Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is This A Possible Glutening?


abby03

Recommended Posts

abby03 Contributor

I'm still very new to this diet (a little over 2 months, I believe) so I not sure if this is my first glutening or not? I'm about 99% sure that I haven't actually eaten anything with gluten but cross contamination is a possibility. I've just read a lot about people getting 'glutened' and a lot of peoples' symptoms seem to be worse than mine. But here are what I think my symptoms have been and when I think it started. I'm just going to run through each day of the week. Sorry if it gets too long but I just want to figure this out.

Last Saturday I felt a little bloated/gassy after lunch (could have just been too much salad dressing, cheese, etc.) I got hungry around dinner and felt fine for the rest of the night.

Sunday I was a bit constipated but I just blamed it on fact that for whatever reason my body sometimes doesn't care to go numero dos on the weekends. So weird haha... This threw my morning off a bit but after lunch I was completely fine.

Monday I was still constipated but otherwise felt fine.

Tuesday I was still C but my stomach still felt fine otherwise. I did get a headache in the afternoon which I found a little strange. Before going gluten free I got headaches around 4 times a week. Then I had headaches as I was going through withdrawal. After that, I was almost completely headache free until Tuesday. I should mention that on Tuesday night I also had a Udi's bun. I've found that the afternoon after Udi's I'm hit with fatigue, muscle pains, emotional moodiness, and sometimes nausea that ultimately knocks me out for 3 hours.

Wednesday was still C and I felt fine until around 2pm (Normal Udi's mystery reaction time)when the yawning started..then muscle pains...then the mood. Luckily it stopped there and I didn't have any stomach problems for the night.

Thursday I was surprised to still have the muscle pains and also surprised to see that they were getting more and more painful. My bones kind of felt like they were just going to snap whenever I stretched. By the afternoon, I felt a little out of it and was starting to have mild lower stomach pain. I was hungry for dinner though and ate with no problems.

This morning (Friday) I woke up and felt fine.. even a little hungry. I ate breakfast (same thing I have almost every morning so that wasn't the problem) and played with my cat and felt like I was going to have a good day. Now, about 2 hours later, I have mild D and my stomach is making noises and I don't really feel good at all.

Another weird thing is that it seems like every morning since this has happened, I've woken up at 4am like clockwork. I wake up for like a minute and fall back asleep. It's been very strange. I haven't eaten anything different than usual so I don't understand the constipation and the muscle pains from Udi's usually just last a few hours (If I pass out, it's gone when I wake up) so I don't understand why it lasted so long and got worse. Is this a possible CC reaction? Like I said, I'm still new so I don't know what my reaction would be.

Also, if anyone could answer these questions for me that would be great:

-Should I expect the D to get worse? It's just mild right now and I'm really hoping it doesn't get any worse.

-Does this sound like a reaction or just part of the ups and downs of the start of the diet? Could a mild reaction even last this long?

-Is there anything I can do to make the D stop? Are pepto bismol tablets gluten-free?

I told my mom that I think I'm having a reaction and of course her response was to tell me to just start taking the heartburn medicine that my doctor gave me that I stopped taking because it made me nauseous. So frustrating.

Ohhh and I should clarify what I mean when I say constipation. I usually go around the same time every morning like clockwork (minus the weekends..). This week I've still gone but it's been a very small amount each time, later in the morning, and it's been more difficult to go. I've also noticed a difference in the way the stools look this week (TMI TMI sorry) so I guess I'm not actually C by most peoples' definition but I didn't know what else to call it?

Thanks for any help and sorry this is so long and TMI!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



starrytrekchic Apprentice

It could be...or you could be having any of the normal digestive problems other people have. It took me months to figure out most of my symptoms & their timing, and about 9 months before I had a full grasp on reactions.

Reactions are very specific to individual--including how long they last, if they get worse, if they change over the days, etc.

So...maybe! You'll really need more reactions to compare to. They will happen...and they may change a bit early on as your body adjusts to the diet.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Hmart replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Is this celiac?

    2. - knitty kitty replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Fiber Supplement

    3. - knitty kitty replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      ttg iga high (646 mg/dl) other results are normal

    4. - Trish G replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Fiber Supplement

    5. - Wheatwacked replied to Larzipan's topic in Related Issues & Disorders
      36

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,344
    • Most Online (within 30 mins)
      7,748

    GFBB95
    Newest Member
    GFBB95
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Hmart
      Hello again. Thank you for the responses to date. I have had several follow-ups and wanted to share what I’ve learned. About a month after my initial blood test and going gluten free, my TtG went from 8.1 to 1.8. I have learned that my copper is low and my B6 is high. My other vitamins and nutrients are more or less in range. After I glutened myself on 10/24, I have been strict about being gluten free - so about a month. I have been eating dairy free and low FODMAP as well because it’s what my stomach allows. Baked fish, potatoes, rice, etc. Whole foods and limited Whole foods. I have continued to lose weight but it has slowed down, but a total of about 15 pounds since I went gluten free. Along with stomach pain, my symptoms included nausea, body and joint pain, a burning sensation throughout my body and heart rate spikes. I still have them but I have them less now. These are the symptoms that led to my doctor appointments and subsequent diagnosis. I also did the DNA screening and was positive. So, at this point, the answer is yes, I have celiac. I have two questions for this group. Any ideas on why my enteropathy was so severe (marsh 3B) and my TtG was so minimal? Is that common? Or are there other things to consider with that combo? And this recovery, still having pain and other symptoms a month later (7 weeks gluten free and 4 weeks after the glutening) normal? I’m going to continue down this path of bland foods and trying to heal but would love to understand the reasons for the long journey. I read so much about people who stop eating gluten and feel amazing. I wish that was my experience but it certainly hasn’t been. Thank you again!
    • knitty kitty
      @Trish G,  I like dates, they have lots if fiber as well.  But what I found helped most was taking Thiamine (in the form Benfotiamine which helps promote intestinal healing), Pyridoxine B 6, Riboflavin B 2, and magnesium, and Omega Three fats. The absorption of nutrients is affected by Celiac disease which damages the intestinal lining of the small intestines where our nutrients are absorbed.  If you have constipation, where your body is rather pushing your food away and not interacting with it, the nutrients in the food are not being released and absorbed.  You can develop deficiencies in all the vitamins and minerals necessary for the body to function properly.   The B vitamins cannot be stored for long, so they must be replenished daily.  Thiamine B 1 stores can run out in as little as three days.  Constipation (or diarrhea or alternating) is one of the first symptoms of thiamine deficiency.  Thiamine needs magnesium, Pyridoxine B 6, and Riboflavin B 2 to make the intestinal tract function.  Thiamine and Niacin make digestive enzymes.  Thiamine provides the energy for nerve impulses to carry messages to the brain and back about digestion.  Thiamine provides the energy for the muscle contractions which move your food through the digestive tract. High calorie meals containing lots of starches and sugars can deplete thiamine stores quickly because more thiamine is required to turn them into energy.   Are you taking any vitamin and mineral supplements?  Correction of malnutrition is very important in Celiac disease.  Thiamine, the other B vitamins and magnesium will help with constipation better than adding more fiber.  What did your nutritionist recommend you take, besides just the fiber? The association between dietary vitamin B1 intake and constipation: a population-based study https://pmc.ncbi.nlm.nih.gov/articles/PMC11100033/ Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Association between dietary vitamin B6 intake and constipation: a population-based study https://pmc.ncbi.nlm.nih.gov/articles/PMC11584952/
    • knitty kitty
      @kpf, Were you eating ten grams or more of gluten daily in the month preceding your antibody blood tests? TTg IgA antibodies are made in the intestines.  Ten grams of gluten per day for several weeks before testing is required to provoke sufficient antibody production for the antibodies to leave the intestines and enter the blood stream and be measured in blood tests. If you had already gone gluten free or if you had lowered your consumption of gluten before testing, your results will be inaccurate and inconclusive.   See link below on gluten challenge guidelines. Have you had any genetic testing done to see if you carry genes for Celiac disease?  If you don't have genes for Celiac, look elsewhere for a diagnosis.  But if you have Celiac genes, you cannot rule out Celiac disease. You mentioned in another post that you are vegetarian.  Have you been checked for nutritional deficiencies?  The best sources of the eight essential B vitamins are found in meats.  Do you supplement any of the B vitamins as a vegetarian? Deficiency in Thiamine Vitamin B 1 is strongly associated with anemia which can cause false negatives on antibody tests.  Fatigue, numbness or tingling in extremities, difficulty with coordination, headaches and anemia are strongly associated with thiamine deficiency.  Other B vitamins that contribute to those symptoms are Riboflavin B 2, Pyridoxine B 6, Folate B 9 and B12 Cobalamine.  The eight B vitamins all work together with minerals like magnesium and iron.  So your symptoms are indicative of B vitamin deficiencies.  You can develop vitamin and mineral deficiencies just being a vegetarian and not eating good sources of B vitamins like meat.  B vitamin deficiencies are found in Celiac due to the malabsorption of nutrients because the lining of the intestines gets damaged by the antibodies produced in response to gluten.    
    • Trish G
      Thanks, I'm not a big fan of prunes but did add them back after stopping the Benefiber. Hoping for the best while I wait to hear back from Nutritionist for a different fiber supplement.  Thanks again
    • Wheatwacked
      If you were wondering why milk protein bothers you with Celiac Disease.  Commercial dairies supplement the cow feed with wheat, which becomes incorporated in the milk protein. Milk omega 6 to omega 3 ratio: Commercial Dairies: 5:1 Organic Milk: 3:1 Grass fed milk: 1:1
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.