Does Anyone Else Get Terrible Upper Stomach Pain?
Posted 13 August 2011 - 11:57 PM
My doc put me on Nexium....one a day was not enough, went to 2 and I was still doing 1-2 doses of Pepto. What finally helped me was getting my diet clean of glutens. I read that bread/cakes and the like can cause the stomach to produce more acid (probably from the wheat) and I think that is what causes this. I had to allow my stomach time to heal and stayed on Nexium for over 5 months, eventually cut back to one and then got off them entirely.
I did get dosed her recently and my stomach started feeling sick gain....not as bad with the burning but I quickly took 2 Nexium a day to hep me thru.
Mine was bad and I really did feel there was damage in my stomach and concerned for what that could lead to I have been very careful to protect myself from acid foods. I do not think the over-the-counter stuff would have been enough for me.
Miscarriage, Kidney stones, Anemia, Pneumonia, Migraines, Restless leg, Bone fractures, Blurred/Double vision, Extreme fatigue, Bone & Joint Pain, Thyroid nodule, Celiac diagnosed 2011, Spine and leg bone loss, GERD, Vitamin deficiencies, Malabsorbtion, Neuropathy issues, Ataxia, Raynaud's Syndrome. Currently on diet with limited grain and sugar.
Posted 14 August 2011 - 01:14 PM
gluten-free since June, 2011
Can't eat soy, corn, or foods high in salicylates.
Nightshades now seem to bother me too.
BUT I CAN STILL PLAY MY GUITAR AND THAT"S ALL THAT MATTERS!
Posted 31 August 2011 - 05:08 AM
For the last 6 months in addition to my other symptoms I have been plagued with a flair up of stomach pain. The pain will last a good week or two then go away for a week then return. Its upper stomach. Hurts pretty bad. I have been tested for practically everything from head to toe including heart. I am apparently healthy. I tried all the antacids with no success. The pain clinically speaking is very similar to a stomach ulcer or severe gastritis. However, my endoscopy reported zero ulcerations and makes no mention of gastritis. I have been in the ER and medicated with morphine to reduce the pain, its that bad. Recently I noticed that when I drink cold water I get a moment of relief when the cold water hits my stomach. Also in the hospital when given a GI cocktail I noticed a 90% improvement in pain, so much in fact that the ER doctor prescribed my own take home GI cocktail.
When I was tested for Gluten I had already been off the Gluten for 6 months and only returned for the week prior. So my blood tests were negative. The endoscopy was done, without any biopsies or mentions of celiac. Its crazy I know but they honestly did not even think of food allergies or celiac when they tested me.
I am back to eating gluten, its been about 2 months. I am getting tested again very shortly and have a laundry list of health symptoms but the most aggressive is the stomach pain. I also get acid reflux to the point of coughing and a hoarse voice. PPI and antacids actually seemed to give me terrible headaches and made me more constipated than I already am.
Does anyone else experience this type of pain? When I was younger I would get the really bad cramping in the lower abdomen region and many times had horrible cramping right in the appendix area(tested 3 times). My pain as I get older I am 34 seems now just be focused terribly in the stomach.
I have this same pain and was just diagnosed with celiac 2 months ago the pain started right after my scoping.
I am trying to stay gluten free and the days I feel I have eaten everything right I still have the pain. I did have my gall bladder checked /nothing wrong there. I take prilosec every morning too. The pain seems worse at night will wake me up .
My doctor said maybe just nervous stomach from not knowing what to eat? He gave me script for zanax but I don't want to start that. This is all new for me and thinking I should just go back to eating gluten?
Posted 31 August 2011 - 05:39 AM
That's all we get. Make the best of it.
Posted 31 August 2011 - 05:18 PM
Then I got pregnant and that solved just about every endometriosis, stomach, etc. problem I had. No kidding.
Of course, after I gave birth it was another ball of wax.
Probable Endometriosis, in remission from childbirth since 2002.
Hashimoto's DX 2005.
Gluten-Free since 6/2011.
DH (and therefore Celiac) dx from ND.
Responsive to iodine withdrawal for DH (see quote, above).
Genetic tests reveal half DQ2, half DQ8 - I'm a weird bird!
Posted 02 September 2011 - 10:43 AM
(So far I'm undiagnosed, and the PPIs I'm taking haven't been helping)
Posted 03 September 2011 - 04:58 PM
Been off gluten for about a month now, so don't know if it is really gluten-related or not at this point.
Posted 03 September 2011 - 07:11 PM
Are you all saying that a gluten-free diet has made these pains stop? He had his gall bladder out last year and we were sure they were going to stop after that, but they haven't. I am more inclined to get the genetic testing than to move on to a biopsy for him. I figure if he is positive for the gene, then he should just start a gluten-free diet and go from there. That seems much less invasive than a biopsy. Any thoughts on that?
Posted 05 November 2012 - 02:16 PM
My fiance experiences regular heartburn but for the past hour he has been having a completely different type of pain in his upper stomach. It is so bad that he can't get comfortable and it won't go away! At first I thought it was gas but he's taking Gas X and even a pamprin...still, nothing has helped. If you have any educated or past experience suggestions or advice, we would greatly appreciate it.
Do you have any Pepto Bismal liquid? You could try that. However if this is a pain that is different than he has ever experienced don't assume it is gluten related. If it is severe a trip to the ER might be a good idea.
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
Posted 05 November 2012 - 09:03 PM
Posted 05 November 2012 - 09:17 PM
Posted 06 November 2012 - 08:40 AM
Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.
Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, and hard work. have a good day! :-) Paul
Posted 07 November 2012 - 06:44 AM
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