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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
What is Celiac Disease?
Celiac disease (aka coeliac disease) is a genetic autoimmune disorder where ingesting gluten (a protein in wheat, barley, and rye) triggers an immune response that damages the small intestine's lining. This damage leads to inflammation and atrophy of the villi, tiny finger-like projections in the intestine responsible for nutrient absorption. As a result, individuals with celiac disease may experience symptoms like diarrhea, bloating, fatigue, and malnutrition. Over time, untreated celiac disease can lead to more severe health problems, including anemia, osteoporosis, weight loss, and increased risk of certain cancers. A strict gluten-free diet is the only effective treatment. Celiac disease is an autoimmune disease, not a wheat allergy. It's also different from non-celiac gluten sensitivity, gluten intolerance, or sensitivity to gluten.
My Long Journey to Celiac Disease Diagnosis
Like many people, I spent a lot of years, a lot of dollars, and endured many tests and misdiagnoses, before doctors finally discovered that I had celiac disease (also known as coeliac disease or celiac sprue), and needed to eliminate gluten and all gluten-containing ingredients from my diet. Gluten is a protein found in the three main gluten-containing grains: wheat, rye, and barley; and is often hidden in processed foods, and things like soy sauce and beer...[READ MORE about my long and winding road to a celiac disease diagnosis and recovery.]
Gluten-Free Diet
To treat my celiac disease I had to go on a gluten-free diet for life. That meant learning to read food labels to avoid gluten ingredients, and eating a diet of mostly naturally gluten-free foods like meats, fruits, nuts, vegetables, and packaged foods only if they are certified gluten-free or labeled gluten-free, for example gluten-free breads made using gluten-free grains.
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Recent Activity
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- Heatherisle replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2
Blood results
Hi Thanks for answering so quickly. Not sure about any other blood tests, all I have is a copy of what my daughter sent to me. Hopefully she’ll get the biopsy soon cos she’s really anxious about the whole thing, but she tends to have a lot of anxiety anyway and has done for a long time -
- trents replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2
Blood results
Welcome to the forum, @Heatherisle! Yes, not uncommon for multiple celiac antibody tests to not agree. The Endomysial IGA was the first antibody test developed to detect celiac disease. It is expensive to run and has largely been replaced by the tTG-IGA. But some physicians, particularly those who have been in practice for awhile, still order the EMA... -
- Heatherisle posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2
Blood results
Hi New to this so bear with me!!! My daughter was told a few years ago she probably had IBS but been feeling generally worse lately Recent IgA TTG Ab blood test indicative of coeliac at 19 U/ml but Endomysial IgA Abs negative. Awaiting appointment for biopsy , so was wondering if anyone else has had these differing results. Thank you -
- lehum replied to lehum's topic in Gluten-Free Foods, Products, Shopping & Medications22
nuts.com -- no longer Celiac safe?
The article was shocking - and horrifying - to read. For me it’s a good argument to cook as many fresh foods as possible. I personally can’t do grain free because I lose weight too quickly and don’t feel full, but I will be sticking to companies I trust like Lundberg for rice. I live in Germany and thankfully, labeling here is more transparent and m... -
- Scott Adams replied to lehum's topic in Gluten-Free Foods, Products, Shopping & Medications22
nuts.com -- no longer Celiac safe?
Yes, it is unfortunate that the GFCO seems to have a policy that allows companies that it certifies to lower their guard the longer that they've had their certification. After jumping though the harder GFCO testing requirements for long enough they seem to "rubber stamp" companies and allow them to keep their certification with much less testing going forward...
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