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Tooth Question


mommyto2kids

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mommyto2kids Collaborator

My 9 yr old did not test for celiac on the bood test. However he has frequent stomach aches, unexplained and has unusual accid wear on his teeth. The dentist does no know much about celiac. I have celiac. But the dentis said that my son shows accid pooling in his sleep on his teeth. What do you all think? Could my son have celiac and not have it show up on the test? His stomach aches and accid tooth issues make me wonder. We saw 2 Dr.s after, the primary and and ear nose throat Dr. No one thought of celiac as an issue. What do you think? Dentis thought milk was a problem, but other 2 Dr.s said milk is fine for him. We eat gluten-free for dinner. But he does eat gluten for breakfast and lunch. The tooth thing has me wondering.


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mamaupupup Contributor

Tooth enamel defects is definitely an issue for Celiacs...but even our Ivy League trained pediatric dentist can't find research linking the two for kids.

We have two girls who had cavities between all of their molars at 4 yrs old. Yep, 8 cavities each. They were diagnosed with Celiac at 5.5 years. Now at 6.25 years (almost a year gluten free) the girls' teeth are actually recalcifying (we did xrays this week).

The belly aches are really what will help you get attention paid to Celiac. Also, one of my daughters BARELY had a positive TTG. Plus, I have never had a positive TTG/bloodwork (I had a positive biopsy). I had too many food aversions to have enough gluten to trigger the TTG...but the gluten I had was doing damage...

Find a REALLY good pediatric GI. If you let me know which major metropolitan area you're close to, I'll try to get a good referral from our GI (Dr. Michelle Pietzak at Children's Hospital Los Angeles). Also in LA, Dr. Brynie Collins is excellent.

Madagascar Rookie

I just looked this up for someone yesterday . . .

there is information out there about dental issues linked to celiac disease. Here are a few links that i found by googling "celiac+dental disease"

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link (the Canadian Dental Association published this one)

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    • trents
      Welcome to the forum, @Trish G! "Gluten free" does not necessarily equate to "no gluten". According to FDA standards it actually means that a food product contains no more than 20ppm of gluten. This is safe for most celiacs but would not be for those who are on the more sensitive end of the spectrum. So, it would depend on the individual celiac and their level of sensitivity to minor amounts of gluten. That's the long and nuanced answer. The short answer is that it is a product derived from wheat and so you can be certain it will contain some residual amounts of gluten. No gluten removal process is 100% effective. So, to be absolutely certain, stay away from it. Have you tried chia seeds? Very high in fiber and quickly turns into a gel when added to water. Make sure you get seeds that are gluten free if you decide to try it.
    • Trish G
      I was taking Benefiber for my IBS-C before my celiac diagnosis. It does say Gluten Free but lists Wheat Dextrin on the label. I really dont like psyllium fiber, so is there anything else I can take or is the Benefiber really ok for someone with Celiac disease?  Thanks!!!
    • kpf
      Abdominal pain and an itchy stomach were the symptoms I asked to see a GI about. Now I’ve learned these other symptoms—that I have but attributed to other issues—could also be related to celiac disease:  fatigue joint pain canker sores numbness or tingling in hands or feet difficulty with coordination anemia headaches neutropenia I never dreamed in a million years she would consider celiac disease. It was a shock to me. It’s definitely not what I went to her for. 
    • knitty kitty
      @Rejoicephd, I'm not a doctor, but I experienced severe thiamine deficiency.  Your symptoms seem really familiar.  Malabsorption is a real thing that happens with Celiac.  A multivitamin is not going to prevent nor correct nutritional deficiencies.    Doctors do not recognize nutritional deficiency symptoms.  Gastrointestinal Beriberi is not recognized often.  Caused by thiamine deficiency, high dose thiamine supplements or IV administration with other vitamins, minerals and glucose under doctor's care is needed.   Thiamine deficiency is found in anemia.  Thiamine deficiency in the kidneys can result in electrolyte imbalances and cloudy urine.  Thiamine deficiency can cause high blood sugar which can cause cloudy urine.  Dehydration can cause cloudy urine.   I'm linking some PubMed articles.  You see if your symptoms match.  Discuss the possibility of Gastrointestinal Beriberi with one of your specialists soon!  Just to rule it out.  I'm very concerned.   I'm linking some PubMed articles.  You see if your symptoms match.   Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/#ref3 From Section 3: "In conclusion, TD limited to the gastrointestinal system may be an overlooked and underdiagnosed cause of the increasingly common gastrointestinal disorders encountered in modern medical settings. Left unattended, it may progress to wet or dry beriberi, most often observed as Wernicke encephalopathy.". . And... Refeeding Syndrome https://www.ncbi.nlm.nih.gov/books/NBK564513/
    • trents
      What are your symptoms? What has brought you to the point where you sought celiac disease testing?
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