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Allergist ?
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My doctor scheduled me to see an allergist. Is this good or bad. What should I ask him? What should he check for? Gluten?

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It is not a bad thing. I think it is wise to rule out possible allergies.

IMO you should discuss any reactions to food that you have encountered and you should request food allergy testing be completed.

Since a gluten allergy is different from the immune response in Celiac Disease I would certainly add gluten and wheat to the list of foods being tested for.

It is important to understand that foods that you are intolerant of are not always allergies. I am intolerant of many foods with quite severe reactions, but have had no positive allergy blood or scratch tests for food. It was some comfort to know that I was not allergic to my problem foods - it leaves hope that I will be able to consume them once my digestive system has healed.

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I did test positive in a scratch test 20 years ago to soy and corn; I guess I didn't really believe in that stuff then. They do give me hives and rashes now. Don't think they tested me for any nightshades :unsure:

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Hard to say if it is good or bad with so little information. What the allergist might do is have you bring in a list of the foods that you typically eat. Or they might not. I have found that allergists tend not to check for food allergies and only focus on the inhalents unless you tell them otherwise. For my daughter and for me, we have food intolorances and the allergist was of no help there.

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We found the allergist very helpful for our oldest son. He kept chronic sinus infections and I strongly suspected allergies to be at the root of the problem. He had skin testing and tested positive for dust mites, cockroaches, and a whole slew of fall weeds. He was also tested for the most common allergenic foods and was negative on those. He started on allergy shots and we saw about 80% improvement in his symptoms in the first year. A few years later he started having the same symptoms he had before his allergies were diagnosed. I mentioned it to his allergist that I thought he may have developed new allergies. I was assured that it was a combination of his shots combined with it being "peak" season for his allergies. I decided to change allergists(due to insurance issues) and had him retested. He indeed had developed several new allergies and a couple of the original ones had gone away. Onto new allergy shots. His current allergist did test him for food allergies again and repeated his celiac panel. All were negative. He also said if you are intolerant to a food, no allergy test was going to show that. He advised if I thought he had any food intolerances that an elimination diet was the best diagnostic tool.

So for us an allergist was very helpful in identifying my son's environmental allergies and he has had very good results with allery shots. He also encouraged us to put him gluten free since his brother and I are diagnosed celiac. He did go on to have a scope/biopsy which was negative also. He did a three month trial of gluten free and the results were great. (he had daily stomach aches, bloating, gas, nausea and was falling on the growth cuve)

He has always tested negative on his celiac bloodwork and then biopsy. He does react to gluten none the less and we consider him non celiac gluten intolerent.

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    • I figured I would update those who were wondering.  I have gotten the appt. so far moved up to August 30. I am waiting to have gene testing done via swab for all 3 of my kiddos tomorrow. My daughters celiac antibodies came up negative but her IgA is low which the ped said could cause false negative antibodies for celiac so she will need to see a GI dr. also. The pediatrician is going to call the GI to try to get them in sooner. I am keeping them all on a gluten diet until the GI dr. decides what to do. I am on the cancellation list already for my son, however I am not going to be persistent with my phone calls to them until I have the results of the gene test. I really want that result in my hand before going to the GI dr if I can. Maybe if he is positive, along with his bloodwork and my history they can forgo the endoscopy. But he will eat gluten till then.  My husband and I have been very honest and upfront with him as to what is going on and the possibility of the endoscopy and what that entails and although scared in general he seems ok after assuring him that since I have it he has me to help him every step of the way.  Going through his current diet with him I realized that he is truly on such a low gluten diet that I am actually surprised his bloodwork shows antibodies at all!  So I told him to make a list of allllll the gluten he could possibly think of eating and he needs to pound it until the GI visit or endoscopy. Funny thing is everything he keeps thinking of to want to eat...is already gluten free!  The other night we were at a friends and he asked if he could be done with his hotdog. I made him finish just the bread 😂 Thanks for your help and advise and I will keep y'all posted on both kids!  My oldest is a ok as far as all his antibodies. Just actually had a follow up for other immune issues and all his levels are now normal!
    • I like your plan Cara, I may have to include it in my sons.    Poor little guy is still very very sick. I think he is resisting and cheating, despite having the support of two other siblings and a 100% gluten-free home. 
    • Despite it being a nightmare, I did wait for my kids to get biopsies. At one point I had one severely ill child gluten-free and two more waiting having to eat it. It was worth the wait though and I think long term a biopsy may be worthwhile, especially for school. I have already had issues with schools and camps so having a firm diagnosis has been helpful. 
    • Knowing that the reaction to gluten in celiacs is an uncalled for immune system reaction, I was thinking of how a cure would be possible. Maybe a medicine that somehow turns off the immune system. The only thing that i've heard do that... HIV.  obviously that's way worse than celiac. Just some food for thought.
    • Well, you can probably get an apple or something.  You might be able to get someone to boil you some eggs.  But be careful of things like nuts that should be naturally gluten free.  They have almost always been soaked in a flavor solution that usually containes caramel coloring, "soy" (wheat) sauce and other aditives.  If I am really hungry and must eat in a Chinese restaurant, I order plain white rice and steamed vegetables.  But even so, you must monitor it carefully.  The rice sometimes has other substances added to give it a better texture, and very often the vegetables have in fact had "just a little bit" of soy sauce added.  To be fair, celiac disease is hardly ever found in East Asians, so understandably people are not tuned it to it.  Also, culturally, with the exception of fruits, it is generally thought that the flavor of foods needs to be enhanced, so it is had to find anything natural even in the "western" gorceries. Even in the western restaurants, be careful.  Fish and meat and often vegetables are usually pre-marinated. I will not even attempt to address the issue of cross-comtamination, since that is a whole higher order of things. I do know what I am talking about; I have celiac and have worked here for nearly 7 years.  
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