How Do You Know How Much Gluten To Avoid?
Posted 02 June 2012 - 07:17 PM
Posted 02 June 2012 - 08:18 PM
With GI symptoms some manage with products that are manufactured on shared lines with gluten products, some manage only with products that are made in the same facility as gluten products, and some need a dedicated gluten free facility to be safe. It is a matter of experimentation. As you get further into the diet you will get more of a feel for what is safe for you.
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Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose
Celiac.com - Celiac Disease Board Moderator
Posted 03 June 2012 - 07:00 AM
As for avoiding gluten- it is debatable as to how far you need to take it, and everyones sensitivity varies. I use gluten free lotion and lipstick, because those are two products very likely to end up in my mouth. I don't worry about regular makeup or shampoo for myself, because I can keep it out of my mouth and I don't react to it. My antibodies are at zero.
My two celiac kids however are more sensitive. My sons antibodies are dropping, but still not zero, and he still has some tummy issues (though not bad) so I make sure his stuff is gluten free. Fortunately, many of the mainstream brands are anyway, and are not expensive.
My daughters antibodies are at zero, but she reacts to the teeniest amount of gluten with severe vomiting. Usually it is "mystery gluten" that we can't find the source for, so her stuff has to be gluten-free too.
Also be aware that while a gastroenterologist will perform an endoscopy with biopsy, celiac doesn't always show up. That doesn't mean you don't have it!
The real diagnosis is confirmed when you go gluten-free, your antibodies start dropping, and your symptoms start resolving! The last one can take a long time for some people, so don't get discouraged if you don't feel better right away!
Also, your doctor should NOT have told you to go gluten free before seeing the gastro! Common mistake. The gastro will want to do endoscopy to look for damaged villi, and if you stop eating gluten, even for a short time, the villi can heal. Depending on how much damage there is to begin with, that can mean unidentifiable celiac damage within just a few weeks! So go eat some gluten, pronto! And keep eating it until after your biopsy! Very very important!
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