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How Long Does It Take?
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I know it is different for everyone but I kind of wanted to know how long it took people to have more energy and feel less fatigue after going gluten free? I just got a negative bloodwork back but I was only eating gluten for ten days... My doctor wants to do an endoscopy but I just started a new job and I need to be healthy. I need energy!!!

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Generally, fatigue means that you're deficient in certain vitamins, minerals, and/or hormones. Your doctor should be testing you (at a minimum) for the levels of your B vitamins (particularly B12 and folic acid), Vitamin D, iron, and thyroid. Your fatigue will subside once you're able to absorb vitamins, minerals, and hormones again. For me, I continued to be deficient in iron for 18 months--that's how long it took for that part of the intestinal lining to repair itself. It always depends on how severe and extensive the damage is. It's possible that you may need sublingual Vitamin B12 (or injections) and/or intravenous iron infusions until your body is able to absorb these nutrients.

Unless you want an "official" diagnosis, there's no reason for an endoscopy. If you suspect celiac or gluten sensitivity, simply follow a gluten-free diet and continue to get blood work to check on your absorption or nutrients.

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Rosetapper gave you great advice. Before I was diagnosed I was taking a huge amount of vitamins and supplements because of my lack of energy. I had all those vitamin tests done, and it turns out my thyroid isn't working well. as a result, my energy isn't up yet since my meds aren't spot on yet but my gut feels much much better.

Hope you feel well soon.

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It has been 8 months for me and I'm still not there (though there was a dramatic difference when I first went gluten free... I'm still not close to 100%). A new aquaintance at work recently told us it took her about a year. This actually encourage me, renewing hope that things still will get even better than they currently are.

By the way, my endoscopy was misleading. A waste of time and money.

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    • I havent used it, not much of a baker tbh, but this one looks good: http://alittleinsanity.com/gluten-free-pie-crust-recipe/
    • As you say, there's no test, it's diagnosed by exclusion, so there's no metrics to check to assess compliance other than anecdotal response to symptoms. Conversely, I've not seen anything that says that NCGI can resolved or be cured either.  This paper gives a good summation.  Basically, there's not much research period! That is changing though, I think there's research underway which could help give answers.
    • First, do you have celiac disease?  Have you recently had a celiac antibodies follow-up blood test panel to see if gluten has been actually getting into your diet by accident or through cross contamination?  If you haven't had the test, you should ask your doctor for one.  You could also also ask for a follow-up endoscopy to see if you intestines have truly healed.  This will rule out if gluten is really the problem.    If you don't have celiac, I assume you have Non-celiac gluten Intolerance because no one would stick to the gluten-free diet for six years unless you have had reductions in symptoms.  There is no test for NCGI unfortunately.  So, it is hard to say if gluten has been sneaking into your diet.  You really are going to have to try to figure out if you are getting gluten into your diet.  If gluten is not the problem, then your doctor needs to check you for other issues, like SIBO. There is a test to check for SIBO.  Has this been done?   Once a celiac, always a celiac.  There is no cure for celiac disease except to remain on a gluten free diet for life.  I am not sure about NCGI.  Not much research has been done.  Maybe others can chime in?    
    • I am so confused right now.... 6 years ago I went on gluten free diet... after being on it for the first yr I was 100%better up until 5 months ago in got the "flu" the doctors told me to cut out dairy sonic did and my diarrhea  became better but not completely gone would not have it every day tho. I went to the gi doctor and they said to cut out fructose and dairy and keep gluten out... yesterday I went to the dietitian to see what I can eat and she gave me the list for fructose... she said it should have been on a antibiotic for sibo.... eventually I will be able to add dairy back and maybe gluten.... I said how can I add gluten back when this was my first problem... she goes well through fructose goes hand in hand with it... I said with gluten I vomit and am sick for weeks.... fructose isn't that bad I vomit sometimes but I'm not sick for weeks.... I'm just confused on really what is going on and was wondering if you or someone you know had sibo from gluten and or fructose and how Is this all related?
    • I see no one has responded to your query.  Unfortunately I have yet to try making a pie crust.  It was something I never mastered before going gluten free.  Have you looked on Pinterest?  You might find something there.
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