Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Need Help Figuring Out What To Do - Intolerances


Littllemel

Recommended Posts

Littllemel Apprentice

I am 6 weeks gluten free because I thought I had Celiac because of my severe reflux and the endo showed small intestine inflamation.

3 weeks into it the diet and my reflux was half the problem it used to be. Prior to the diet, I had to sleep upright, had constant burning in my throat, sinuses and lungs from reflux. It was so severe it was making my life hell and I could barely work and live day to day. I was on 2 Nexium per day, including Sulcralfate 4x day and Bentyl and that wasn't even bringing me relief. This thing would keep me up all night constantly waking me up so I was a mess all day.

That 3rd week I got the call from my Dr's office that the Celiac test was negative. So I tried to go off the diet 3 different times and had reactions to wheat each time so I stayed on it.

Now 6 weeks post start of the diet and I have found that I am sensitive to corn as well and maybe even dairy. My reflux is back in full force. I just stopped corn/dairy this week but keep finding hidden corn in things I have already eaten because I was careless.

I have Tricare and have to used Military doctors. Let's just say my care is less then stellar. I have to figure all of this stuff out on my own and basically report back to my GP, since my Gastro doesn't believe in food intolerance causing reflux.

I keep scouring the internet for info on what is happening to me and I read that if you stop eating the foods sometimes you can wait a few months or years and you may be able to eat the foods again someday. I also read that I might keep developing other food intolerances as time goes on to the point I won't be able to eat anything!!

I just started Rainbow Light Advanced Enzymes this week along with a probiotic iFlora to help heal my guts. What else should I do to limit the intolerances that may keep popping up?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pricklypear1971 Community Regular

I don't know if you can do anything to stop a new intolerance. You can rebuild your digestive system - diets like SCD are supposed to do that.

I have been adding probiotic foods to my list - naturally fermented pickles, sauerkraut, kimchee. Found them at whole foods and other natural food stores. I'm going to make coconut milk kefir, too (no dairy).

In the beginning (of going gluten-free) everyday is an adventure. If its any consolation you may be "uncovering" intolerances, not developing new ones?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Churro replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Celiac disease symptoms

    2. - trents replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Celiac disease symptoms

    3. - Churro replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Celiac disease symptoms

    4. - RMJ replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Celiac disease symptoms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,054
    • Most Online (within 30 mins)
      7,748

    TerriT
    Newest Member
    TerriT
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Churro
      Everyday I eat a medium to large apple in the morning and a large banana at night. I eat a cup of oatmeal in the evening. The ezekiel wheat bread I eat has a good amount of fiber. I haven't dealt with constipation for at least a year. Most of the time my feces are soft. 
    • trents
      It's not uncommon to experience some bleeding with hemorrhoids but I doubt enough to materially effect your iron levels. About your constipation. Are you getting enough fiber in your diet? 25-30 grams per day is the adult recommendation. Eggs and chicken have zero fiber. One medium apple or one average banana will have about 3 g. of fiber. A serving of oatmeal will have 3-4 g. Just to give you an idea. It's harder than you think to get 25-30 g of fiber. You have to plan for it and work at it. Getting plenty of hydration is important as well.
    • Churro
      Someone said this could be due to my hemorrhoids. On March 17, 2024 my ferritin level was 23.
    • Churro
    • RMJ
      I agree with @trents, they should have run a total IgA.  What was the normal range for the DGP IgA test?  Different labs use different units thus have different normal ranges.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.