Are they safe to use? I have been miserable lately...and have to wait until Dec. 12 for my endoscopy before I can go gluten free again. This past week has been particularly bad. I was telling my husband I feel like my intestines are dry heaving...well, not dry but you know when you have that involuntary stomach movement when dry heaving or vomiting...but it's my intestines. It's so uncomfortable. I am guessing my intestines are spasming pretty severely when this is happening. I used to take anti diarrhea meds when traveling if I had any stomach issues and they helped a ton. I'm wondering if it's safe to take them on a regular basis to relieve the cramping. My visits to the bathroom this week have been horrible...and I don't feel like moving or having anyone near me or touch me for hours after. Gosh, I can't wait until I can eat healthy again...and never have gluten again.
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4 replies to this topic
#2
ravenwoodglass
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Posted 19 November 2011 - 06:01 AM
Have you called the doctor and told them how severe your reaction is? If not do so. Ask to speak to a nurse if your doctor doesn't do call backs. This is especially the case if your D is waking you up at night as that is a typical Celiac symptoms and not a symptom of IBS. Some will call off the challenge or they may put you on a cancelation list to get you in sooner. They may also be able to prescribe an antispasmodic or anticholeragenic to help you get through it. Your body is telling you what you needed to know and I am sorry you are having to go through this.
As to taking Immodium, well I lived off multiple doses a day for about 15 years. If you have to leave your home then go ahead and take it. If you can be at home then I would let the offending substance leave your body as much as possible.
Do keep in mind that you can still have negative biopsy results even after going through the challenge so do go back to the diet if it helped as soon as the biopsy is done.
As to taking Immodium, well I lived off multiple doses a day for about 15 years. If you have to leave your home then go ahead and take it. If you can be at home then I would let the offending substance leave your body as much as possible.
Do keep in mind that you can still have negative biopsy results even after going through the challenge so do go back to the diet if it helped as soon as the biopsy is done.
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
#3
kendon0015
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Posted 20 November 2011 - 05:25 PM
If you have any chance of having a bacterial overgrowth causing the diarrhea, DO NOT take anti-D meds. It keeps the bacteria in your intestines, which is counter productive.
#4
mushroom
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Mushroom
Posted 20 November 2011 - 08:29 PM
Sometimes necessary, but a long-term no-no. I have a neice who travels often around the Pacific islands and one of her suitcase staples is "starters" and "stoppers" 
Plus I think she is probably also one of the great undiagnosed (her mother is an unbeliever).
Plus I think she is probably also one of the great undiagnosed (her mother is an unbeliever).
Neroli
"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein
"Life is not weathering the storm; it is learning to dance in the rain"
"Whatever the question, the answer is always chocolate." Nigella Lawson
------------
Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose
Celiac.com - Celiac Disease Board Moderator
"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein
"Life is not weathering the storm; it is learning to dance in the rain"
"Whatever the question, the answer is always chocolate." Nigella Lawson
------------
Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose
Celiac.com - Celiac Disease Board Moderator
#5
Skylark
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- Advanced Members
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- 5,490 posts
Glutenologist
Posted 21 November 2011 - 05:11 PM
I agree that you need to talk to your Dr. There are prescription anti-spasmodics that can relieve cramping and your Dr. can probably find you something safe to use daily until your scope.
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