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    Jefferson Adams

    How is Lactose Intolerance Related to Celiac Disease?

    Reviewed and edited by a celiac disease expert.

    Once the damaged villi and microvilli to grow back, and the gut heals, the sensitivity to lactose often disappears.

    How is Lactose Intolerance Related to Celiac Disease? - Many newly diagnosed celiacs cannot digest lactose for a while. Image: CC BY 2.0--Senado Federal
    Caption: Many newly diagnosed celiacs cannot digest lactose for a while. Image: CC BY 2.0--Senado Federal

    Celiac.com 03/12/2020 - Lactose intolerance is one of the most common food intolerances. Many people with celiac disease also have lactose intolerance, especially at the time they are first diagnosed.

    Lactose intolerance happens when the gut fails to produce enough lactase, and enzyme that breaks down the lactose sugar in milk. Lactose intolerance can be inherited, but it can also happen as people get older and their bodies produce less lactase. Studies consistently shows that only about one in three people worldwide can digest lactose beyond seven or eight years of age.

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    Celiacs who eat gluten can become lactose intolerant after the villi and microvilli in their small intestine become damaged, and can no longer intercept and break down lactose molecules. 

    However, most people recover on a gluten-free diet. Once the damaged villi and microvilli to grow back, and the gut heals, the sensitivity to lactose often disappears. This can take time.  In most people, full gut healing takes between six months and a year.

    In some cases the villi and microvilli damage can take up to two years to heal fully. In any case, once the gut heals, lactose intolerance issues should disappear.

    Also, most people who are lactose intolerant can eat goat and sheep products, such as milk, yogurt and cheeses, such as feta and pecorino Romano, without any problems. Many people with lactose intolerance can also consume raw, unpasteurized dairy without symptoms. 

    Links to Goat, Sheep, and Raw Cow Milk Products 



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    Guest victor

    How long does it take for gluten symptoms to go away after not consuming it anymore??

     

    I still have symptoms but it could be from the dairy products after reading this... or it could be the gluten symptoms wearing off.

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    Guest faith
    Wonder if anyone would have help for us here - my husband was diagnosed w/celiac 2 yrs. ago, and has done wonderful in eliminating gluten from his diet. About 2 weeks ago he began to have some of the same symptoms again - namely dermatitis herpetiformis & hearing loss -- only this time it is more widespread over his body. He is miserable and desperate for relief, which doctors. are working on - but wonder if anyone else has experienced the same relapse after being gluten-free for a couple of years and a complete cessation of symptoms?. Lactose & dairy haven't been a problem.

    Have you seen a dermatologist yet? I had a red raised itchy and hot to the touch rash and after a biopsy was taken it came back as EAC a complication from the Immune system and inflammation. was given Prednisone and was the only thing that brought relief.

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    Guest Anna

    Here I am 69 years old and diagnosed about a year ago. The terrible gastric distress (the runs, pain, vomiting) from dairy and gluten were mixed together until I learned that I could tolerate neither one, but perhaps dairy in the future. So I stopped both and really felt magically better. Sheep and goat no problem. I would try cow and at first, would run to the bathroom within a half hour! Now, no problem.

     

    But I agree with Sue that my symptoms tend to return when I eat fried food or fats. I never had that problem before OR I feel so good now that I really notice the difference when I feel bad. By the way, to answer Victor, when I ended the gluten, within 2 days, I was pain free and nausea free! Like magic! Thoough I get a little symptomatic when I eat more fat than usual. Probably a lesson here... Fat not so good anyhow...

     

    All comments are very helpful to me. Thanks so much.

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    Guest Pau

    Since being diagnosed with celiac I can't take vitamin supplement so I opt for B12 shots every month. Works wonders, gives me energy. I've not been sick in the 2.7 years since my diagnosis, I used to get a bad cold every fall/winter. My autoimmune system seems supercharged though I still have flare-ups I'm working on identifying the food that causes it.

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    Guest Cameo

    Wow. I learned so much from this site. Me, Celiac + Lactose Intolerant + Insomnia + Vegetarian. OMG WHAT'S LEFT TO EAT?

    Became "iron toxic" from eating ALL green. Afraid to eat anything. (no processed foods/canned foods/frozen foods). Any advice? Not one of 9 doctors asked me about diet! I must be my own doctor: most do not have a clue to the diet importance.

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    Guest Cameo
    Have you seen a dermatologist yet? I had a red raised itchy and hot to the touch rash and after a biopsy was taken it came back as EAC a complication from the Immune system and inflammation. was given Prednisone and was the only thing that brought relief.

    OMG I had shingles last summer - got Prednisone. Felt energy for the first time in a decade! Shingles gone, mouth sores gone, happy, eat gluten free healthy just fine. Then, NOT ONE DOCTOR WILL GIVE ME PREDNISONE AGAIN? I'm "60"...not the drugie type: just want to have my immune system calm. Considering going to Mexico to get PREDNISONE to feel alive again. Any advice? I am miserable and fatigued 24/7. help.

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    Guest Lauren

    Posted

    I am 19 and three years ago I was diagnosed celiac, I had severe eczema all over yet the dermatologists took a biopsy and said it was not dermatitis, so they have provided me with cyclosporine its incredible cleared up my eczema straight away now I can eat milk products and fatty products and it doesn't flair up like it used to, however recently been having similar symptoms to that of gluten with cream, Ben and Jerry's ice cream, Thornton's chocolates and double cream but the doctors are reluctant to give me a lactose intolerant test, think they already think I'm using up enough of NHS money what with my gluten free products, it's interesting to have read that the two are interlinked perhaps I'll just stop eating lactose as well or go and get some of those Lactaid tablets!! Thanks for all your help!!

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    Guest Lorraine hall

    Posted

    Wonder if anyone would have help for us here - my husband was diagnosed w/celiac 2 yrs. ago, and has done wonderful in eliminating gluten from his diet. About 2 weeks ago he began to have some of the same symptoms again - namely dermatitis herpetiformis & hearing loss -- only this time it is more widespread over his body. He is miserable and desperate for relief, which doctors. are working on - but wonder if anyone else has experienced the same relapse after being gluten-free for a couple of years and a complete cessation of symptoms?. Lactose & dairy haven't been a problem.

    I know this reply is a bit late, as I have only just read it. Does your husband eat fresh gluten free bread? Most of the fresh stuff contains codex wheat starch, which some celiacs can't tolerate, it makes them ill.

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    Guest Colleen

    Posted

    I have celiac disease and one day I ate some ice cream and started itching really badly all over..no rash, just very bad itching. I came to find out it was from celiac, so now no dairy or gluten!

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    Guest Stephanie

    Posted

    My mom, sister, and 2 aunts have celiac disease. I am lactose intolerant but as long as I stay on that diet I do not have any symptoms. Recently I had a positive Lupus test which then came back negative the 2nd time. I asked my doctor to test me for celiac and he did but the blood test came back as I did not have it. I am cold all the time and my family feels these are signs of celiac and that many people get false test results. Has anyone else had this or similar experiences that can offer me some advice? I do not want to be causing hard to my body and have future effects from it, but I also don't want to go on an expensive diet if I don't have to. I am 35 and have been lactose intolerant since I was about 23. Thank you for any insight!

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    Guest Megan
    My mom, sister, and 2 aunts have celiac disease. I am lactose intolerant but as long as I stay on that diet I do not have any symptoms. Recently I had a positive Lupus test which then came back negative the 2nd time. I asked my doctor to test me for celiac and he did but the blood test came back as I did not have it. I am cold all the time and my family feels these are signs of celiac and that many people get false test results. Has anyone else had this or similar experiences that can offer me some advice? I do not want to be causing hard to my body and have future effects from it, but I also don't want to go on an expensive diet if I don't have to. I am 35 and have been lactose intolerant since I was about 23. Thank you for any insight!

    Stephanie, Try getting your thyroid tested. I have both hpyothyrodism and just recently tested positive for celiac disease. Some of the symptoms are similar like feeling cold and hair loss. It can't hurt to try. I've also had a false positive for lupus as well.

     

    Goodluck. :)

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    Guest Emily
    My mom, sister, and 2 aunts have celiac disease. I am lactose intolerant but as long as I stay on that diet I do not have any symptoms. Recently I had a positive Lupus test which then came back negative the 2nd time. I asked my doctor to test me for celiac and he did but the blood test came back as I did not have it. I am cold all the time and my family feels these are signs of celiac and that many people get false test results. Has anyone else had this or similar experiences that can offer me some advice? I do not want to be causing hard to my body and have future effects from it, but I also don't want to go on an expensive diet if I don't have to. I am 35 and have been lactose intolerant since I was about 23. Thank you for any insight!

    I also got negative from the blood, and from a biopsy. But I have cut out gluten anyway, and within 24 hours all my symptoms stopped. They have returned again recently (after 2 years gluten-free) and it's only because I eat dairy, so I'm going to cut that out too.

     

    My advice is, you can spend years and years trying to get the diagnosis from the doctors, and if you keep eating gluten, and end up seriously ill in a few years time, what's that to them? You're the only one who will be affected. Act as if you have the diagnosis, and see if you any better. I suffered for 23 years, almost everyday. Just try the diet, if you don't feel any different after 2 months, then stop. you may find that when you stop, your symptoms get worse. then at least you know. It can be expensive, but I don't get any prescriptions, and I manage. It's all about finding what 'normal' foods you can eat.

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    Jefferson Adams

    Jefferson Adams is Celiac.com's senior writer and Digital Content Director. He earned his B.A. and M.F.A. at Arizona State University. His articles, essays, poems, stories and book reviews have appeared in numerous magazines, journals, and websites, including North American Project, Antioch Review, Caliban, Mississippi Review, Slate, and more. He is the author of more than 2,500 articles on celiac disease. His university coursework includes studies in science, scientific methodology, biology, anatomy, physiology, medicine, logic, and advanced research. He previously devised health and medical content for Colgate, Dove, Pfizer, Sharecare, Walgreens, and more. Jefferson has spoken about celiac disease to the media, including an appearance on the KQED radio show Forum, and is the editor of numerous books, including "Cereal Killers" by Scott Adams and Ron Hoggan, Ed.D.

    >VIEW ALL ARTICLES BY JEFFERSON ADAMS

     


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