My Sister Is Having Testing Today
Posted 12 September 2005 - 09:00 AM
When she saw my gastro three weeks ago (the first gastro, not the one I go to now....) I kind of told her what I expected would happen. He would take the bloodwork, then do biopsy. Well, when she went in to see him, he said he wasn't going to bother doing the bloodwork, just go straight to the endo and colonoscopy. Now, I am trying to figure out why. Is it because of the history of celiac in the family (me!), he figured the bloodwork wouldn't be necessary? I'm confused.....
Anyway, I am almost 99.9 percent sure she has it - and finally, after all the nagging I did to finally get her to go get tested, I hope we find out finally. By the way, she has the opposite main symptom than what I have, whereas I have chronic diarrhea, she is severely, chronicly constipated......
I will post when we find out......
positive bloodwork, positive biopsy
Celiac, collagenous colitis, hypothyroidism
endometriosis (at age 20)
spinal stenosis (early 20's)
Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.
Endoscopy also showed numerous stomach ulcers, have started taking Losec.
Mother to Eileen 13 yrs
Rhiannon 8 yrs
Daniel & Connor 6 yr twin boys......
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Posted 12 September 2005 - 09:22 AM
I don't know why they would not do the bloodwork...that would have probably been a good thing to have done. Biopsies can be good but they can only rule celiac in with a positive and not out with a negative. If she has sporadic damage they could miss it or if she is in beginning stages and had no damage yet then it could also come back negative but that does not mean she does not have it.
I guess they are checking her for other things with the colonoscopy? Because that is not something to do for detecting celiac.
Gluten-free since January 2004
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