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Recent Activity
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- Russ H replied to AllyJR's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms1Confused about my results
Sorry but I have to dash for an appointment so little time just now. Your signs and symptoms and response to a gluten-free diet sound like seronegative coeliac disease. Seronegative coeliac disease, Coeliac UK.- 1
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- AllyJR posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms1Confused about my results
Both the doctor and I are baffled by my test results. Wondering if anyone could shed some light on this situation! I've had celiac-like GI symptoms for years. I have a family history of celiac (great-grandma), Addison's (mom), and every other autoimmune disease you can think of with my aunts and cousins. I myself have hashimotos. Because of the strong family... -
- Russ H replied to ohmichael's topic in Super Sensitive People5
Curious if I should quit my job
ohmichael, do you know that you've reacted to gluten? We all get ups and downs in health - a mild viral infection one week and maybe an unset stomach another time. It is easy to ascribe the symptoms to gluten exposure even when that is not the cause of the symptoms. I would wait and see if it happens again before giving up your job, especially if you don... -
- RMJ replied to ohmichael's topic in Super Sensitive People5Curious if I should quit my job
Could you wear a mask at work to reduce your inhalation of flour? -
- trents replied to ohmichael's topic in Super Sensitive People5Curious if I should quit my job
Sounds like for the good of your own mental health its time to find another living space anyway. It may be best for everyone concerned.
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Sorry but I have to dash for an appointment so little time just now. Your signs and symptoms and response to a gluten-free diet sound like seronegative coeliac disease. Seronegative coeliac disease, Coeliac UK.
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Both the doctor and I are baffled by my test results. Wondering if anyone could shed some light on this situation! I've had celiac-like GI symptoms for years. I have a family history of celiac (great-grandma), Addison's (mom), and every other autoimmune disease you can think of with my aunts and cousins. I myself have hashimotos. Because of the strong family history of autoimmune disease my doctor ordered the full celiac panel of blood tests - all of which came back negative! (I was not gluten free fyi.) So the doctor did an endoscopy and took biopsies. Biopsies showed "villous blunting and lymphocytes greater than 30". Because it was indicative of "weak celiac disease" they sent me to get a genetic test. The test came back saying I'm only positive for HLA DQ A1*05 (half of the HLA DQ2 haplotype). The doctor said I could try going gluten free if I want to, but it likely isn't celiac disease. I have been gluten free for a month now and I feel like a new person! I've been suffering for so long and I feel amazing! No more diarrhea, stomach aches, reflux etc! My symptoms had been extremely severe and they are almost completely gone. I'm so thankful but... I'm so confused! Celiac? The doctor says it's probably NCGS but I keep reading that the first criteria for that diagnosis is a negative biopsy and mine very much showed damage.
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ohmichael, do you know that you've reacted to gluten? We all get ups and downs in health - a mild viral infection one week and maybe an unset stomach another time. It is easy to ascribe the symptoms to gluten exposure even when that is not the cause of the symptoms. I would wait and see if it happens again before giving up your job, especially if you don't have another one to go to.
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Could you wear a mask at work to reduce your inhalation of flour?
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Sounds like for the good of your own mental health its time to find another living space anyway. It may be best for everyone concerned.
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