Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Babycakes In Downtown Disney
0

5 posts in this topic

I recently went to Babycakes in Downtown Disney. I became violently ill. I contacted the bakery to make them aware that I became sick. They suggested it was from something other than gluten.

No, it was gluten. I have very specific symptoms to gluten only. For example the only thing that makes me break out with dermatitis herpetiformis is gluten. All my symptoms are gluten specific.

Some where and some how someone made a mistake and cross contaminated the food. It was the ONLY place I had eaten other than my 100% gluten free home. I only had a bottle of water to drink. I even made sure to not touch the table before eating the cupcake from Babycakes. However, I became so ill that we had to leave Downtown Disney.

I called a friend of mine, also celiac, and she told me that she has also gotten sick after eating at Babycakes in Downtown Disney. Unfortunately for me she forgot to tell me as her experience was a year ago. She never contacted the bakery though.

I wonder how many other people have gotten sick. I imagine most people don't contact the place they've eaten to let them know.

Anyway, that's my warning. I will not eat there again. I do not consider it safe for celiacs. I am, however, a very sensitive celiac. Your level of sensitivity may differ, but I wanted to post because if I had found a warning post about Babycakes in DTD then I would not have gotten sick and missed the Cirque du Soleil show I had already purchased tickets to see. I also wouldn't be sitting here with the blistery rash that some celiacs enjoy.

0

Share this post


Link to post
Share on other sites


Ads by Google:

I'm sensitive as well but they make their gluten-free stuff offsite. Maybe it would be ok if we ask for still boxes stuff. Also contact Disney itself

0

Share this post


Link to post
Share on other sites

I'm so sorry that you got sick! We go to Babycakes a lot as we live in Orlando. But my son has a gluten intolerance related to his autism and not celiac. Cross contamination doesn't seem to affect him.

I wonder if they use an unusual flour or other ingredient that you are reacting to.

0

Share this post


Link to post
Share on other sites

I don't think contacting Disney would help as I don't believe they are anything other than a location for the vendor.

I know many many people as well who have gone to many of the Babycakes stores with no issues. I know they are pretty strict with things from calls I have made.

0

Share this post


Link to post
Share on other sites

We've eaten there once before & did not get sick thankfully.  That's such a bummer to hear of others getting sick though.  Frankly, I was less than impressed with their cupcakes anyways - I mean it's pretty darn easy to make gluten-free cake that tastes like & has the exact same texture as "regular" cake so I was kind of "meh" with their cupcakes. 

 

Did they just keep denying it or did they at least offer to comp you another cupcake or something?  (not that of course I would take them up on it!)

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,385
    • Total Posts
      920,613
  • Topics

  • Posts

    • Squirmingitch, I forgot to mention best of luck to you during the storm! I hope you are safe and that your home isn't impacted too badly! I'm on the coast in SC so we will see some storms from it but nothing near as bad as what you will have. Take care and good luck.
    • SquirmingItch, I really appreciate you gathering info for me! To answer your questions, yes, I'm on Dapsone now and have been on it for about 4.5 weeks. I have been gluten free for the same amount of time. I started on 50 mg of Dapsone which didn't seem to help much. I spoke to my doctor about it and after about a week she raised it to 100 mg. Since then I did notice a huge improvement in both my rash and itch. I no longer have any active rashes and my itching isn't completely gone but it's very minimal. I have been getting weekly blood tests done and will soon be moving to monthly.  My DH skin biopsy was done before the gluten free diet and Dapsone. My results for the skin biopsy came back as inconclusive, but even with those results, my doctor was convinced I had DH. I specifically asked her about the fact that she took the biopsy directly from the lesion rather than next to it and if that affects the result. Her explanation was that if it's a fresh enough lesion that isn't scratched, there should be IgA antibodies present. But she said that an inconclusive result isn't surprising because the IgA antibodies come and go from the skin so quickly that it can be very difficult to get a positive result, even in someone who is positive.  That's when she decided to run the celiac blood panel on me. And even though those results came back positive for the deamidated gliadin and negative for tTg, she still is very convinced that I have DH. I am happy that my doctor seems to be certain, but I would just feel better if the results were more definitive. The one other thing I am waiting on is I have been asked to attend grand rounds at the local academic hospital in 2 weeks. I guess grand rounds is where all of the academic dermatologists and dermatopathologists get together to review certain complicated cases. They will meet with me, review all of my pictures, biopsies and blood tests. My situation has been so complicated so they asked me to come. I am hoping maybe then I will get some more answers. 
    • It sure is, it really is. 
    • shellyb, I have info. for you & you may yet be able to get an official dx from your dermatologist as she sounds like she would be willing to learn. If you are dx'd with dh it is definitive & no other testing is needed. You don't need to see a GI. Im in FL & have had a long day watching Tropical Storm Hermine & making preparations for it's track which is over where I live. I'm tired! I will have links for you to reputable medical info. on the rash but it make take me till tomorrow or even longer if we lose power.  I'll be back as soon as I can. Question: You're on Dapsone now? How long have you been on it? How is it working for you? Are you getting the proper testing at regular intervals to make sure it isn't doing bad things to you? Were you gluten free before the skin biopsy?
    • Thank you so much for your quick response, GFinDC. While I wouldn't be completely opposed to another skin biopsy, I already had 4 done (3 were done prior to my dermatologist suspecting DH) so I don't love the idea of  yet another hole and scar on my body. Plus, fortunately I don't have any fresh lesions now, which I believe is needed for the biopsy. I wish I would have known to see a GI before going gluten free but I was so desperate to get any relief that I started that and Dapsone as soon as my doctor mentioned it to me.  My rash is definitely symmetrical and I have it in all of the "classic" DH spots although it basically spread over my entire body. As much as I'd like a more formal diagnosis, I really don't think I can go through all of that again. It was so bad that not only was I getting no sleep but I had to change my sheets every morning because there was blood all over them. Sorry, TMI. The worst part is that this all developed during my ninth month of pregnancy and got much worse after I delivered my baby. So not only was I dealing with this insanely itchy rash but I had a newborn and a toddler to take care of.  My daughters' pediatrician did mention doing DNA testing on me first and then my daughters to see if there's any concern that they may be susceptible. I may just go that route for now. I was just curious if others have had similar test results to mine and how did their doctors treat it? Thanks again!
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,455
    • Most Online
      1,763

    Newest Member
    JLeigh
    Joined