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Seeking Advice as a New Mom with Celiac-Hyperthyroidism


Hyperceliac

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Hi! Though I am new as a member of this forum, I just want to say how much it has helped me, with all the articles and forums, to be able to manage my conditions. It has been an absolute lifesaver!



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So, a month ago, I was blessed with the unexpected surprise of a baby. (The clinic I had gone to had claimed I wasn't pregnant, and a lot of the pregnancy symptoms really mimicked many of the effects I have when my body is triggered by something I should not have eat, plus my body at the time had been suffering from leaching, leaky gut, and scurvy prior to when my baby would have been conceived.)

I have been overjoyed with my surprise bundle, because I had already suffered 2 miscarriages, but as this past month has gone on, my body seems to be really struggling with the demands of motherhood. The doctors at the hospital nor the pediatricians seem to know anything (or don't care to pass on any relevant information) about being a mother with Celiac-Hyperthyroidism. In fact, ever since I discovered that I have these conditions, I have learned the most how to take care of myself through extensive research. I mean, for example, my baby's pediatrician told me to eat grains to boost milk production when I have Celiac! Like, seriously?!

That brings me to the first of my struggles that I am desperate to find help with-my hyperthyroidism has my milk production all over the board and there are times a feeding when my baby barely seems to get the recommended mL-per-feeding. I don't feed formula due to the corn/maltodextrin and soy in all of them, as corn and soy mimic gluten and causes the body to attack in the same way any gluten product does. But, without a backup of formula, I'm worried about not being able to produce enough milk. 

My second thing, which scares me just as much, is I am increasingly sleeping through my feeding alarms I set to try and keep my baby on a feeding schedule to ensure enough food is being given. It started about a week ago, with sleeping an hour past my multiple alarms, but last night really scared me because I slept through 4 hours of multiple alarms! And these are loud, obnoxious alarms! I know I'm not getting enough sleep for my condition, because for as long as I can remember, I've needed 12 hours of sleep a night, but I've never met a parent of a newborn who has ever gotten away with 12 hours of continuous sleep! But, I feel, because I have two autoimmune conditions, if I don't find a way to get more sleep and/or stop sleeping through alarms, I'm afraid of sleeping through a moment when my baby might desperately need me, such as spitting up, etc. 

I would love any and all advice, because my own research hasn't helped me and I don't know anyone in my circle of friends or fellow parents who have Celiac-Hyperthyroidism, so while their everyday advice for being a new parent is wonderful, they don't have to deal with the extra struggle of being a mom with two autoimmune conditions, and I am at a loss on what to do.

I thank you all again; this site has been such a tremendous help!!

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Welcome to the forum, Hyperceliac!

First, I'm not sure you realize this but you created a blog rather than posting in the open forum where your post would get more exposure. I would suggest creating a post rather than a blog. The forum is topically organized into sections so find one that is appropriate. You should be able to copy and paste from your blog into your post.

Some more information would be helpful if you decide to post. Have you officially been diagnosed with celiac disease and with hyperthyroidism?

Do you know what is causing the hyperthyroidism? Have you been checked for tumors that cause the thyroid to become enlarged and increase hormone output? Sometimes surgery or radiation is required to address this issue such that the size of the gland is reduced. Also, are you taking medication to manage the hyperthyroidism? I'm not sure what the implications are of that for the baby of a nursing mom. Neither am I sure about the effect of excessive thyroid hormone in your blood stream on the baby your are nursing. Does it get into the milk? So you might want to look into all of this, both for the sake of your health and your baby's health.

Can we ask what country you are in? It doesn't sound like you are getting optimum medical care.

Edited by trents
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Welcome to the forum! 

Thyroid conditions are also related to untreated celiac disease, and when this is the case can sometimes go away on a gluten-free diet. This category has many research summaries on the topic:

https://www.celiac.com/articles.html/celiac-disease-amp-related-diseases-and-disorders/thyroid-pancreatic-disorders-and-celiac-disease/ 

As for issues waking up and getting enough sleep with a newborn, you’re probably going to be tired and not get good sleep for a few years...at least that’s how I remember it. Perhaps search for a better alarm clock? Also, our doctor told us not to worry and create a strict feeding schedule, and to let the baby wake us up when it’s hungry. My daughter could come close to sleeping all night, but my son woke us up every 2 hours when he was a newborn.

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"I would love any and all advice, because my own research hasn't helped me and I don't know anyone in my circle of friends or fellow parents who have Celiac-Hyperthyroidism, so while their everyday advice for being a new parent is wonderful, they don't have to deal with the extra struggle of being a mom with two autoimmune conditions, and I am at a loss on what to do."
 

HyperCeliac Seeking Advice,

The Hyper thyroid problems and Fatigue can be be from Low Thiamine levels....

Taking Magnesium Citrate and Benfotiamine with meals can help your fatigue issues.

Here is two great studies that shows how being low in Thiamine can trigger Hyper Thyroidism and lead to Chronic Fatigue issues.

Entitled "Thiamine and Hashimoto's thyroiditis: a report of three cases" and a thiamine deficiency as a cause of chronic fatigue in Thyroid patients....

https://pubmed.ncbi.nlm.nih.gov/24351023/

And this one entitled "Thyrotoxicosis Associated Wernicke’s Encephalopathy"

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2173917/

This is a great thread on Thiamine deficiency....

Or just search for Knitty Kitty and many threads about  how a Thiamine deficiency can affect a Celiac.. .....especially if fatigue is your main complaint.....will come up.

Or do the same for Magnesium and also several good threads about magnesium will come up...

I hope this is helpful but it is not medical advice.

Posterboy,

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