Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is This A Possible Glutening?


abby03

Recommended Posts

abby03 Contributor

I'm still very new to this diet (a little over 2 months, I believe) so I not sure if this is my first glutening or not? I'm about 99% sure that I haven't actually eaten anything with gluten but cross contamination is a possibility. I've just read a lot about people getting 'glutened' and a lot of peoples' symptoms seem to be worse than mine. But here are what I think my symptoms have been and when I think it started. I'm just going to run through each day of the week. Sorry if it gets too long but I just want to figure this out.

Last Saturday I felt a little bloated/gassy after lunch (could have just been too much salad dressing, cheese, etc.) I got hungry around dinner and felt fine for the rest of the night.

Sunday I was a bit constipated but I just blamed it on fact that for whatever reason my body sometimes doesn't care to go numero dos on the weekends. So weird haha... This threw my morning off a bit but after lunch I was completely fine.

Monday I was still constipated but otherwise felt fine.

Tuesday I was still C but my stomach still felt fine otherwise. I did get a headache in the afternoon which I found a little strange. Before going gluten free I got headaches around 4 times a week. Then I had headaches as I was going through withdrawal. After that, I was almost completely headache free until Tuesday. I should mention that on Tuesday night I also had a Udi's bun. I've found that the afternoon after Udi's I'm hit with fatigue, muscle pains, emotional moodiness, and sometimes nausea that ultimately knocks me out for 3 hours.

Wednesday was still C and I felt fine until around 2pm (Normal Udi's mystery reaction time)when the yawning started..then muscle pains...then the mood. Luckily it stopped there and I didn't have any stomach problems for the night.

Thursday I was surprised to still have the muscle pains and also surprised to see that they were getting more and more painful. My bones kind of felt like they were just going to snap whenever I stretched. By the afternoon, I felt a little out of it and was starting to have mild lower stomach pain. I was hungry for dinner though and ate with no problems.

This morning (Friday) I woke up and felt fine.. even a little hungry. I ate breakfast (same thing I have almost every morning so that wasn't the problem) and played with my cat and felt like I was going to have a good day. Now, about 2 hours later, I have mild D and my stomach is making noises and I don't really feel good at all.

Another weird thing is that it seems like every morning since this has happened, I've woken up at 4am like clockwork. I wake up for like a minute and fall back asleep. It's been very strange. I haven't eaten anything different than usual so I don't understand the constipation and the muscle pains from Udi's usually just last a few hours (If I pass out, it's gone when I wake up) so I don't understand why it lasted so long and got worse. Is this a possible CC reaction? Like I said, I'm still new so I don't know what my reaction would be.

Also, if anyone could answer these questions for me that would be great:

-Should I expect the D to get worse? It's just mild right now and I'm really hoping it doesn't get any worse.

-Does this sound like a reaction or just part of the ups and downs of the start of the diet? Could a mild reaction even last this long?

-Is there anything I can do to make the D stop? Are pepto bismol tablets gluten-free?

I told my mom that I think I'm having a reaction and of course her response was to tell me to just start taking the heartburn medicine that my doctor gave me that I stopped taking because it made me nauseous. So frustrating.

Ohhh and I should clarify what I mean when I say constipation. I usually go around the same time every morning like clockwork (minus the weekends..). This week I've still gone but it's been a very small amount each time, later in the morning, and it's been more difficult to go. I've also noticed a difference in the way the stools look this week (TMI TMI sorry) so I guess I'm not actually C by most peoples' definition but I didn't know what else to call it?

Thanks for any help and sorry this is so long and TMI!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



starrytrekchic Apprentice

It could be...or you could be having any of the normal digestive problems other people have. It took me months to figure out most of my symptoms & their timing, and about 9 months before I had a full grasp on reactions.

Reactions are very specific to individual--including how long they last, if they get worse, if they change over the days, etc.

So...maybe! You'll really need more reactions to compare to. They will happen...and they may change a bit early on as your body adjusts to the diet.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Scatterbrain's topic in Sports and Fitness
      9

      Feel like I’m starting over

    2. - Scatterbrain replied to Scatterbrain's topic in Sports and Fitness
      9

      Feel like I’m starting over

    3. - knitty kitty replied to Scatterbrain's topic in Sports and Fitness
      9

      Feel like I’m starting over

    4. - knitty kitty replied to Larzipan's topic in Related Issues & Disorders
      34

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,313
    • Most Online (within 30 mins)
      7,748

    Gailsie
    Newest Member
    Gailsie
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      Check your multivitamin to see if it contains Thiamine Mononitrate, which is a "shelf-stable" form of thiamine that doesn't break down with exposure to light, heat, and time sitting on a shelf waiting to be sold.  Our bodies have difficulty absorbing and utilizing it.  Only 30% is absorbed and less can be utilized.   There's some question as to how well multivitamins dissolve in the digestive tract.  You can test this at home.  YouTube has instructional videos.   Talk to your nutritionist about adding a B Complex.  The B vitamins are water soluble, so any excess is easily excreted if not needed.  Consider adding additional Thiamine in the forms Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) or thiamine hydrochloride.   Thiamine is needed to help control electrolytes.  Without sufficient thiamine, the kidneys loose electrolytes easily resulting in low sodium and chloride.   We need extra thiamine when we're emotionally stressed, physically ill, and when we exercise regularly, are an athlete, or do physical labor outdoors, and in hot weather.  Your return to activities and athletics may have depleted your thiamine and other B vitamins to a point symptoms are appearing.   The deficiency symptoms of B vitamins overlap, and can be pretty vague, or easily written off as due to something else like being tired after a busy day.  The symptoms you listed are the same as early B vitamin deficiency symptoms, especially Thiamine.  Thiamine deficiency symptoms can appear in as little as three days.  I recognize the symptoms as those I had when I was deficient.  It can get much worse. "My symptoms are as follows: Dizziness, lightheaded, headaches (mostly sinus), jaw/neck pain, severe tinnitus, joint stiffness, fatigue, irregular heart rate, post exercise muscle fatigue and soreness, brain fog, insomnia.  Generally feeling unwell." I took a B 50 Complex twice a day and extra thiamine in the forms Benfotiamine and TTFD.  I currently take the Ex Plus supplement used in this study which shows B vitamins, especially Thiamine B 1, Riboflavin B2, Pyridoxine B 6, and B12 Cobalamine are very helpful.   A functional evaluation of anti-fatigue and exercise performance improvement following vitamin B complex supplementation in healthy humans, a randomized double-blind trial https://pmc.ncbi.nlm.nih.gov/articles/PMC10542023/
    • Scatterbrain
      I am taking a multivitamin which is pretty bolstered with B’s.  Additional Calcium, D3, Magnesium, Vit C, and Ubiquinol.  Started Creapure creatine monohydrate in June for athletic recovery and brain fog.  I have been working with a Nutritionist along side my Dr. since February.  My TTG IGA levels in January were 52.8 and my DGP IGA was >250 (I don’t know the exact number since it was so high).  All my other labs were normal except Sodium and Chloride which were low.  I have more labs coming up in Dec.  I make my own bread, and don’t eat a lot of processed gluten-free snacks.
    • knitty kitty
      @Scatterbrain, What supplements are you taking? I agree that the problem may be nutritional deficiencies.  It's worth talking to a dietician or nutritionist about.   Did you get a Marsh score at your diagnosis?  Was your tTg IgA level very high?  These can indicate more intestinal damage and poorer absorption of nutrients.   Are you eating processed gluten free food stuffs?  Have you looked into the Autoimmune Protocol Diet?  
    • knitty kitty
      Vitamin and mineral deficiencies can make TMJ worse.  Vitamins like B12 , Thiamine B1, and Pyridoxine B6 help relieve pain.  Half of the patients in one study were deficient in these three vitamins in one study below. Malabsorption of vitamins and minerals is common in celiac disease.  It's important to eat healthy nutrient dense diets like the Autoimmune Protocol Diet, a Paleo diet that has similarities to the Mediterranean diet mentioned in one of the studies.   Is there a link between diet and painful temporomandibular disorders? A cross-sectional study https://pmc.ncbi.nlm.nih.gov/articles/PMC12442269/   Nutritional Strategies for Chronic Craniofacial Pain and Temporomandibular Disorders: Current Clinical and Preclinical Insights https://pmc.ncbi.nlm.nih.gov/articles/PMC11397166/   Serum nutrient deficiencies in the patient with complex temporomandibular joint problems https://pmc.ncbi.nlm.nih.gov/articles/PMC2446412/  
    • Iam
      Yes.  I have had the tmj condition for 40 years. My only help was strictly following celiac and also eliminating soy.  Numerous dental visits and several professionally made bite plates  did very little to help with symptoms
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.