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Tooth Question

mommyto2kids

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mommyto2kids Collaborator
mommyto2kids
Posted

My 9 yr old did not test for celiac on the bood test. However he has frequent stomach aches, unexplained and has unusual accid wear on his teeth. The dentist does no know much about celiac. I have celiac. But the dentis said that my son shows accid pooling in his sleep on his teeth. What do you all think? Could my son have celiac and not have it show up on the test? His stomach aches and accid tooth issues make me wonder. We saw 2 Dr.s after, the primary and and ear nose throat Dr. No one thought of celiac as an issue. What do you think? Dentis thought milk was a problem, but other 2 Dr.s said milk is fine for him. We eat gluten-free for dinner. But he does eat gluten for breakfast and lunch. The tooth thing has me wondering.

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mamaupupup Contributor
mamaupupup
Posted

Tooth enamel defects is definitely an issue for Celiacs...but even our Ivy League trained pediatric dentist can't find research linking the two for kids.

We have two girls who had cavities between all of their molars at 4 yrs old. Yep, 8 cavities each. They were diagnosed with Celiac at 5.5 years. Now at 6.25 years (almost a year gluten free) the girls' teeth are actually recalcifying (we did xrays this week).

The belly aches are really what will help you get attention paid to Celiac. Also, one of my daughters BARELY had a positive TTG. Plus, I have never had a positive TTG/bloodwork (I had a positive biopsy). I had too many food aversions to have enough gluten to trigger the TTG...but the gluten I had was doing damage...

Find a REALLY good pediatric GI. If you let me know which major metropolitan area you're close to, I'll try to get a good referral from our GI (Dr. Michelle Pietzak at Children's Hospital Los Angeles). Also in LA, Dr. Brynie Collins is excellent.

Madagascar Rookie
Madagascar
Posted

I just looked this up for someone yesterday . . .

there is information out there about dental issues linked to celiac disease. Here are a few links that i found by googling "celiac+dental disease"

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link (the Canadian Dental Association published this one)

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      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
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