctioning issue is with Celiacs.
Posted 02 February 2011 - 06:29 PM
I was about 7 years gluten free and still had to have my gallbladder removed last year.
Posted 02 February 2011 - 09:38 PM
They found no stones in the multiple ultrasounds and CT scans and MRIs they ran at the time. No doctor thought to see how my gallbladder actually WORKED, they were too busy looking for structure issues (like stones blocking up ducts). Finally, after 5 years of HELL, one doctor decides to order a HIDA scan (I don't know the functioning level, but it's enough for him to immediately say I need to have it removed). It's, unfortunately, the same GI who now keeps stating emphatically that I have IBS and Barrett's esophagus, and refuses to check for celiac, even though I have EDS, which makes me a higher risk. Oh well, I just have heard of another GI in my area, who isn't in the same office as her, who is speaking at my local area's upcoming gluten-free vendor's fair, and he's in-network on my insurance.
I am not sure how long that I've been sick, but I do remember having stomach aches that made my mom take me to the doctor when I was 7 or 8 years old... it must have been long enough to take out my gallbladder, at least...
Although not diagnosed officially yet, I have suspected celiac since October of 2010. At least 2 separate physicians who are experts with collagen deficiencies (such as Ehlers-danlos syndrome) have mentioned the possibility to me, and one has tested (although I haven't gotten the results back yet).
Posted 03 February 2011 - 05:46 AM
Celiac disease(positive blood work/biopsy- 10/2008), gluten free oat intolerent, Hashimoto's Thyroiditis/Disease, Raynaud's Disease
celiac disease(positive IgA tTG, no biopsy- 11/2010)
repeated negative bloodwork and negative EGD/biopsy. Started on a gluten free trial(8/2011). He has decided to stay gluten free due to all of the improvements he has experienced on the diet.
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