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Celiac Disease Pre-Diagnosis, Testing & Symptoms

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If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.

17,536 topics in this forum

  1. inflammation of small intestine

    • 5 replies
    • 1,594 views
    • 131 replies
    • 25,819 views
  2. Blood test results for son

    • 2 replies
    • 785 views

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  4. Blood test results

    • 8 replies
    • 1,360 views
  5. Lips problems

    • 9 replies
    • 3,847 views
  6. HELP (it has been a loooong 5 years)

    • 14 replies
    • 1,667 views
  7. Think this is coeliac?

    • 4 replies
    • 877 views
  8. Has anyone else experienced this??

    • 18 replies
    • 1,259 views
    • 3 replies
    • 1,330 views
  9. Understanding results and tests

    • 1 reply
    • 799 views
  10. PLEASE HELP - Blood test results

    • 11 replies
    • 1,582 views
  11. Inova DGP

    • 2 replies
    • 1,015 views
  12. symptoms after eating and 2nd biopsy?

    • 10 replies
    • 1,103 views
  13. New here...looking for answers.

    • 1 reply
    • 915 views
    • 7 replies
    • 1,311 views
  14. Confused...

    • 10 replies
    • 1,183 views
  15. New diagnosis/test results & questions

    • 6 replies
    • 1,393 views
  16. Celiac or NCGS???

    • 3 replies
    • 1,006 views
  17. 'Pending' blood test results

    • 2 replies
    • 3,751 views
    • 4 replies
    • 1,296 views
  18. Test results. Nine year old.

    • 8 replies
    • 1,092 views
  19. Testing and low carb diet

    • 6 replies
    • 1,306 views
  20. Could this be Celiac? Help!

    • 23 replies
    • 1,674 views
  21. Symptoms Pre-Diagnosis

    • 6 replies
    • 1,151 views
  22. Celiac diagnosis

    • 3 replies
    • 855 views
139 139


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    JD........low white cell counts are common in autoimmune disease.  Mine were very low for my entire life ( I am now 61) and they have gone up to almost normal range now once I had been gluten free for awhile.  It did take a long time for them to bounce back, but they did.  I was diagnosed at age 46. All of your symptoms scream of Celiac so if you do not have an endoscopy, recheck of antibodies for...
    Does anyone know if the HLA-DQ–gluten tetramer-based Celiac Test is available in the US? I saw the article that it was being tested in Norway.   Thank you, Sarah
    Trent’s.......those antibody tests are specific to Celiac.  While it looks like the doctor did not test the EMA, with results that high and rapid weight loss, Celiac is a strong contender.  Other AI conditions can raise tTg but usually only by much smaller numbers.  The Gliadin IgA is an older test but the one they used when I was diagnosed 15 years ago.  It is the test for gluten consumption in th...

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