mcc0523
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About Me
I am going gluten free after recently being diagnosed with osteoporosis before I turned 25. The osteoporosis is partially due to a connective tissue disorder, called Ehlers-danlos syndrome. From further research, it seems that many people with EDS also develop celiac disease, or other autoimmune disorders. I have other health issues, including GERD, Barrett's esophagus, and dysautonomia (a disruption of the normal processes of the autonomic nervous system, which regulates pulse and blood pressure among other automatic bodily processes), among others.
Non health related attributes about me includes my mad musical skills, my ability to completely lose myself in a book, and then as soon as I lay the book down, a marvelous ability to lose things. I have seriously considered joining a convent for the past 2 years, although I have felt the calling since I can remember.
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ARCHIVED Will My Friends And Family Believe Me...
mcc0523 replied to Deanna Marie's topic in Parents, Friends and Loved Ones of Celiacs
I would think about getting a new therapist. Yes, they "only" deal with emotional problems, but the good ones will recognize that physical illnesses can have things like depression and anxiety as symptoms, sometimes the only symptoms. In fact, it was a psychologist friend who first told me to consider vitamin deficiencies, perhaps caused by celiac or something... -
I think that low cholesterol diet is a BAD idea long term... cholesterol is found in almost every cell in the human body, and it is what the myelin sheath which coats the nerves (and what is attacked in MS) consists of. If one doesn't consume cholesterol, then the liver makes it, so if the diet is low in cholesterol (or good fats in general) it can overtax...
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Try Open Original Shared Link for a primal based diet. The "diet" (lifestyle or way of eating is more accurate) is meats, veggies, and healthy fats (coconut oil, butter, animal tallow are all great; processed vegetable oils {such as canola} and anything that has been hydrogenated is VERY bad). Fruits are a rare addition, although if someone is doing heavy...
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ARCHIVED How Many People Are Actually Self-diagnosed?
mcc0523 replied to no-more-muffins's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
What is ridiculous is your seemingly blind faith in the medical profession. Plus, what part of 30% false NEGATIVE rate of the "Gold Standard" tests don't you understand? That means that there are 30% of the people who have been tested for Celiac and told that they don't have it that ACTUALLY HAVE IT! Of course you can go around and trust the medical... -
ARCHIVED Super Sensitive And Living In A Mixed Household
mcc0523 replied to mcc0523's topic in Super Sensitive People
I am looking into getting a dorm fridge... However, I'm not sure if I want to buy one now, since I'm most likely to move out. I am an adult, who is keeping my parents from being in a financial pickle by paying them rent to live here. I would rather not move out, because I know that would be detrimental to them, but I can't handle being glutened at least... -
ARCHIVED Super Sensitive And Living In A Mixed Household
mcc0523 posted a topic in Super Sensitive People
I got glutened from my dad, who wiped his hands, but did not wash them (or even rinse thoroughly) after eating a doughnut before he reached into a bag of my almonds (that I later ate). I am working on my parents into making at least the kitchen gluten-free, and not physically interacting at all with my mom, as she insists upon wearing Aveno products (and... -
I am a musician, currently training to be a church organist. I've previously had voice and piano training, plus 7 years of band in school. I don't know exactly what I want to do with music, but it is more important to me than most anything else. I'm especially fond of Gregorian Chant, and sing with a Gregorian Chant Schola every Sunday. I am a Trekkie...
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Get a new doctor. Doctors work for you, you (and/or your insurance) pay them. If they aren't providing the services that you are paying them for, fire them. I'm sorry you've seen such a jerk. They are many of them out there, unfortunately. Perhaps there is a local Celiac support group could give you the name of a good Celiac knowledgeable doctor.
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I've had "possible MS" mentioned to me, by doctors and other MS patients. I had the "walk", stiff and shuffling of feet. I have a borderline-Chiari malformation, which can cause symptoms that are similar to Celiac/gluten-intolerance, and if I hadn't gone gluten-free, I would have probably had surgery by now. I'm so glad that I had others in my life talk...
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I would like my whole kitchen to be gluten-free, but as I live with my parents, and they still eat gluten, I wash dishes now at least two or three times as I wash everything after I use it, and then before I use it again, as I don't trust my parents to yet not cc me, and they use the same dishes. I am feeling better and my gastric symptoms have pretty much...
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ARCHIVED How Do Some Celiacs Put On Weight?
mcc0523 replied to adm07's topic in Related Issues & Disorders
Perhaps the times and sizes are a bit different, but this is very similar to my whole gain/lose history, too. I was anemic the last blood draw, with no niacin in my blood the last time it was tested (and many other things were really low). I have stopped weighing myself for the past few years, but I have had to keep a range of clothing sizes, from... -
ARCHIVED I Am Grateful Truly I Am But Some Days......
mcc0523 replied to cahill's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I'm grateful that I was able to hike earlier 2.5 hours in the woods. A feat that was impossible 2 months ago, that I had given up for good (that was such a horrible night when I told my best friend that I would never be able to do that again... I actually cried over that). I went gluten-free a month ago, and I can already tell such a difference in how I... -
ARCHIVED I Miss Beer
mcc0523 replied to mcc0523's topic in Gluten-Free Foods, Products, Shopping & Medications
It is difficult to know which one is lucky... both of us are, I suppose, because we know what makes us sick and how to avoid it. I am hopeful for the future of gluten-free-beers... and you're right, cider is pretty awesome. I am also hopeful that in a few years, there will be at least one good gluten-free beer out there. If not, I can learn to... -
ARCHIVED I Miss Beer
mcc0523 replied to mcc0523's topic in Gluten-Free Foods, Products, Shopping & Medications
I understand not having even a sip... *sigh* I guess I need to start looking into alternate grains, and use my current brewing knowledge and come up with a good alternative. I've been especially missing my IPA, so I could come up with something that uses A LOT of hops. I wonder how brown rice does in beer, too. I can't think of anything to take the place... -
ARCHIVED On Celiac Diet For A Year, Now I Have Joint Pain
mcc0523 replied to imracin68j's topic in Doctors
With Ehlers-danlos syndrome, which causes joint pain, it's not uncommon to also develop Celiac/gluten-intolerance (I'm a member of several chronic illness message boards, and it's surprising the people who have both EDS and Celiac). If you have a history of being hypermobile/flexible in your joints (even if they aren't now... ironically hypermobility can...
