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How Long Does It Take?
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Started by Peppa_minto,

4 posts in this topic

Posted

I know it is different for everyone but I kind of wanted to know how long it took people to have more energy and feel less fatigue after going gluten free? I just got a negative bloodwork back but I was only eating gluten for ten days... My doctor wants to do an endoscopy but I just started a new job and I need to be healthy. I need energy!!!

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Generally, fatigue means that you're deficient in certain vitamins, minerals, and/or hormones. Your doctor should be testing you (at a minimum) for the levels of your B vitamins (particularly B12 and folic acid), Vitamin D, iron, and thyroid. Your fatigue will subside once you're able to absorb vitamins, minerals, and hormones again. For me, I continued to be deficient in iron for 18 months--that's how long it took for that part of the intestinal lining to repair itself. It always depends on how severe and extensive the damage is. It's possible that you may need sublingual Vitamin B12 (or injections) and/or intravenous iron infusions until your body is able to absorb these nutrients.

Unless you want an "official" diagnosis, there's no reason for an endoscopy. If you suspect celiac or gluten sensitivity, simply follow a gluten-free diet and continue to get blood work to check on your absorption or nutrients.

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Posted

Rosetapper gave you great advice. Before I was diagnosed I was taking a huge amount of vitamins and supplements because of my lack of energy. I had all those vitamin tests done, and it turns out my thyroid isn't working well. as a result, my energy isn't up yet since my meds aren't spot on yet but my gut feels much much better.

Hope you feel well soon.

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It has been 8 months for me and I'm still not there (though there was a dramatic difference when I first went gluten free... I'm still not close to 100%). A new aquaintance at work recently told us it took her about a year. This actually encourage me, renewing hope that things still will get even better than they currently are.

By the way, my endoscopy was misleading. A waste of time and money.

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Go To Topic Listing Celiac Disease - Post Diagnosis, Recovery/Treatment(s)

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    • imissdonuts
      9 mos into diagnosis + still many questions

      By imissdonuts · Posted

      Hi everyone, I've been reading this forum sporadically and have some questions of my own. I'm in my 40s and was diagnosed with celiac last December by biopsy and blood work after months of tests by my primary and then a gastro. My husband, around the same age as me, was dx'd with stage 4 cancer a month later, so admittedly it's took me longer than I'd have liked to learn about celiac. Now I feel pretty on top of my diet. I mostly make my own food - proteins and veggies, with some certified gluten-free snacks in the mix - and am pretty strict about what I will/won't eat at friend's houses or in restaurants (I prefer to go to dedicated gluten-free kitchens whenever possible). I'm doing okay on the diet, but still getting glutened every so often, usually when I let me guard down outside the home. I also periodically see my primary and a naturopath (who happens to have celiac!), but still, I have many questions if anyone would care to answer:

      -FATIGUE. I'm still so tired, fatigued so much of the time. My doctors blame this on the stress of my husband's diagnosis and my periodic trouble sleeping. But even during weeks where I'm sleeping enough (8-10 hrs a day), eating right, exercising as I can, trying to keep stress at bay, I'm still so bleeping tired. Maybe not when I wake up, but by late afternoon. Often my legs even feel weak/wooden. Has anyone else experienced greater fatigue early on after being diagnosed? This will pass, yes? I know I could cut out the sweets and that could help, but also, being a caregiver is hard and sometimes it's nice to eat your feelings between therapy sessions.  

      -SYMPTOMS CAUSED BY FATIGUE? Sometimes I'll have other "feels like I've been glutened" symptoms if I haven't gotten enough sleep, though I'm trying so hard to sleep at least 8 hours a night these days. Hasn't happened in a while thankfully, but there was a point this summer where my insomnia was bad and my arms were achy and I had some crazy flank/back pain I'd never experienced before. For weeks. Doctor ordered me to sleep sleep sleep, taking Benedryl if needed. I did, and the symptoms went away, but weird, yes? Has this happened to you? I ask because I want to make sure I'm getting all strange pains tested to the full extent if there's a chance it's something other than celiac. I do sometimes still feel that strange side stitch after a CC incident.

      -SKIN PROBLEMS. I have had a smidge of eczema since I was a teen and it - and the dermatitis herpetiformis I've acquired with my dx - are out of control right now. I recognize the connection with stress, but also, has anyone found any great natural remedies for DH to stop the itching? I've tried so many useless ointments and medicated creams, a number of them given to my by a dermo months ago. I see my naturopath this week, but thought I'd ask here too.

      -MOSTLY gluten-free KITCHEN GOOD ENOUGH? My husband is supportive of my diet and mostly eats gluten free meals with me, but we still keep a gluten-y toaster for him and the gluten-y dog food in a corner of the kitchen and he still makes the occasional meal with gluten for himself on his own cookware (ravioli, pizza, mac n cheese, etc). Or sometimes I make eggs/toast and the like for him when he's too sick to move. Otherwise, we're militant about how we cook, which cookware we use, etc. He even has a kitchen nook off our den where he makes sandwiches. But sometimes I wonder if having two separate sponges in our shared-ish main kitchen is enough and I should just banish all gluten whatsoever from the kitchen. I can't be the only one with a mixed kitchen, right? How do you do it if you have a mixed-eating family?

      Thank you so much!  
    • cyclinglady
      Celiac Testing

      By cyclinglady · Posted

      Hang in there!  Count your blessings.  Do something you like to do and relax. I know that is hard to do as a young mother (as I sit here in the kitchen sipping coffee quietly as my teenager is sleeping in after a late football game last night where she marched in 90 degree plus weather in full uniform).   But seriously, take a few minutes to relax!  
    • SLLRunner
      Ttg Iga

      By SLLRunner · Posted

      Meredith, this is very true. A colonoscopy is for diagnosis of the lower intestine, endoscopy for the upper intestine.  How did your doctor interpret the tests? I suggest you read the link Cycling Lady gave you because it contains a lot of good information. 
    • cyclinglady
      ZyGluten™

      By cyclinglady · Posted

      Sorry, but this product (supplement) is not even certified gluten free.   Seems odd that a product geared to Non-Celiac Gluten Intolerance would not take the extra step of getting certified.   I guess I am a Nervous Nellie, especially after the reports that several probiotics were contaminated with gluten.   https://celiac.org/blog/2015/06/probiotics-your-friend-or-foe/
    • Fbmb
      Celiac Testing

      By Fbmb · Posted

      Thank you for posting that. I've had a lot of that bloodwork done and everything is normal. At the peak of this belly bug I had blood work done and my white count was fine. I think it's just my health anxiety scaring me into thinking this is something scarier (to me) than celiac. Maybe the anxiety will subside once I go gluten-free. The anxiety is brutal.

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