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Recent Activity
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- trents replied to JoJo0611's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms3Chances of being coeliac
If this applies geographically, in the U.K., physicians will often declare a diagnosis of celiac disease based on the TTG-IGA antibody blood test alone if the score is 10x normal or greater, which your score is. There is very little chance the endoscopy/biopsy will contradict the antibody blood test. -
- JoJo0611 replied to JoJo0611's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms3Chances of being coeliac
TTG IgA reference range 0.0 to 14.9 KU/L -
- trents replied to JoJo0611's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms3
Chances of being coeliac
What was the reference range for that test? Each lab uses different reference ranges so a raw score like that makes it difficult to comment on. But it looks like a rather large number. -
- JoJo0611 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms3
Chances of being coeliac
I have had the tTG-IgA blood test my result are >250.0 I am waiting for the appointment with the gastroenterologist for endoscopy and biopsies. what are the chances it’s not coeliacs. waiting and not knowing is so hard. Especially the eating of gluten knowing it may be causing you more harm and coping with the symptoms. -
- knitty kitty replied to fatjacksonthecat's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease19Nicotine Gum For Gluten Symptoms.. Am I Crazy?
@sleuth, Has your son been checked for nutritional deficiencies? All of those symptoms can be caused by malnutrition. I had severe malnutrition that went unrecognized by my doctors. Intense fatigue, brain fog, depression, anxiety, and gastrointestinal distress are symptoms of deficiencies in the eight essential B vitamins, especially Thiamine B1,...
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If this applies geographically, in the U.K., physicians will often declare a diagnosis of celiac disease based on the TTG-IGA antibody blood test alone if the score is 10x normal or greater, which your score is. There is very little chance the endoscopy/biopsy will contradict the antibody blood test.
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What was the reference range for that test? Each lab uses different reference ranges so a raw score like that makes it difficult to comment on. But it looks like a rather large number.
-
I have had the tTG-IgA blood test my result are >250.0 I am waiting for the appointment with the gastroenterologist for endoscopy and biopsies. what are the chances it’s not coeliacs. waiting and not knowing is so hard. Especially the eating of gluten knowing it may be causing you more harm and coping with the symptoms.
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By knitty kitty · Posted
@sleuth, Has your son been checked for nutritional deficiencies? All of those symptoms can be caused by malnutrition. I had severe malnutrition that went unrecognized by my doctors. Intense fatigue, brain fog, depression, anxiety, and gastrointestinal distress are symptoms of deficiencies in the eight essential B vitamins, especially Thiamine B1, which becomes low first because the demand is higher when we're sick. Celiac Disease causes inflammation and damage of the intestinal lining which inhibits absorption of essential nutrients. Checking for nutritional deficiencies is part of proper follow up care for people with celiac disease. Is your son taking any vitamin supplements? Most supplements contain thiamine mononitrate which in not readily absorbed and utilized by the body. Benfotiamine is a form of thiamine that is shown to promote intestinal healing. Benfotiamine is available over the counter. Benfotiamine is safe and nontoxic. Is your son eating processed gluten-free foods? Gluten-free processed foods are not required to be enriched with vitamins like their gluten containing counterparts. Is your son following a low histamine diet? Histamine is released as part of the immune response to gluten and other foods high in histamine. High levels of histamine in the brain can cause anxiety, insomnia, and depression. The body needs the B vitamins to make the enzyme Diamine Oxidase (DAO) to break down and clear histamine. DAO supplements are available over the counter. Vitamin C helps clear histamine as well. Some people find over the counter antihistamines helpful as well, but they're not for long term use. Nicotine has antihistamine-like properties, but can also irritate the gut. Tobacco, from which nicotine is derived, is a nightshade (like tomatoes, potatoes, peppers and eggplant). Nightshades contain alkaloids which affect gastrointestinal permeability, causing leaky gut syndrome. Nicotine can cause gastrointestinal irritation and alter for the worse the microbiome. Safer alternatives to Nicotine that have antihistamine properties include Lemon Balm (Sweet Melissa), Passion Flower, Chamomile, and Bilberry. They can be taken as supplements, extracts, or tea. These will help with the anxiety, insomnia and depression in a much safer way. Oolong tea is also helpful. Oolong tea contains the amino acid L-Theanine which helps the digestive tract heal. (L -Theanine supplements are available over the counter, if not a tea drinker.) Tryptophan, a form of Niacin B3, also helps calm digestive symptoms. Another amino acid, L-Lysine, can help with anxiety and depression. I've used these for years without problems. What ways to cope have you tried in the past?
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