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Does Anyone Else Get Terrible Upper Stomach Pain?

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Posted 13 August 2011 - 11:57 PM

I had a burning pain in my stomach that reached to my sides. Almost felt like I had the inner lining of my stomach ripped away and that something was irritating the new tissue. I was not having acid reflux issues and that has never seemed to be a problem for me but the burning was bad and would be made worse if I got upset or became anxious.

My doc put me on Nexium....one a day was not enough, went to 2 and I was still doing 1-2 doses of Pepto. What finally helped me was getting my diet clean of glutens. I read that bread/cakes and the like can cause the stomach to produce more acid (probably from the wheat) and I think that is what causes this. I had to allow my stomach time to heal and stayed on Nexium for over 5 months, eventually cut back to one and then got off them entirely.

I did get dosed her recently and my stomach started feeling sick gain....not as bad with the burning but I quickly took 2 Nexium a day to hep me thru.

Mine was bad and I really did feel there was damage in my stomach and concerned for what that could lead to I have been very careful to protect myself from acid foods. I do not think the over-the-counter stuff would have been enough for me.
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Yesterday is not ours to recover but today is ours to win or lose!

Miscarriage, Kidney stones, Anemia, Pneumonia, Migraines, Restless leg, Bone fractures, Blurred/Double vision, Extreme fatigue, Bone & Joint Pain, Thyroid nodule, Celiac diagnosed 2011, Spine and leg bone loss, GERD, Vitamin deficiencies, Malabsorbtion, Neuropathy issues, Ataxia, Raynaud's Syndrome. Currently on diet with limited grain and sugar.

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Posted 14 August 2011 - 01:14 PM

Red wine has done that to me the last few times I had it. I know red wine is supposed to be OK for us, but I can't drink it. The last time I did, I only had one very small glass, and the next day I was literally doubled over. It lasted about three days, and I haven't touched red wine since. Now that I'm gluten free, maybe I could try it again, but I don't want to take a chance - the pain was that bad.
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gluten-free since June, 2011

Can't eat soy, corn, or foods high in salicylates.

Nightshades now seem to bother me too.






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Posted 31 August 2011 - 05:08 AM

For the last 6 months in addition to my other symptoms I have been plagued with a flair up of stomach pain. The pain will last a good week or two then go away for a week then return. Its upper stomach. Hurts pretty bad. I have been tested for practically everything from head to toe including heart. I am apparently healthy. I tried all the antacids with no success. The pain clinically speaking is very similar to a stomach ulcer or severe gastritis. However, my endoscopy reported zero ulcerations and makes no mention of gastritis. I have been in the ER and medicated with morphine to reduce the pain, its that bad. Recently I noticed that when I drink cold water I get a moment of relief when the cold water hits my stomach. Also in the hospital when given a GI cocktail I noticed a 90% improvement in pain, so much in fact that the ER doctor prescribed my own take home GI cocktail.

When I was tested for Gluten I had already been off the Gluten for 6 months and only returned for the week prior. So my blood tests were negative. The endoscopy was done, without any biopsies or mentions of celiac. Its crazy I know but they honestly did not even think of food allergies or celiac when they tested me.

I am back to eating gluten, its been about 2 months. I am getting tested again very shortly and have a laundry list of health symptoms but the most aggressive is the stomach pain. I also get acid reflux to the point of coughing and a hoarse voice. PPI and antacids actually seemed to give me terrible headaches and made me more constipated than I already am.

Does anyone else experience this type of pain? When I was younger I would get the really bad cramping in the lower abdomen region and many times had horrible cramping right in the appendix area(tested 3 times). My pain as I get older I am 34 seems now just be focused terribly in the stomach.

I have this same pain and was just diagnosed with celiac 2 months ago the pain started right after my scoping.
I am trying to stay gluten free and the days I feel I have eaten everything right I still have the pain. I did have my gall bladder checked /nothing wrong there. I take prilosec every morning too. The pain seems worse at night will wake me up .
My doctor said maybe just nervous stomach from not knowing what to eat? He gave me script for zanax but I don't want to start that. This is all new for me and thinking I should just go back to eating gluten?
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Sharon LaCouture

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Posted 31 August 2011 - 05:39 AM

I have upper stomach pain when I have a BM. [I am assuming it's my stomach] High upper right side under my ribs. It tightens up so hard it feels like a rock and it hurts like hell. It subsides after a few minutes, but while it's happening...I'd rather chew glass.
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Posted 31 August 2011 - 05:18 PM

I had that years ago. It may have been gluten symptoms... but it finally did go away. I tried ever med under the sun, nothing worked. Had to resort to 16 oz of water in the a.m. and constant water all day to tone it down. No acidicic foods. Had to use visualization to get rid of it.

Then I got pregnant and that solved just about every endometriosis, stomach, etc. problem I had. No kidding.

Of course, after I gave birth it was another ball of wax.
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Probable Endometriosis, in remission from childbirth since 2002.
Hashimoto's DX 2005.
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Responsive to iodine withdrawal for DH (see quote, above).

Genetic tests reveal half DQ2, half DQ8 - I'm a weird bird!



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Posted 02 September 2011 - 10:43 AM

Me too. Sharp pain that's usually where my solar plexus is, that can lance down to my bellybutton. Sometimes it moves to the left or the right, but... augh, that pain is horrible. Can't even stand up straight. Glad to know I'm not the only one who's had this!

(So far I'm undiagnosed, and the PPIs I'm taking haven't been helping)
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Posted 03 September 2011 - 04:58 PM

This is a very interesting thread. I have had severe cramping that happens when I don't eat any food for a while and then eat something with fiber in it (including fruit) or gluten products. It is REALLY brought on when I do this on a road trip (or when I commute to/from work). I had this a few days ago (sharp pain starting in the solar plexus area, spasms all the way down my GI tract to at least my small intestines)...lasted 4 hours and I was flat out exhausted from it. It was actually triggered this last time by a peach, of all things. I would guess that an antispasmodic drug would take care of the symptoms; I believe that is what I took when I was a kid and had this issue (I recall a small bottle of light green clear-ish liquid that I would take from my doctor; still remember the taste and that was about 30 years ago!). Could never understand why I had this issue, and it seems to occur randomly.

Been off gluten for about a month now, so don't know if it is really gluten-related or not at this point.

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Posted 03 September 2011 - 07:11 PM

Wow - My husband has been having these pains for the past 10 years. We called 911 the first time because it acted exactly like a heart attack. He then had them very rarely for a long time, but lately they have been coming closer together. It is right up near his sternum but he feels it really badly in his back as well. The Dr. recently called it GERD. My son was recently diagnosed with a blood test, and my husband had one that came back negative. I still have a gnawing feeling that he has it though.

Are you all saying that a gluten-free diet has made these pains stop? He had his gall bladder out last year and we were sure they were going to stop after that, but they haven't. I am more inclined to get the genetic testing than to move on to a biopsy for him. I figure if he is positive for the gene, then he should just start a gluten-free diet and go from there. That seems much less invasive than a biopsy. Any thoughts on that?

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Posted 05 November 2012 - 02:16 PM

My fiance experiences regular heartburn but for the past hour he has been having a completely different type of pain in his upper stomach. It is so bad that he can't get comfortable and it won't go away! At first I thought it was gas but he's taking Gas X and even a pamprin...still, nothing has helped. If you have any educated or past experience suggestions or advice, we would greatly appreciate it.
Thank you!

Do you have any Pepto Bismal liquid? You could try that. However if this is a pain that is different than he has ever experienced don't assume it is gluten related. If it is severe a trip to the ER might be a good idea.
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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)

celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom

Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)



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Posted 05 November 2012 - 09:03 PM

I've had this off and on over the years before my diagnosis. It feels like glass is scraping the top of my abdomen. It's horrible, horrible pain. And I've had unmedicated child birth!
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Posted 05 November 2012 - 09:17 PM

Oh my god!!! Im so glad Im not crazy and that other people have this. It feels like when my gull bladder acted up, but thats been gone for years. Making myself burp with a carbonated drink gave minor relief. My GI doc put me on 80 mg of omiperzole and it didnt help at all. They wanted me to take antidepressent. I refused to and went to an accupuncturist and went gluten free.
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Posted 06 November 2012 - 08:40 AM

Peppermint can help get gas out of your stomach. Peppermint makes it eaiser to burp freely, everyone's secret desire.
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Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it."
Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.
Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, and hard work. have a good day! :-) Paul



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Posted 07 November 2012 - 06:44 AM

Is this pain under your breasts sorta? More on the left side?
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