Posted 18 October 2012 - 12:45 PM
Posted 18 October 2012 - 02:42 PM
IMO you should discuss any reactions to food that you have encountered and you should request food allergy testing be completed.
Since a gluten allergy is different from the immune response in Celiac Disease I would certainly add gluten and wheat to the list of foods being tested for.
It is important to understand that foods that you are intolerant of are not always allergies. I am intolerant of many foods with quite severe reactions, but have had no positive allergy blood or scratch tests for food. It was some comfort to know that I was not allergic to my problem foods - it leaves hope that I will be able to consume them once my digestive system has healed.
Undiagnosed Celiac Disease ~ 43 years
3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive
10/25/13 - MCAD
Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile
My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free
Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS
Get PROPERLY tested BEFORE REMOVING GLUTEN.
ALWAYS independently research health related information found on internet forums/blogs.
"LTES" a Gem
Posted 18 October 2012 - 02:55 PM
"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein
"Life is not weathering the storm; it is learning to dance in the rain"
"Whatever the question, the answer is always chocolate." Nigella Lawson
Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose
Celiac.com - Celiac Disease Board Moderator
Posted 18 October 2012 - 06:28 PM
Posted 19 October 2012 - 06:41 AM
So for us an allergist was very helpful in identifying my son's environmental allergies and he has had very good results with allery shots. He also encouraged us to put him gluten free since his brother and I are diagnosed celiac. He did go on to have a scope/biopsy which was negative also. He did a three month trial of gluten free and the results were great. (he had daily stomach aches, bloating, gas, nausea and was falling on the growth cuve)
He has always tested negative on his celiac bloodwork and then biopsy. He does react to gluten none the less and we consider him non celiac gluten intolerent.
Celiac disease(positive blood work/biopsy- 10/2008), gluten free oat intolerent, Hashimoto's Thyroiditis/Disease, Raynaud's Disease
celiac disease(positive IgA tTG, no biopsy- 11/2010)
repeated negative bloodwork and negative EGD/biopsy. Started on a gluten free trial(8/2011). He has decided to stay gluten free due to all of the improvements he has experienced on the diet.
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