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What is Celiac Disease?
Celiac disease (aka coeliac disease) is a genetic autoimmune disorder where ingesting gluten (a protein in wheat, barley, and rye) triggers an immune response that damages the small intestine's lining. This damage leads to inflammation and atrophy of the villi, tiny finger-like projections in the intestine responsible for nutrient absorption. As a result, individuals with celiac disease may experience symptoms like diarrhea, bloating, fatigue, and malnutrition. Over time, untreated celiac disease can lead to more severe health problems, including anemia, osteoporosis, weight loss, and increased risk of certain cancers. A strict gluten-free diet is the only effective treatment. Celiac disease is an autoimmune disease, not a wheat allergy. It's also different from non-celiac gluten sensitivity, gluten intolerance, or sensitivity to gluten.
My Long Journey to Celiac Disease Diagnosis
Like many people, I spent a lot of years, a lot of dollars, and endured many tests and misdiagnoses, before doctors finally discovered that I had celiac disease (also known as coeliac disease or celiac sprue), and needed to eliminate gluten and all gluten-containing ingredients from my diet. Gluten is a protein found in the three main gluten-containing grains: wheat, rye, and barley; and is often hidden in processed foods, and things like soy sauce and beer...[READ MORE about my long and winding road to a celiac disease diagnosis and recovery.]
Gluten-Free Diet
To treat my celiac disease I had to go on a gluten-free diet for life. That meant learning to read food labels to avoid gluten ingredients, and eating a diet of mostly naturally gluten-free foods like meats, fruits, nuts, vegetables, and packaged foods only if they are certified gluten-free or labeled gluten-free, for example gluten-free breads made using gluten-free grains.
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Recent Activity
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- trents replied to xxnonamexx's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms12
Elimination diet think I may be Gluten tolerant next steps to get tested? Questions
No. That is, unless the dietician themself has a gluten disorder or is managing a close family member who does and therefore is immersed in it daily so as to be up on the nuances of eating gluten free. Otherwise, they just give you very general information which you can get online. -
- trents replied to LeeRoy83's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms11
UK Member Looking For Help - Recent Test
Yes, a very cryptic and uninformative lab result report indeed! But it does seem like this is typical for the UK. It's almost like the "professionals" in that healthcare system don't want you to try and figure anything out for yourself. -
- xxnonamexx replied to xxnonamexx's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms12
Elimination diet think I may be Gluten tolerant next steps to get tested? Questions
Thanks for the explanation. Do you think a dietician is required? I see people ask about getting one but what now will they help with besides charge you to say start away from gluten. -
- trents replied to xxnonamexx's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms12
Elimination diet think I may be Gluten tolerant next steps to get tested? Questions
Wow! I think the answers to your questions seem obvious to me but I'll oblige you. It's invasive because they are running a scope into an orifice and down through much of your body. Any procedure that invades the body is invasive. It's expensive because you are paying a trained professional (a doctor) to do it, plus nurses and an anesthesiologist... -
- RMJ replied to LeeRoy83's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms11
UK Member Looking For Help - Recent Test
Maybe your followup is for the elevated total IgA, and not for celiac. It is strange not to have a numerical result for the tissue transglutaminase. I hope you get answers in the followup with your GP.
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