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What is Celiac Disease?
Celiac disease (aka coeliac disease) is a genetic autoimmune disorder where ingesting gluten (a protein in wheat, barley, and rye) triggers an immune response that damages the small intestine's lining. This damage leads to inflammation and atrophy of the villi, tiny finger-like projections in the intestine responsible for nutrient absorption. As a result, individuals with celiac disease may experience symptoms like diarrhea, bloating, fatigue, and malnutrition. Over time, untreated celiac disease can lead to more severe health problems, including anemia, osteoporosis, weight loss, and increased risk of certain cancers. A strict gluten-free diet is the only effective treatment. Celiac disease is an autoimmune disease, not a wheat allergy. It's also different from non-celiac gluten sensitivity, gluten intolerance, or sensitivity to gluten.
My Long Journey to Celiac Disease Diagnosis
Like many people, I spent a lot of years, a lot of dollars, and endured many tests and misdiagnoses, before doctors finally discovered that I had celiac disease (also known as coeliac disease or celiac sprue), and needed to eliminate gluten and all gluten-containing ingredients from my diet. Gluten is a protein found in the three main gluten-containing grains: wheat, rye, and barley; and is often hidden in processed foods, and things like soy sauce and beer...[READ MORE about my long and winding road to a celiac disease diagnosis and recovery.]
Gluten-Free Diet
To treat my celiac disease I had to go on a gluten-free diet for life. That meant learning to read food labels to avoid gluten ingredients, and eating a diet of mostly naturally gluten-free foods like meats, fruits, nuts, vegetables, and packaged foods only if they are certified gluten-free or labeled gluten-free, for example gluten-free breads made using gluten-free grains.
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Recent Activity
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- knitty kitty replied to Jane07's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms3
any advice would be helpful
@Jane07, welcome to the forum! Have you been checked for nutritional deficiencies? Malabsorption of essential nutrients is common in Celiac Disease. Supplementing with vitamins and minerals that are commonly low in the newly diagnosed can help immensely with recovery. Vitamin D is frequently low. Vitamin D helps regulate the immune system and... -
- knitty kitty replied to xxnonamexx's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms1
What would a diagnosis tell me?
Welcome to the forum! A blood test for Celiac looks for the amount of antibodies your body is producing in response to gluten. An endoscopy looks at the damage done by the antibodies attacking the villi lining the intestines. When you have a cold or infection, antibodies are made that attack the foreign invader. In Celiac Disease, our immune... -
- cristiana replied to LeeRoy83's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms12
UK Member Looking For Help - Recent Test
@LeeRoy83 Hello again. Picking up on something else you said re: the shock that you may be a coeliac. It may has come as a shock to learn that coeliac disease is a possibility, but if that is the case, although it can be at times a bit of a nuisance not to be able to eat gluten anymore, it has been my experience that most of my friends... -
- trents replied to xxnonamexx's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms12
Elimination diet think I may be Gluten tolerant next steps to get tested? Questions
No. That is, unless the dietician themself has a gluten disorder or is managing a close family member who does and therefore is immersed in it daily so as to be up on the nuances of eating gluten free. Otherwise, they just give you very general information which you can get online. -
- trents replied to LeeRoy83's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms12
UK Member Looking For Help - Recent Test
Yes, a very cryptic and uninformative lab result report indeed! But it does seem like this is typical for the UK. It's almost like the "professionals" in that healthcare system don't want you to try and figure anything out for yourself.
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