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Recent Activity
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- stephaniekl replied to stephaniekl's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease10Follow up endoscopy and biopsy 14 years post celiac diagnosis
She used to take supplements, but her abdominal pain is so debilitating that she hasn't been able to continue. Her primary care team has been suggesting liquid supplements rather than pill form to help. They just drew a lot of blood Friday and we are slowly getting all that work back. I will definitely check into thiamine! Thanks! -
- stephaniekl replied to stephaniekl's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease10
Follow up endoscopy and biopsy 14 years post celiac diagnosis
They have not done that yet. We are looking at some other treatments to help. And you are correct. The tickborne illness has been a wild ride. Our whole family has been battling different tickborne illnesses. Its expensive and exhausting. -
- cristiana replied to Colleen H's topic in Coping with Celiac Disease3Ibuprofen
I cannot tolerate it at all - triggers burning and nausea, ditto aspirin. Here in the UK I take Paracetamol. -
- knitty kitty replied to Colleen H's topic in Coping with Celiac Disease3Ibuprofen
For back pain, I take a combination of Cobalamine B12, Pyridoxine B 6, and Thiamine B 1 (in the form Benfotiamine), which have an analgesic effect. These three B vitamins together work way better than those over the counter pain relievers. Theses are water soluble B vitamins that are easily excreted via the kidneys if not needed. Thiamine will also help... -
- knitty kitty replied to stephaniekl's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease10
Follow up endoscopy and biopsy 14 years post celiac diagnosis
@stephaniekl, welcome to the forum, Is your daughter taking any nutritional supplements? Weight loss and failure to thrive are two symptoms of thiamine insufficiency. Thiamine deficiency symptoms are not recognized as such by doctors. I experienced similar symptoms when I became malnourished. Thiamine deficiency symptoms can become worse...
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By stephaniekl · Posted
She used to take supplements, but her abdominal pain is so debilitating that she hasn't been able to continue. Her primary care team has been suggesting liquid supplements rather than pill form to help. They just drew a lot of blood Friday and we are slowly getting all that work back. I will definitely check into thiamine! Thanks! -
By stephaniekl · Posted
They have not done that yet. We are looking at some other treatments to help. And you are correct. The tickborne illness has been a wild ride. Our whole family has been battling different tickborne illnesses. Its expensive and exhausting. -
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By knitty kitty · Posted
For back pain, I take a combination of Cobalamine B12, Pyridoxine B 6, and Thiamine B 1 (in the form Benfotiamine), which have an analgesic effect. These three B vitamins together work way better than those over the counter pain relievers. Theses are water soluble B vitamins that are easily excreted via the kidneys if not needed. Thiamine will also help the nausea. Interesting Reading... Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine), and B12 (cobalamin) in pain: a narrative review https://pubmed.ncbi.nlm.nih.gov/35156556/#:~:text=Some of these processes include,Analgesics -
By knitty kitty · Posted
@stephaniekl, welcome to the forum, Is your daughter taking any nutritional supplements? Weight loss and failure to thrive are two symptoms of thiamine insufficiency. Thiamine deficiency symptoms are not recognized as such by doctors. I experienced similar symptoms when I became malnourished. Thiamine deficiency symptoms can become worse quickly, and can affect one emotionally and mentally. Although blood tests for thiamine aren't accurate, do have your daughter checked for nutritional deficiencies. Thiamine B 1 works with the other B vitamins and magnesium. Thiamine and Niacin B 3 help improve Gerd. All the B vitamins are frequently low due to malabsorption. Vitamin D will help calm the immune system. Thiamine helps the immune system fight off viruses like those tick borne illnesses. Thiamine Mononitrate, which is in many vitamin supplements, is not bioavailable. I was taking a multivitamin containing thiamine mononitrate and still became deficient in thiamine. Thiamine in the form Benfotiamine has been shown to promote intestinal healing. A form called TTFD (tetrahydrofurfuryl disulfide) is also excellent for correcting thiamine deficiency. A combination of Thiamine, Cobalamine B12, and Pyridoxine B 6 has analgesic properties. I take it for back pain. Keep us posted on your progress! Interesting Reading... The importance of thiamine (vitamin B1) in humans https://pmc.ncbi.nlm.nih.gov/articles/PMC10568373/#:~:text=Thiamine absorption in the jejunum,system [51–53].
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