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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Allergist ?
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5 posts in this topic

My doctor scheduled me to see an allergist. Is this good or bad. What should I ask him? What should he check for? Gluten?

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It is not a bad thing. I think it is wise to rule out possible allergies.

IMO you should discuss any reactions to food that you have encountered and you should request food allergy testing be completed.

Since a gluten allergy is different from the immune response in Celiac Disease I would certainly add gluten and wheat to the list of foods being tested for.

It is important to understand that foods that you are intolerant of are not always allergies. I am intolerant of many foods with quite severe reactions, but have had no positive allergy blood or scratch tests for food. It was some comfort to know that I was not allergic to my problem foods - it leaves hope that I will be able to consume them once my digestive system has healed.

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I did test positive in a scratch test 20 years ago to soy and corn; I guess I didn't really believe in that stuff then. They do give me hives and rashes now. Don't think they tested me for any nightshades :unsure:

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Hard to say if it is good or bad with so little information. What the allergist might do is have you bring in a list of the foods that you typically eat. Or they might not. I have found that allergists tend not to check for food allergies and only focus on the inhalents unless you tell them otherwise. For my daughter and for me, we have food intolorances and the allergist was of no help there.

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We found the allergist very helpful for our oldest son. He kept chronic sinus infections and I strongly suspected allergies to be at the root of the problem. He had skin testing and tested positive for dust mites, cockroaches, and a whole slew of fall weeds. He was also tested for the most common allergenic foods and was negative on those. He started on allergy shots and we saw about 80% improvement in his symptoms in the first year. A few years later he started having the same symptoms he had before his allergies were diagnosed. I mentioned it to his allergist that I thought he may have developed new allergies. I was assured that it was a combination of his shots combined with it being "peak" season for his allergies. I decided to change allergists(due to insurance issues) and had him retested. He indeed had developed several new allergies and a couple of the original ones had gone away. Onto new allergy shots. His current allergist did test him for food allergies again and repeated his celiac panel. All were negative. He also said if you are intolerant to a food, no allergy test was going to show that. He advised if I thought he had any food intolerances that an elimination diet was the best diagnostic tool.

So for us an allergist was very helpful in identifying my son's environmental allergies and he has had very good results with allery shots. He also encouraged us to put him gluten free since his brother and I are diagnosed celiac. He did go on to have a scope/biopsy which was negative also. He did a three month trial of gluten free and the results were great. (he had daily stomach aches, bloating, gas, nausea and was falling on the growth cuve)

He has always tested negative on his celiac bloodwork and then biopsy. He does react to gluten none the less and we consider him non celiac gluten intolerent.

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    • Weird Reaction
      Thank  you Flowerqueen and Cristiana for your replies. I'm actually feeling much better today. I got my appetite back yesterday lunchtime (a few hours after I typed the original post) and managed to keep in/hold down some chicken and lettuce!!! I also had a "fat" coffee (as I call it) before work with MCT Oil and butter (your probably going "yuk" right now but it's really nice...really haha) and started feeling a bit better after that. The nausea went away almost immediately after that although just the thought of having all that fat nearly made me sick but I just wanted to get back to normal asap. I usually have a lot of fat in my diet anyway which is normal for me so the coffee choice isn't unusual. Plus it was also the third day which was when I started feeling better after the first time. I didn't eat til lunchtime and I was good and hungry by then so I knew I was coming out of it. That nausea and trembling feeling is something I don't want ever again. I think after the workout and tearing down muscle tissue (which is a form of stress) and then not being able to hold the nutrients in for repair affected my nervous system. My theory only but to me it makes sense. Although Vitargo also comes in flavors I always get the Natural / Unflavored one so the barley is the only ingredient. As for there being something wrong with that particular batch, well, you be on to something there. Also I'm not knocking the product because as I said, I have used it before and it did exactly what it was supposed to do. But, I will never have it again. Cristiana, my last blood test revealed I had slight anaemia which really surprised me with the amount of red meat I've eaten during my life and the anxiety thing is also new as I'm usually a happy, positive person. Life is good but after this recent reaction I think it is an indirect cause of the glutening. I'm also surprised at how sensitive I've become to it and how quickly. Also what is DX? I also follow a FODMAP eating plan (I can give you more info if you haven't heard of it) which also eliminates certain foods. It's a plan directed mostly at IBS but is well worth looking into if you are suffering any gut health, digestion issues or any ailment you may have which you can't get to the bottom of. Broccoli was one of the foods which I have cut back on and I've eaten HUGE amounts of broccoli so it is a superfood for some but apparently not for others. (I even think I read somewhere it has MSG naturally in it) It's hard to find any bad articles on broccoli so this also really surprised me. It also answered a few other questions I had. Many, many thanks again to you both for your replies. It actually settled me just reading them. I'm glad I found these forums so I don't think i'll be a stranger around here for long.   Richard
    • Confused
      Okay, I get that you are not going to follow the advice from some stranger on the internet, but please read the links that I gave you.  Your doctor is not following the standard level of care.  I am dead serious.  I have Kaiser.  My own GP doesn't have a clue about celiac disease, but my Kaiser GI does.  Please, I urge you to get properly diagnosed.  All celiac testing requires you to be on a gluten diet.  If you go gluten free even for two weeks (it will take time to get the referral and appointment), it will mess up the tests.  Your GI will put you back on a gluten diet (called a gluten challenge) for 8 to 12 weeks.    Chances are (almost 100%) you will feel more miserable!  That will just delay your diagnosis.   Symptoms not bad you say?  I had pretty severe anemia, but no tummy issues.  Two months after my diagnosis, I fractured my back DOING NOTHING!  Yep, I have osteoporosis from undiagnosed celiac disease and I am an athlete!   Please take this seriously!    
    • Silent Celiac or Non-digestive symptoms
      Oh, you might learn how to tell if you had been glutened.  I just had anemia as my main symptom.  I did not have any tummy issues at all.  I was in shock when my doctor even suggested testing me for celiac disease!   Glutenings can vary as we are all different.  For some it is just a few days, others a few weeks and others months (that would be me).  My last official glutening as supported by follow-up antibody testing lasted for three months.  Guess what?  I had vomiting, abdominal pain, the works!  Funny how celiac disease can change and evolve over time.   Welcome to the forum!  Have some patience and learn all that you can.  The good news is that you can feel better and no medications are required!  
    • Confused
      Thank you for the information. I've been not sure if I should eat gluten or not right now. Dr. said I should watch what I eat when I emailed him the question. My symptoms aren't very bad (I understand that doesn't matter for celiac disease), so I can definitley tolerate the food. But I have been starving myself the last few days due to not knowing what the heck is going on. Thanks again.
    • Could this possibly be related to celiac or a gluten intolerance?
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