Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Proctitis
0

5 posts in this topic

Hello to all.

Today my boy who is 7 went to the doctor about blood on his stool. He has had bright red blood in his stool about once a week for about a month. He usually has fairly normal movements maybe a little on the hard side. He does well with his Gluten free diet and is in the 92 % for height and weight, which is better than me, I can't gain a pound for nothing. My wife and I have come to realize that dairy, mostly ice cream, makes him have blood in his stool. The Doc said for him to be 100% lactose free and get rechecked in a week to see if resolved. If not he goes to Children's for more tests. He had some blood work done and an x-ray to check for constipation. The doc says its Proctitis. She said to give him a stool softner every day and it should be better in a week. I am self diagnosed gluten/lactose intolerant with family history of Celiac and Chrons. We both have been Gluten free for over a year. Any one here have Proctitis? I've been giving him almond milk and not much lactose other than ice cream now and then. But the doc says he shouldn't have Almond or Soy milk because they have some traces of lactose. Anyone heard of that? I buy the Silk brand Soy or Diamond brand Almond milk and they both say lactose free on the package. This week was the first time trying the Soy milk because he says Almond milk gives him a tummy ache. We both seem to tolerate the Soy just fine, so probly its only the ice cream that is giving him trouble. He does crave ice cream and its hard to say no, up until now. So now its Gluten/lactose free for both and extra fluids. I'm going to ask about probiotics for sure.

Any feedback would be great! Anything I should ask the Doc at his checkup? Thank you all in advance.

0

Share this post


Link to post
Share on other sites


Ads by Google:

I had to look up proctitis... it sounds painful, poor kid.

I can't believe there is lactose in almond milk. I drink it all the time, and I am sure lactose is ONLY found in milk products.

Hope someone else can come along to answer your other concerns.

0

Share this post


Link to post
Share on other sites

Thanks for reply! He is doing 100% better now that he is 100% lactose free.

0

Share this post


Link to post
Share on other sites

Thanks for reply! He is doing 100% better now that he is 100% lactose free.

That's great news. So good to hear he is doing better.

0

Share this post


Link to post
Share on other sites

HI,

I am not so sure it is lactose causing the problem. It is also possible that casein, the protein in cow dairy is the issue. Lactose intolerance usually causes bloating, and diahhrea. Casein is a protein and is more likely to cause an immune reaction. Lactose is just a form of sugar and if you don't have the enzyme (lactase) in your gut to digest it the sugar is eaten by bacteria. The bacteria multiply quickly and make the gas and cause the diahhrea. If it is a casein problem he will not be able to eat any diary. If it is just lactose intolerance he would be able to eat dairy if he took lactaid pills with it. The lactaid pills digest the lactose so the bacteria don't get to eat it. But lactose free milk or lactaid pills won't help with a casein reaction.

Soy is not a good choice for a milk substitute IMHO. Personally I'd take him off all soy. Almond milk, rice milk, or hemp milk would be better choices. There is coconut ice cream available in stores and also sherberts or ices. If you are worried about lactose in a food item the ingredient label should list it. Or if it is not clear you can always call the company and ask them to confirm. Dairy is one of the top 8 food allergens that have to be included in ingredient labels in the USA.

Procitis is not a disease from what I read, rather it is a description of a condition. It seems to me the doctor doesn't know what the cause is if that's all they told you. Procitis would be caused by something.

If the kid is bleeding from eating dairy it is not a great Idea to let them have it as a treat. Whether they want it or not. There are plenty of dairy free substitute treats available. Maybe he will like them better, wouldn't hurt to try. Coconut does cause some people to have diahhrea. Hopefully it won't be a problem.

1

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,374
    • Total Posts
      920,570
  • Topics

  • Posts

    • https://www.facebook.com/groups/SingaporeCeliacs/
    • Today was the big day when I went to the GI and this is the first time I have felt heard about and well taken care of.  I told him about the two celiac blood tests  (in my first post) normal, he said that often happens, even with people who do have celiac and he needed to see the report and pictures from my endoscope.    I had filled out the appropriate Kaiser paperwork for Sutter to send all my medical records, but they ended up sending a celiac disease to me with the records, which Sutter said they could not use.  We also talked about gluten sensitivity v. celiac, and he said a lot of people are sensitive to gluten even if they don't have celiac. He said that my symptoms sound like classic IBS, which can be caused by any number of things.  He asked if I would try the FODMAP diet, which limits certain foods and requires no gluten due to what being He said my symptoms sound like classic IBS, which he said can be caused by any number of things, including gluten sensitivity.  He has asked if I would try the FODMAP diet, which has restricted foods as well as no gluten because most gluten products have wheat in them.  So, since I am planning on going gluten free anyway, and I don't want another endoscope or blood tests if absolutely necessary, I am going to try the FODMAP diet and see what happens. I filled a consent form at the GI office today to have all my records sent to him so he can view the endoscope pathology report and photos.  I have an appointment with a Registered Dietician on September 30, and follow up appointment the GI in 4 months. 
    • gluten-free andee, according to an article on celiac.com  that talks about this subject see this link http://www.celiac.com/articles/24406/1/Celiac-Diease-and-Other-Autoimmune-Diseases-Equals-Low-Inflammatory-Diet/Page1.html Quoting the author "In the author's personal experience, a gluten-free diet has many limitations. The reactivity between alpha gliadin and corn, millet, oats, rice and dairy has been denounced as invalid by gastroenterologists and celiac disease researchers. While at a medical school in Missouri, biopsies did not show improvement in villous atropy until all alpha gliadin sources and corn, millet, rice and oats were removed from the diet."  Note this research is two years old but hilites the problem with non-gluten rice protein that you are having. It is the alpha gliadin sources that it causing the cross reactivity you are experiencing when you eat rice protein's. She says quoting "Celiac disease has gotten the most attention in antibody research, but the current data on cross-reactivity of antibodies is allowing a better understanding of gluten sensitivity. Antigen reactivity to alpha-gliadin can trigger immune attacks on many individuals beyond those with positive DQ 2, DQ 8 and TTG test results. She goes on to say "A low inflammatory diet customized to each person through testing for cross-reactivity or elimination diet protocols is needed to restore a state of health and well-being."  which sounds exactly like what you are doing. If you are still having problems after elminating rice a 30 day elimination of all the alpha gliadin proteins might be in order.  Corn is a common reactivity problem I hear with a gluten allergy from my friends as well as the obvious lactose problems that can be common among celiacs.  But rarely do you hear Rice allergy's brought up in context of a gluten allergy. I am glad you are making progress on finding your triggers. Read the whole article for yourself to see if there are nuggets of truth I did not highlight in my response. I hope this is helpful. Good luck on your journey to health. Posterboy,
    • One other thing - you might be able to tolerate some dairy if it's only the FODMAPs problem. I discovered that many cheese such as cheddar have effectively no lactose. And my wife sometimes makes 24 hour yoghurt, which also has effectively no lactose. Those have been fine for my tummy.
    • I'm new to the forum, so this topic may already have been covered....please forgive me, if that's the case.  I am in the beginning stages of guiding the development of a 504 plan to file for my 6th-grade daughter who was diagnosed with Celiac Disease 2 weeks ago. The diagnosis was made with a biopsy. My first question...A 504 is what's necessary....not just the IHCP, correct or no? I have the Physician's Statement & the Medical Evaluation report from our GI specialist. What else do I need to have at the ready? The team has requested we go ahead and write the IHCP & then include it with the 504.  And my second question...What accommodations have others found relevant to include on the IHCP  & 504? I just watched a 504-Plan webinar I found on this forum & it recommends the following: -access to gluten-free food in classroom & cafeteria - excused absence from activities that use gluten-containing foods or materials -  prevent cross-contamination in school food service - use of microwave to heat personal meals -  bathroom priveleges Is there anything I need to consider adding? My daughter does prefer eating school meals rather than packing a lunch from home & I am concerned about special events, overnight field trips etc. My learning curve is steep. What am I missing? Teach me, please & thanks so much! This forum has already helped me tremendously these past few weeks.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,450
    • Most Online
      1,763

    Newest Member
    Chellygirl
    Joined